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The Hidden Struggle: Challenges Older Women Face In Nevada, Annie Vong

Student Research

In 2020, almost one in five Nevadans was over the age of 65.[1] However, within this age group, women outnumber men due to longer life expectancies[2] and migration patterns. Women over 65 years of age make up an estimated 18.1% of the female population in Nevada.[3] Of the male population in Nevada, 15.1% are over 65 years of age.[4] Older women are less likely to be married, are less likely to have completed a bachelor’s degree, are more likely to drop out of the labor force, and are more likely to be living in poverty in …

Using The Motivated Information Management Theory And The Social Support Theory To Understand Caregiver Perspectives Of Currently Available Health Communication Regarding Dementia: A Qualitative Study, Sara J. Alig

Doctoral Dissertations and Projects

Dementia brings a cascade of changes into the life of not only the person facing it, but also the lives of the supporting family and caregivers. Dementia manifests with a gradual decline, or in some cases, a variably progressive decline in cognitive abilities. This decline requires the individual to rely more and more on caregivers. Caregiving necessitates the giving of oneself for another’s sake and oftentimes results in negative physical and social-emotional side effects. To navigate through the changes that are happening to their loved ones, as well as to themselves, caregivers need educational and social support. The purpose of …

Paying Caregivers More Could Boost Nebraska’S Economy − New Research, Susan Reay, Ernest Goss

Social Work Faculty Publications

Paid caregivers foster independence and improve quality of life for people with all kinds of disabilities, many of whom need help getting dressed, preparing meals, showering and dealing with other activities of daily living.

Therapeutic Use Of Music For Geriatric Dementia Patients, Katelynn E. Roscioli

Honors Program Projects

Dementia impacts millions of individuals and their families worldwide, yet many caregivers remain untrained, unpaid, and unable to maintain their own health while caring for their patients. Despite the need for support, limited resources exist to aid these caregivers in combatting this progressive, debilitating disease. One possibility lies in practices rooted in music therapy, which have been shown to restore memory retention, personhood, and quality of life in dementia patients. However, individuals outside of music therapists, especially those with limited musical backgrounds, may not consider implementing music therapy within their care plan. To make this approach more accessible, a website …

Towards Effective Communication: An Exploration Of Evidence-Based Strategies For Informal Care Partners Engaged In Difficult Conversations With Individuals With Parkinson's Disease, Emily Brinovec

Electronic Thesis and Dissertation Repository

Communication deficits are common in Parkinson’s disease and can compromise the ability for informal care partners to communicate effectively with their partner. This may result in the avoidance of critically important conversations, thus placing strain on the relationship, and can harm the well-being of both parties. The aim of this thesis is to explore evidence-informed communication strategies that can be utilized to assist care partners of individuals with Parkinson’s Disease (IWPD) in conducting difficult conversations. Utilizing a scoping review methodology, seven themes emerged from peer-reviewed literature on communication: selecting an appropriate physical environment; conversation preparation; verbal communication skills; non-verbal communication …

Ctrl+Alt+Age: Exploring Everyday Technologies In Caregiving For Older Adults Aging-In-Place, Maurita Adam

Capstone Research Posters

This qualitative research investigates the utilization and efficacy of everyday technologies among caregivers aiding older adults aging in place. Through surveys of 21 caregivers and in-depth interviews with three, the study unveils that the integration of technology in caregiving remains nascent, hindered by users' lack of confidence and understanding in its application. Predominantly women, caregivers primarily assist their mothers, indicative of familial caregiving dynamics. The findings shed light on the underexplored landscape of technology adoption in eldercare, underscoring its untapped potential. By elucidating caregivers' technology usage patterns, this research offers crucial insights for service providers and caregivers alike. Recognizing the …

Caregivers' Attachment Relationships With Infants And Toddlers During The Covid-19 Pandemic, Rebecca Ellen Roth

Walden Dissertations and Doctoral Studies

Health and safety protocols related to the COVID-19 pandemic and its variants continue to influence practices in infant–toddler programs one western state in the United States; caregivers in the state are concerned about attachment relationships with infants and toddlers. The purpose of this basic qualitative study was to explore caregiver perceptions of attachment relationships related to the COVID-19 pandemic and its variants and the influence of health and safety protocols on caregiver practices. The conceptual framework combined attachment and biobehavioral theories. Data from interviews with four infant and six toddler caregivers were recorded, transcribed, and analyzed by searching for patterns …

Pain Limits Family Caregivers’ Daily Activities, Shelbie G. Turner, Karl A. Pillemer, Jamie Robinson, M. Cary Reid

Population Health Research Brief Series

Family caregivers are the main providers of home care to older adults, especially as the prevalence of Alzheimer’s disease and related dementia rises. Caregiving can take a toll on caregivers’ physical and mental health, which impacts both their own well-being and their care recipients’ health outcomes. This brief summarizes findings from a study that used data from the 2017 National Study on Caregiving (NSOC) to estimate the prevalence of arthritis and activity-limiting pain among 1,930 family caregivers to older adults. Over half of all caregivers reported bothersome pain in the previous month, 24% of whom had pain that limited their …

Zooming In On A Snapshot Of Care: Adapting The Index Of Care For Historical And Modern Individuals In The Terry Collection, Felicia Robyn Sparozic

Graduate Student Theses, Dissertations, & Professional Papers

This dissertation adapts the Index of Care (IOC), traditionally focused on prehistoric contexts, to historical (1840-1950) and modern (post-1950) individuals from the Smithsonian’s Terry Collection, to account for those individuals with extensive records. By introducing sister methodologies for both historical and modern contexts, this research bridges the methodological gap in care analysis, enhancing the original IOC with contextual environmental variables and, for modern individuals, DNA analysis.

