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A Resiliency Perspective Of The Lived Experience Of Parenting Infants And Young Children With Cystic Fibrosis In The Context Of Early Lung Disease Surveillance, Cindy Branch-Smith

Theses: Doctorates and Masters

Scientific and technological advances over the past few decades have contributed to an exponential increase in life expectancy for infants born with cystic fibrosis (CF), which can cause fatal lung disease. There has been a paradigmatic shift from reactive treatment towards early disease detection and aggressive intervention of paediatric CF. Previous research has investigated parents’ experiences of the diagnosis phase and later life stages such as adolescence and transition to adulthood. Less is understood about the experience of parenting infants and young children with CF, and no research addresses this during early surveillance for CF lung disease. Early surveillance is …