Arts and Humanities Commons^™

Silence From The Great Communicator: The Early Years Of The Aids Epidemic Under The Reagan Administration, Jacqueline A. Ortiz

Swarthmore Undergraduate History Journal

1981 not only commenced Ronald Reagan’s presidency but also marked the beginning of the AIDS epidemic, caused by the Human Immunodeficiency Virus (HIV). The early framing of the disease as an exclusively homosexual affliction disadvantaged gay communities. This sexually transmitted disease proliferated across the United States; yet, the AIDS epidemic failed to reach the Reagan administration as a top priority until it was too late. When discussing the Reagan administration’s early response to AIDS, historians tend to follow one of two positions: avoid mentioning the disease and in its entirety; or blame Reagan’s homophobia for the deaths of thousands of …

Hiv-Seropositive Patients’ Experiences With Social Workers: A South African Hiv+ Social Worker’S Reflective Log, Delarise Maud Mulqueeny

The Qualitative Report

Social workers play a pivotal role in HIV-seropositive patients’ treatment and care within South African public antiretroviral treatment (ART) programs. This article is a reflective log of an HIV-seropositive social worker’s observations and reflections on her positionality during a study on HIV-seropositive patients’ experiences of the public ART program in eThekwini, KwaZulu-Natal, South Africa. The primary investigator (PI) utilized various tools and techniques including reflexive bracketing, participatory action research and a reflexive diary to navigate a sensitive study. This was while being cognizant of the fluidity of her insider/outsider positionality. The disclosure of the PI’s HIV-seropositive status culminated in all …

"Species Commons": Bishnupriya Ghosh In Conversation With Amit R. Baishya, Bishnupriya Ghosh, Amit Baishya

Critical Humanities

Bishnupriya Ghosh is Professor of English and Global Studies at the University of California, Santa Barbara. Her first two monographs were on cultures of globalization: When Borne Across: Cosmopolitics in the Contemporary Indian Novel (2004) and Global Icons: Apertures to the Popular (2011).

Transformation Of Religious Feelings Of Vulnerable Populations Under Conditions Of Large-Scale Dangers In The Chernivtsi Region, Iryna Lazorevych

Occasional Papers on Religion in Eastern Europe

Solving the challenges facing humanity requires the combined efforts of all humanity using a comprehensive approach. This also applies to the problem of HIV. In particular, in the context of the war in Ukraine, the crisis of marginalized groups deepened and people with HIV began to face more challenges than usual (because their treatment, which requires constant supervision and medication, is at risk). This article analyzes a survey conducted at the beginning of the invasion about the level of religiosity and trust in the church among HIV-positive people in wartime conditions. The issue of the problems of marginalized groups and …

Scholars And Sense

DePaul Magazine

Four DePaul alumni who were the recipients of McNair scholarships have gone on to careers of servies. Pedro Serrano is a public health researcher who most recently has been working on how COVID-19 is affecting people's emotional, physical and mental health. Pascale Ife Williams, a human ecologist, engages is culture and arts initiatives that lift up communities oppressed by institutional inequity. Peter Dziedzic explores interfaith dialogue and religious pluralism as a PhD candidate at Harvard University. Robert Vargas, a tenured sociology professor at the University of Chicago, is using geographic information system mapping software to help governments anticipate and reduce …

Positive Women: Emotion, Memory, And The Power Of Narrative In Women Organized To Respond To Life-Threatening Diseases, 1991-2020, Eleanor Naiman

Swarthmore Undergraduate History Journal

Note: In lieu of an abstract, this is the article's first paragraph.

"By 1992, the AIDS epidemic in the United States had reached seemingly catastrophic proportions. Over ten years after the first published report of AIDS-related lung infection, the number of AIDS cases in the United States far exceeded 100,000. It would be four years until the FDA approval of the first protease inhibitor. Over ten thousand women had been diagnosed with the disease, and experts expected over ninety thousand more were already infected. The disease, lacking effective treatment, increasingly struck women and people of color in the early 1990s; …

Theatrical Illness: Tuberculosis And Hiv As Presented By "La Boheme" And "Rent", Jessica Downing

Swarthmore Undergraduate History Journal

Note: In lieu of an abstract, this is the article's first paragraph.

"The musical Rent made its Broadway debut on January 25, 1996, a century after the opening performance of the opera, La Boheme. This correlation was a coincidence, though Rent draws significantly on the story of La Boheme, to the extent that a New York Times reviewer deemed it a "contemporary answer to Puccini's 'Boheme."' Each of these productions presents the troubles and tragedies of the bohemian lifestyle in a specific time and place-La Boheme in Paris during the 1830s and Rent in New York City during 1989. Disease, …

Too Much And Too Graphic: Dr. Ruth Westheimer And The Struggle For 1980s And 1990s Feminism, Louisa Marshall

Voces Novae

During the second wave of feminism, spanning from the mid 1960s to the mid 1970s, the United States saw unprecedented levels of change regarding the status of women. However, the conservative administrations of Reagan and H.W. Bush that followed turned the tides against the feminist movement and towards re-establishing traditional gender roles. Trail blazing women, including sex therapist Dr. Ruth Westheimer, dedicated their 20th century careers to combating traditional sentiment, thus changing gender roles forever.

