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A Mother's Spiritual Journey With Her Disabled Son: An Autoethnography, Margaret C. Higgins Edd

Dissertations

Abstract

This autoethnographic research delves into a mother’s experiences with her disabled son over thirty-five years. Beginning with a thick description of the crib accident that resulted in physical and cognitive disabilities that profoundly change the course of both mother and son’s life, this research chronicles the search for meaning, community, and healing as they negotiate the realms of medicine, education, career, family, and spirituality. Models of disability that seek to explain various ways in which society often views disability are examined, but none resonate with the researcher’s intimate experiences nor satisfies her deepest needs for insight and healing. Making …

The Impact Of Family Autism Camp On Families And Individuals With Asd, Luchara R. Wallace

The Qualitative Report

Families of children with disabilities, such as Autism Spectrum Disorders (ASD), often search for opportunities to acquire information about and receive emotional support from others who may have or had similar experiences. An evaluation of the Dakota Black Goose Family Autism Camp sought to determine the impact of the family camp experience. Pre- and Post-Camp surveys were administered upon families’ arrival at Camp and prior to their departure (n=17) to evaluate the overall quality of the program as well as the level of informational and emotional support anticipated and received. Follow-up interviews were completed six months post Camp to determine …

Self-Care And Mobility Disability At Mid-Life In Lucky Few, Early-, And Late-Baby Boom Birth-Cohorts, Carlos Siordia

Journal of Health Disparities Research and Practice

Disability is related in definite ways with makers of social stratum, as it can be influenced by and has the potential to contribute to the production and reproduction of social stratification. Intersectional markers of social stratification processes are ignored determinants of health. The Class, Race, Sex (CRS) hypothesis presented here argues that a low-education, racial-minority, and female disadvantage will compound to affect the prevalence and risks of disability. The evidence presented validates the CRS hypothesis by showing that disability prevalence and risk clusters first by class, race, and then sex. The cross-sectional study of community-dwelling adults in the Unites States, …

Students With Physical Disabilities - Reflections On Their Experiences With Work Preparation Programs, Services And Accommodations In A Higher Education Institution, Claudia Castillo

FIU Electronic Theses and Dissertations

For a variety of reasons, college students with disabilities encounter stressors beyond those of students who do not have disabilities. One of the more salient examples is that students with disabilities are required to disclose that they have a disability and to communicate with faculty and staff in order to receive academic accommodations, as afforded to them under sub-part E of Section 504 of the Education and Rehabilitation Act of 1974. Therefore, postsecondary institutions are required to make appropriate accommodations available to students with disabilities, but they are not required to proactively seek them out.

The purpose of this study …

Can Social Media Reduce Discrimination And Ignorance Towards Patients With Long Term Conditions? A Chronic Kidney Disease Example In The Uk And More Widely, Shahid N. Muhammad, Amy J. Zahra, Howard J. Leicester, Heather Davis, Stephen Davis

Patient Experience Journal

Long Term Conditions (LTCs) are increasing in prevalence and cost in Western healthcare. Patients with such conditions are often classed as “disabled”, because of impacts of self-care on “activities of daily life” or secondary consequences of conditions (impairments) affecting factors such as mobility, concentration and communications. Disability needs are often ignored in the design of services and treatment of individuals. It manifests as services which some find difficult to use and lack of personal respect (discrimination) often based on lack of understanding by the healthcare profession itself (ignorance). This paper explores how Social Media (SM), an example “Assistive Technology” in …

Ilhan, Nura, Radwa, Ziagull And Children, Ilhan, Tsos

TSOS Interview Gallery

Ilhan, his wife Nura, and their children resided near Kabul, in a region where both the Taliban and ISIS were active. As Shias, Ilhan’s family faced numerous menaces, including threats from ISIS that they would be beheaded if they did not display ISIS flags. Ilhan’s sister Radwa, who is deaf and mute, was forced to marry a regional leader. In addition to being threatened on religious grounds, Ilhan’s family was also threatened by an elder of their town. Out of desperation, Ilhan’s family sold their house appliances, escaped Afghanistan, and arrived at the …