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Life Sciences Commons

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Theses and Dissertations

Genetics and Genomics

Cystic Fibrosis

2014

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The Use Of Social Media And The Impact Of Support On The Well-Being Of Adult Cystic Fibrosis Patients, Margaret Anne Faust Jan 2014

The Use Of Social Media And The Impact Of Support On The Well-Being Of Adult Cystic Fibrosis Patients, Margaret Anne Faust

Theses and Dissertations

Cystic fibrosis (CF) is the most common, life-limiting autosomal recessive condition disorder of Caucasians. CF is a chronic condition that requires daily treatment of symptoms, the stress of which can have mental health consequences. Due to the potential for cross contamination of bacterial infections, individuals with CF are discouraged from meeting in person and must find other venues to receive support. Social media provides the opportunity for individuals with CF to communicate and provide support. We hypothesized a positive correlation between the patients' health-related quality of life and the amount of time spent on CF-related social media sites. We expected …