Impact Of The Affordable Care Act On Referral To Care For People Living With Hiv In Appalachia, Cameron A. Wade, Timothy N. Crawford, Nicole Leedy, Alice C. Thornton

Journal of Appalachian Health

Introduction: The Affordable Care Act (ACA) enacted on March 23, 2010 significantly impacted access to healthcare for people living with HIV (PLWH). Expansion of care was accomplished in three areas: eliminating exclusions for pre-existing conditions, elimination of lifetime caps on healthcare expenditures, and expansion of Medicaid eligibility.

Purpose: This study evaluated the impact of state implementation of the ACA Medicaid expansion on referral to HIV care at a Ryan White federally funded clinic in Kentucky (University of Kentucky Bluegrass Care Clinic [UK BCC]).

Methods: Retrospective chart review of all newly enrolled patients at the UK BCC between March 2010 and …

Her Son, His Mom, Hytham Rashid

be Still

This short narrative hopes to provide a perspective on why children and parents struggle to discuss their health, often masking their shame with modesty.

The Anti-Orpheus: Queering Myth In Ducastel Et Martineau’S Théo Et Hugo Dans Le Même Bateau (Paris 05:59), Todd W. Reeser

Studies in 20th & 21st Century Literature

Olivier Ducastel and Jacques Martineau’s 2016 film Théo et Hugo dans le même bateau (Paris 05:59: Théo & Hugo) concludes on an Orphic note, inviting a consideration of the entire film as based on the myth of Orpheus and Eurydice. The film appropriates but also radically transforms elements of the foundational myth—including especially Orpheus’s turn to pederasty in Ovid’s Latin version—crafting a queer love story based on potentiality out of the tragedy of the heterosexual love story. In so doing, the film channels Herbert Marcuse’s idea of Orphic refusal in Eros and Civilization, opening up the myth …

Quiet Heroes, William L. Blizek

Journal of Religion & Film

This is a film review of Quiet Heroes (2018), directed by Jenny Mackenzie, Jared Ruga, and Amanda Stoddard.

Grounded In Mercy: Embracing A Practical Theological Response To The Reality Of Hiv/Aids Sero‐Discordancy, Simonmary Asese Aihiokhai

Journal of the Black Catholic Theological Symposium

The crises of HIV/AIDS infections and deaths in sub-Saharan Africa call for pragmatic solutions that are grounded in a broader vision of God’s mercy. While the church has and continues to be the major non-governmental provider of assistance to those communities and persons battling with HIV/AIDS infections, a critical and holistic review of its stance on rejecting any usefulness of condoms as prophylactics for preventing HIV infections. This approach is most urgent today as Africans continue to experience high rates of HIV infection among monogamous married couples who are sero-discordant.

“I Don’T Fit In A Box; No One Does:” Intersectionality And Gay Male Identity, Jesse L. Grainger, Brent E. Cagle

The Winthrop McNair Research Bulletin

Using an intersectionality framework, this qualitative study explores how stigma affects identity development and how intersecting identities can compound to either foster resiliency or create health concerns for 11 men who are emerging adults (18-29), same sex identified, African American, HIV +, and homeless. Semi-structured one-on-one interviews were conducted through RAIN (Regional Aids Interfaith Network) in Charlotte, NC. Questions were formulated to understand how participants view themselves and perceived stigmas, current/past health conditions, and their five to ten year prospects. This study uses grounded theory as a guide to analyze and interpret data. Themes explored include: risks (acquiring HIV through …

Use Of Craigslist.Org To Hook Up: Age Differences In Sex Requests, Hiv Disclosure And Negotiated Safety Among Men-Seeking-Men, Kristen Clements-Nolle, Aliya Buttar, Lindsey Dermid-Gray, Tyler Peterson, Andrea Esp

Nevada Journal of Public Health

Data from 984 “men-seeking-men” Craigslist.org postings in five cities were analyzed to assess differences in sexual requests, HIV status disclosure, and negotiated safety between young (18-24 years) and older (25 years and older) men who have sex with men (MSM). Young MSM were less likely than older MSM to post their HIV status or the preferred status of a partner (p=0.04), disclose and/or request a partner who was disease and drug free (p=.01), and request use of a condom in their posting (p=0.01). Interventions aimed at changing the culture and content of postings on Craigslist.org by encouraging HIV status disclosure …

