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Autonomy In The California Disability Services System, Lisa Ann S. Carbone

Walden Dissertations and Doctoral Studies

Legislation concerning California residents with intellectual and developmental disabilities (ID/DD) requires recipients of services to be treated as independent individuals while emphasizing self-determination. At the same time, under regulatory procedures, recipients are considered dependent on the delivered services and not self-determinant. Neither the California Department of Developmental Services nor the trade associations representing community service providers have established a unified, systematic practice to support self-determination. This phenomenological study explored the experience of adults with ID/DD working toward self-determination.

Specifically, it explored how medical and social models contribute to shaping and actualizing the independence of this population. Interviews with eight adults …