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Department of Medicine Faculty Papers

2020

Sidney Kimmel Medical College at Thomas Jefferson University; Jefferson College of Population Health;

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Needs Of Individuals Living With Hepatitis Delta Virus And Their Caregivers, 2016-2019., Priyanka Kumar, Catherine Freeland, Sierra Bodor, Sean Farrell, Chari Cohen, Rosemary Frasso Phd, Msc, Cph Dec 2020

Needs Of Individuals Living With Hepatitis Delta Virus And Their Caregivers, 2016-2019., Priyanka Kumar, Catherine Freeland, Sierra Bodor, Sean Farrell, Chari Cohen, Rosemary Frasso Phd, Msc, Cph

Department of Medicine Faculty Papers

INTRODUCTION: Hepatitis delta virus (HDV) is a serious coinfection of the hepatitis B virus (HBV) that is estimated to affect between 48 to 72 million people worldwide. Data are limited on the informational needs of people living with HDV. The Hepatitis B Foundation, a US-based nonprofit organization that provides support to people living with HBV and HDV, receives emails (queries) as part of a helpline, a service to provide information, resources, and support to people affected by HBV and HDV.

METHODS: Query content was analyzed to assess the impact of HDV at the individual level. A total of 65 HDV-related …