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Evaluating The Social Informational Needs Of Emerging Adults With Genetic Conditions, Courtney Whitmore
Evaluating The Social Informational Needs Of Emerging Adults With Genetic Conditions, Courtney Whitmore
Theses and Dissertations
Purpose: This study evaluated the healthcare provider’s role during the social development of emerging adults with a genetic condition. The study also identified the type of information and ways that these adolescents hope to receive information on the potential side effects or complications from engaging in risk taking behaviors and lifestyle choices.
Methods: Participants included both males and females aged 18-26 with achondroplasia, sickle cell disease, cystic fibrosis, or Marfan syndrome. Respondents were recruited to complete an anonymous online questionnaire via social media support groups or email notification.
Results: There were 103 total respondents that completed the questionnaire and met …