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“Everything Seems To Be The Right Eye In Our Family”: Intergenerational Family Living With Facial Eye Disfigurement: An Interpretative Phenomenological Analysis, Zali M. O'Dea Ms, Jane Southcott
“Everything Seems To Be The Right Eye In Our Family”: Intergenerational Family Living With Facial Eye Disfigurement: An Interpretative Phenomenological Analysis, Zali M. O'Dea Ms, Jane Southcott
The Qualitative Report
This paper presents the lived experience of an intergenerational family, spanning three generations living with Facial Eye Disfigurement (FED). Living with vision loss and FED is estimated to affect nearly 8 billion people worldwide. Inadequate attention is paid to the impact of Living with FED (LwFED) on the lives of individuals. This research offers a deep dive into the lived experiences of one family LwFED. This family comprises a grandfather (deceased), son, wife, and child, all of whom have lived or live with FED. In this Interpretive Phenomenological Analysis (IPA) study three interviewees are deemed the experts. Data were collected …
“My Mummy Has A Hole In Her Face”: Living With Facial Eye Disfigurement, Zali O'Dea, Jane Southcott
“My Mummy Has A Hole In Her Face”: Living With Facial Eye Disfigurement, Zali O'Dea, Jane Southcott
The Qualitative Report
People living with facial eye disfigurements (LwFED) are often shunned by a society that makes spontaneous judgements based on appearance. This article is a case study of the lived experience of Toni, a 27-year-old woman LwFED, the result of her treatment for ocular cancer. Semi-structured interviews facilitated the exploration of her experiences. We present the findings chronologically but interwoven with themes such as: being strong for others; responding to her partner’s abuse; dealing with strangers; and reinventing her sense of identity and supporting others. We identified institutional perspectives of work, hospital, and family within the prevailing UK that impacted Toni’s …
The Ayes Have It!, Zali O'Dea
The Ayes Have It!, Zali O'Dea
The Qualitative Report
This is my autoethnography about living with Facial Eye Disfigurement (FED). The purpose of this autoethnography is to answer the question, “What are the lived experiences of people living with FED?” There are wide and varying issues faced by people living with facial disfigurement (FD), for example, dealing with psychosocial and psychological aspects, the lived experiences and voices of persons with FED are nowhere in the research literature. The themes presented here are not unique to FED but illustrate how far and wide the phenomenon occurs, themes such as, social isolation, bullying, gatekeepers, discrimination, and hope. The themes are woven …