Digital Commons Network^™

U.S. Migration Of A Family Member: Impacts On The Activities Of Adolescent Boys And Girls Left Behind In Mexico, Elizabeth T. Powers, Qing Wang

Elizabeth T Powers

We use the Mexican Family Life Study to estimate the effect of a household member’s migration to the U.S. on the time use of family members left behind in Mexico. We show that the effects of migration on adolescents vary with both the migrant’s former household role and with the sex of the left-behind adolescent. Adolescent boys spend less time in paid and agricultural work when males migrate from the household to the U.S., while their mothers correspondingly increase their time in market work and reduce their housework time. We find no significant effects of U.S. migration on adolescent girls’ …

Fact Sheet: Cohort Differences In Parental Care Needs, Maximiliane E. Szinovacz, Linda C. Lieber

Gerontology Institute Publications

There has been considerable concern about the availability of informal and especially family care when the baby boom cohorts reach old age (Ryan and Smith et al., 2012). However, as care needs typically arise in late old age (age 70 or later), a more immediate issue is the care burden faced by the baby boomer cohorts themselves as their parents now reach late old age. To assess the potential care burden faced by baby boom adult children one first needs to assess their parents’ care needs. Such assessment is also essential as research shows that parental care needs do not …

Fact Sheet: Cohort Differences In Parents’ Illness And Nursing Home Use, Maximiliane E. Szinovacz

Gerontology Institute Publications

Surviving parents of the war baby and baby boom cohorts are now reaching very old age. Given their increased longevity and postponement of morbidity into very old age (see Fact Sheets on parental mortality and care needs), it is essential to estimate whether and to what extent these parents will require informal or formal care. Such care is typically most burdensome and costly if it involves long-lasting illness prior to death. Furthermore, Medicare and especially Medicaid expenditures will depend on whether or not these parents require nursing home care. To obtain some estimates of the prevalence of long-lasting illness and …

Stories To Live And Die By: In Memorium, Frankie Condon

Survive & Thrive: A Journal for Medical Humanities and Narrative as Medicine

In this autobiographical essay, the author tells the story of the life she shared with her mother, Suzy, who was diagnosed with Multiple Sclerosis in 1973 and who died May 31, 2013. The writer explores the hidden costs of a healthcare system designed to promote "efficiency" rather than quality of life for people with longterm disabilities and their caregivers. She argues that heroic narratives of caregivers legitimate the withholding of care and support for care by the healthcare system and its institutions.

Changing Landscapes: End-Of-Life Care & Communication At A Zen Hospice, Ellen W. Klein

USF Tampa Graduate Theses and Dissertations

This dissertation examines end-of-life experiences at a small Zen hospice in the Pacific Northwest region of the United States. Through an exploration of how end-of-life communication, sense-making, decision-making, and care in this setting differ from that of typical clinical settings, this project highlights and interrogates the experiences of dying as spiritually, rhetorically, narratively, relationally, and communally bound events.

Keywords: Zen hospice, end of life, narrative sensemaking, medical-ethical decision making, spirituality, healing rhetoric, communities of practice

Who Cares? Caregiver Well-Being In Europe, Leah Ruppanner, Georgiana Bostean

Sociology Faculty Articles and Research

This paper analyzes a multi-national sample comparing self-reported well-being of those who provide dependent care to that of non-caregivers. We pair individual-level data from the 2004 European Social Survey (ESS) for respondents in 22 nations (n=41,000+) with country-level measures of attitudinal support for co-residential familial caregiving (2007 Eurobarometer), old age and family public transfers (OECD Social Expenditures Database, 2014) and economic development (GDP). Using multi-level modeling, we examine the association between country-level co-residential familial attitudes and public spending and individual-level caregiver well-being, comparing effects by gender. We find that: (1) caregiving is differentially associated with well-being for men and women; …

A Comparison Of Contemporary Filial Piety In Rural And Non-Rural China And Taiwan, Li Ping Su

Theses and Dissertations

There is evidence that industrialization and urbanization has led to an increase of immigration to urban areas for employment and has led to a change of family structure and connection between parents and adult children in Chinese societies. However, little research has compared different Chinese societies, as well as rural and non-rural regions. This study compared the adult children’s current level of filial piety, between non-rural and rural regions, and between males and females using data from an international study of countries in East Asia. Overall, China reported higher level of filial piety as compared to Taiwan. Moreover, for the …

"They're Our Bosses": Representations Of Clients, Guardians, And Providers In Caregivers' Narratives, Dina Vdovichenko

USF Tampa Graduate Theses and Dissertations

The purpose of this study is to examine how various characters are portrayed within the self-narratives of women who are employed to care for adults with disabilities. This research looks at how these women's personal narratives construct characters-their clients (the individuals they provide services for), clients' guardians, and how these women portray themselves as caregivers. Interviews were conducted with eight women who provide paid care services to physically and/or cognitively impaired adults who receive services through the Florida Developmental Disabilities Home and Community Based Services Waiver Program. This program endorses specific expectations about the nature and purpose of caregiving. According …

The Experience Of Having Primary Caregiving Responsibilities For An Adult Sibling With Down Syndrome, Patricia Sciscione

Seton Hall University Dissertations and Theses (ETDs)

Abstract

Background: The current generation of adults with Down syndrome is living longer and is likely to outlive their parents. Siblings have been identified as the likely future caregivers for adults with Down syndrome, yet little is known about what the experience is like for those who are currently caring for their siblings. It is necessary to gain an understanding of what the service needs are for this population in order to assist sibling caregivers.

Objectives: To explore and describe the experience of being an adult who is partially or fully involved with primary caregiving responsibilities for a sibling with …

Research Brief: "Caregiving Experiences And Health Conditions Of Women Veteran And Non-Veteran Caregivers", Institute For Veterans And Military Families At Syracuse University

Institute for Veterans and Military Families

This brief is a summary of women veteran caregivers experiencing health concerns, including sleeplessness, poor mental health, and some chronic conditions.

An Exploration Of The Experiences Of Individuals Caring For A Family Member And The Impact This Caregiving Role Has On Their Lives., Tara Duigenan

Dissertations

Ireland, in keeping with most western societies has witnessed a steady increase in the distribution of old and very old individuals in the population. This, combined with escalations in degenerative and chronic diseases, and together with the development of new sophisticated and portable medical technologies that assist people with highly complicated health conditions to be cared for at home, places further demands on individuals to care for a family member. Furthermore, a fundamental objective of Irish Government policy for older people, children and adults with a condition or a disability is to enable these individuals to live in dignity and …

The Highs And Lows Of Caregiving For Chronically Ill Lesbian, Gay, And Bisexual Elders, Anna M. Muraco, Karen I. Fredriksen-Goldsen

Sociology Faculty Works

This study examines informal caregivers’ and LGB care recipients’ “best” and “worst” experiences of care within their relationship. Communal relationship theory guides the research. The work uses qualitative interview data from a sample of 36 care pairs (n=72), divided between committed partners and friends, to understand the similarities and differences in the care norms employed in varied relationship contexts. Findings from the study show that relationship context influences the experiences that caregivers and care recipients identify as “best” and “worst,” but often focus on the relationship and needs met at bests, and conflict and fear of worsening health as worsts.