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Full-Text Articles in Medicine and Health Sciences
Social And Psychological Factors Associated With Health Care Transition For Young Adults Living With Sickle Cell Disease, Dora L. Clayton-Jones, Nadine Matthie, Marsha Treadwell, Joshua Field, Amy Mager, Rachel Sawdy, Safiya George Dalmida, Cynthia Leonard, Kathryn L. Koch, Kristin Haglund
Social And Psychological Factors Associated With Health Care Transition For Young Adults Living With Sickle Cell Disease, Dora L. Clayton-Jones, Nadine Matthie, Marsha Treadwell, Joshua Field, Amy Mager, Rachel Sawdy, Safiya George Dalmida, Cynthia Leonard, Kathryn L. Koch, Kristin Haglund
College of Nursing Faculty Research and Publications
Introduction: Due to advances in disease management, mortality rates in children with sickle cell disease (SCD) have decreased. However, mortality rates for young adults (YA) increased, and understanding of social and psychological factors is critical. The aim of this study was to explore factors associated with health care transition experiences for YA with SCD.
Method: This was a qualitative descriptive study. A 45-minute semistructured interview was conducted with 13 YA (M = 21.5 years, SD = 1.73).
Results: Results suggest that social and psychological factors and self-management experiences influence health care transition. Eight themes emerged: “need for accessible support”; “early …