“Work What You Got”: Political Participation And Hiv-Positive Black Women’S Work To Restore Themselves And Their Communities, Monica L. Melton

Journal of Interdisciplinary Feminist Thought

Black women’s rates of HIV/AIDS infection have skyrocketed in comparison to other racial and ethnic groups over the past thirty years. Despite these rates, HIV-positive Black women’s perspectives are rarely sought regarding best practices to eradicate and interrupt HIV/AIDS among African American women, even though historically Black women have often proved phenomenal agents of social change. HIV-positive Black women’s activism has been understudied and input from the community in crisis has rarely been deemed as valuable to public health officials in HIV/AIDS prevention and interventions. Through the narratives of thirty HIV-positive Floridian Black women, I present HIV-positive Black women’s political …

A Feminist Struggle? South African Hiv Activism As Feminist Politics, Katarina Jungar, Elina Oinas

Journal of International Women's Studies

This paper is a feminist reading of HIV activism in South Africa, of a social movement that does not describe itself as a women’s movement: it advocates both women’s and men’s, trans, hetero- and homosexual peoples’ rights for adequate health care and antiretroviral medication. Like many others, Chandra Talpade Mohanty suggests that today’s powerful feminism is found in anti-globalization movements that do not necessarily call themselves feminist. These critiques maintain that the theory, critique and activism of grass-root women across the globe, for example around anti-globalization, should also inform academic feminist discussions. This article studies discourses on HIV in Africa …

Antecedent And Sequalae Issues Of Nepalese Women Trafficked Into Prostitution, Chandra Kant Jha, Jeanne Madison

Journal of International Women's Studies

Using a qualitative descriptive methodology, this study explored the experiences of Nepalese women trafficked into prostitution in India. The study found that poverty and lack of awareness about being at risk for trafficking are the major precursors for their trafficking experience. Abduction, fake marriages and the seduction of a better job were the major approaches adopted by pimps to traffic the women. The study also showed that after returning from the Indian brothel(s), they were rejected by their family and community. Such rejections occurred as family and community perceived these young women as at high risk for HIV infection. Strategies …

The Disabling Nature Of The Hiv / Aids Discourse Among Hbcu Students: How Postcolonial Racial Identities And Gender Expectations Influence Hiv Prevention Attitudes And Sexual Risk-Taking, Bruce H. Wade

Wagadu: A Journal of Transnational Women's & Gender Studies

This analysis reveals how some African American college students respond to the discourse on HIV / AIDS as a social disability. The methodology includes surveys (n = 217), focus groups and interviews with convenience samples of students attending a consortium of historically black colleges and universities (HBCUs) in the U.S. The findings show that the perceived risk of HIV is high in this community, that nearly half of students use condoms inconsistently even though they are well aware of the risks of unprotected sex and their levels of HIV / AIDS knowledge are high. Social stigma, gender role expectations, an …

Editor's Note, Padraig O'Malley

New England Journal of Public Policy

On occasion, the New England Journal of Public Policy will devote an entire issue to consideration of a public policy matter of major importance. The AIDS epidemic is such a matter, with a likely impact of overwhelming consequence well into the twenty-first century. The epidemic raises fundamental questions regarding the nature of individual freedom, our responsibilities to others, the always delicate balance between private rights and the public interest, and society's obligation to its "out" groups — whose members it has stigmatized, discriminated against, ridiculed, and treated as less than full and equal citizens. Indeed, it requires us to ask …

The Acquired Immunodeficiency Syndrome In New England: An Epidemiological Review Of The First Six Years, Laureen M. Kunches, Jeanne M. Day

New England Journal of Public Policy

Between 1981 and 1987 — the six-year period following initial recognition of the acquired immunodeficiency syndrome (AIDS) — 1,475 cases were reported among residents of the six New England states. Of nearly 40,000 cases nationwide, 3.8 percent occurred among New England residents, though the region 's population represents 5.5 percent ofthe total United States population. The groups most affected include homosexual or bisexual men (65 percent) and intravenous drug users (20 percent). However, in the two southernmost states — Rhode Island and Connecticut — 32 to 40 percent of all cases have used intravenous drugs. In these states, the male:female …

The Quest For An Aids Vaccine, Robert T. Schooley

New England Journal of Public Policy

More than fifty thousand cases of AIDS have been reported in the United States since the disease wasfirst described in 1981. Many times this number of people are infected with human immunodeficiency virus (HIV), which has been identified as the agent responsible for the illness. The seriousness of the disease, coupled with the relatively rapid spread of HIV, has fueled the effort for development of an effective vaccine.

Much is now known about the life cycle of the virus, and about its structural components. This information, and information about methods of transmission of the virus, form the basis for a …

Understanding The Psychological Impact Of Aids: The Other Epidemic, Marshall Forstein

New England Journal of Public Policy

HIV has created two epidemics, one of disease, the other the consequence of the psychological response to that disease. Thus far, behavioral change is the only effective means of interrupting the transmission of HIV. The underlying psychological dimensions of the societal and individual responses to AIDS are discussed, with suggestions for how both rational thinking and irrational fears and anxiety contribute to the development of public policy. Examples are given of how short-term solutions to reduce anxiety may actually create long-term problems, potentially increasing the risk of transmission of HIV. Specific psychological mechanisms that contribute to the epidemic of fear …

Aids: An Overview, Loretta Mclaughlin

New England Journal of Public Policy

"We stand nakedly in front of a very serious pandemic, as mortal as any pandemic there ever has been," said Halfdan Mahler, director-general of the World Health Organization (WHO). "I don't know of any greater killer than AIDS, not to speak of its psychological, social and economic maiming. Everything is getting worse and worse with AIDS and all of us have been underestimating it, and I in particular. We're running scared. I cannot imagine a worse health problem in this century." When asked to compare AIDS to other epidemics, such as smallpox, that have infected and killed over the course …

Other Journeys, Phillip Dross

New England Journal of Public Policy

Phillip Dross was a writer. He was forty-three years of age when he died of AIDS in January 1987. Four years earlier, he had come to Newburyport, Massachusetts, to live and to face hard realities about himself — the legacy of a painful, confusing childhood in Florida, where he grew up, bouts with alcoholism, and his own shortcomings as a writer, for although he drove his friends to distraction talking about writing, he could not endure long hours alone, especially at the typewriter.

He made progress — the slow, plodding progress that characterizes the struggle within oneself that can be …

Neuropsychiatric Complications Of Hiv Infection: Public Policy Implications, Alexandra Beckett, Theo Manschreck

New England Journal of Public Policy

The human immunodeficiency virus (HIV) infects the central nervous system (CNS), causing symptoms in most persons with AIDS-related complex (ARC) and AIDS, and in a significant proportion of those classified as asymptomatic seropositive. The most common clinical syndrome secondary to CNS infection is known as HIV encephalopathy. When sufficiently disabling, HIV encephalopathy is known as AIDS dementia, and must be reported to the Centers for Disease Control as a case of AIDS.

AIDS dementia is a complex of cognitive, affective, behavioral, and motor symptoms which varies widely in its presentation. In some persons, cognitive impairment predominates, manifesting in a loss …

Aids And A-Bomb Disease: Facing A Special Death, Chris Glaser

New England Journal of Public Policy

In 1979 it was called "gay cancer," and it took the life of an acquaintance. Then "gay-related immune deficiency," or GRID, claimed neighbors, friends of friends, fellow activists. I began grief and death counseling with a segment of the population ordinarily concerned with life's ambitions and enjoyments: men in their twenties and thirties. Hospital visits and memorial services became more frequent.

By 1983, when it had come to be called AIDS, my own friends began to be affected. One was a man I dated in seminary, and I was devastated to learn of his illness only upon receiving a notice …

The Role Of Education In Aids Prevention, George A. Lamb, Linette G. Liebling

New England Journal of Public Policy

The severity of the current AIDS epidemic, combined with the lack of successful biological interventions, necessitates an active educational program as the primary intervention strategy. Health education theories abound, but relatively little definitive application of these theories has been made to the issues involved with HIV transmission: sexual behavior and the sharing of intravenous drug apparatus. Significant behavior changes have occurred in some people, but the consistency of the behavior change may be difficult to sustain. Thus, the authors suggest that health education should be delivered repeatedly in culturally acceptable language and format, by community leaders, and through many different …

Accounts Of An Illness: Extracts, Ron Schreiber

New England Journal of Public Policy

The following pieces, with an introduction by the author, are from a work in progress entitled John, to be published in the fall of 1988 by Hanging Loose Press and Calamus Books, New York City. In this work, Ron Schreiber, John's lover of nine years, writes a chronicle of a terminal illness from diagnosis to death.

Ron Schreiber's poems first appeared in Radical America's "Facing AIDS," a special issue devoted to AIDS.

Politics And Aids: Conversations And Comments, Steven Stark

New England Journal of Public Policy

As AIDS has emerged as a medical and social concern, it has become a political issue as well. In a series of interviews, we asked some leading authorities for their opinions on how AIDS is emerging as a political issue, particularly during the campaign of 1988. In all cases, the comments that follow represent an edited version of their remarks. Those participating were Ronald Bayer, director of the Project on AIDS and the Ethics of Public Health at the Hastings Center; William Schneider, resident fellow at the American Enterprise Institute; Jonathan Handel, a gay activist and a member of the …