The study utilizes a selected cohort from the Terry Collection, emphasizing the investigation of caregiving practices across different sexes and ancestral backgrounds. Contrary to initial hypotheses predicting sex-based differences in care provision, findings show …

Addressing Home Health Caregiver Burden: Screening Tool Development For Enhancing Caregiver Health & Well-Being, Morgan Fontenot

Entry-Level Occupational Therapy Doctorate - Doctoral Capstone Symposium

No abstract provided.

Addressing Burden In Caregivers Of Older Adults With Cancer, Lora Rhodes, Lcsw, Kristine Swartz, Md, Caroline Glavin, Lsw, Charlotte Zuber, Kuang-Yi Wen, Phd

Department of Medical Oncology Posters

Background

Forty-two million adults in the United States are providing unpaid care for a family member or friend over the age of 50. For approximately 2.5 million of these caregivers, cancer is the primary illness or disability of their care recipient (National Alliance for Caregiving and AARP, 2020). As baby boomers continue to age, and the number of cancer survivors continues to increase, the need for informal caregivers will expand exponentially.

While Comprehensive Geriatric Assessment (CGA) is recommended for older patients with cancer and distress screening is recommended for all cancer patients, there are currently no recommendations regarding screening for …

Reimagining A Caregiver-Friendly Society, Jodi L. Southerland

Journal of Appalachian Health

Demographic aging is accelerating in the Appalachian Region, resulting in a growing proportion of caregivers living in areas that lack services to support their needs. Strategies are urgently needed in Appalachia to address deficiencies in the region’s long-term supports and services for older adults and their caregivers. Strengthening equitable access to care and community supports for family caregivers is a policy priority for state and community leaders in Appalachia.

The Impacts Of Caregiving And Social Support On Stress For Multiple Sclerosis: A Study On Informal Caregivers, Jacqueline Mercado

Theses and Dissertations

The purpose of the present quantitative study was to gain an increased understanding of the impacts of caregiving and social support on stress for unpaid informal caregivers of persons with Multiple Sclerosis. Caregiving for MS can be rewarding yet stressful. Informal caregivers are the primary source of ongoing home care for family members or friends with MS. Due to the complexity of care, caregivers are especially vulnerable to higher strain as they often feel unprepared for this role. This study examined perceived social support and demographic variables on caregivers' stress to gain insight into mediating caregiver psychosocial challenges. …

Geriatric Interest Plan For Individuals With Dementia: Improved Quality Of Life, Alexis T. Francois

Department of Occupational Therapy Entry-Level Capstone Projects

The purpose of this Capstone experience was to identify the specific needs to improve the quality of life for individuals with Dementia and Alzheimer’s. According to the Alzheimer’s Association (2022a), 1 in 9 people aged 65 and older have dementia. It is imperative for people living with this disease to be actively involved in meaningful activities that can reduce their negative symptoms. People with dementia constitute 40% of patients with significant depression (Alzheimer’s Association, 2022a). The common risk factors that increase the likelihood of depression in these adults include social isolation and loneliness, lack of exercise, and functional limitations that …

"I Stayed There The Whole Night": Exploring Caregivers' Experiences With The Healthcare System When Caring For A Parent At The End Of Life, Lillian Mehran

Dissertations and Theses

Background: In the United States, there are nearly 53 million individuals serving as caregivers to a loved one. Half of all caregivers are caring for a parent or parent-in-law, and 79% of caregivers are caring for a person aged 50 or older. In New York State, there are an estimated 4.1 million caregivers who collectively provide over 2.6 billion hours of unpaid care, with those caring for a person at the end of life providing twice as many hours of caregiving per week compared to other caregivers. The number of individuals requiring caregiving is expected to increase as a significant …

Circumventing Ableism: A Grounded Theory Study Exploring Caregiver Strategies To Promote A Positive Identity, June Furr

All Dissertations

This qualitative research study explores how caregivers and persons with disabilities navigate the rhetoric of disability and caregiving through the interviews of fifteen caregivers and fifteen persons with disabilities using the lens of grounded theory and Burke’s (1952) dramatistic pentad. Significant findings describe how focused disability description can circumvent ableism when rhetorical resources that assist caregivers and persons with disabilities to navigate the rhetoric in disability descriptions are provided. Disability description theory includes the three stages that define, collaborate and revise, and practice and apply a disability description. This qualitative research offers an introduction into the phenomenon of …

Addressing The Needs Of Parkinson’S Disease Care Partners, Jenna Wall

Occupational Therapy Capstone Presentations

Parkinson’s Disease (PD) is a neurodegenerative disease that can affect all aspects of life, requiring individuals with this condition to require support from a care partner. The extensive support PD care partners provide impacts their health and well-being resulting in an increased prevalence of negative health outcomes. Furthermore, these care partners do not receive adequate support which only compiles the effect of caregiving. The main goals of this capstone project were the development and implementation of a 4-week PD care partner support protocol, the creation of an electronic resource, and improving community awareness about PD and PD care partner needs. …

Quality Of Life Among Caregivers Of Individuals With 22q11.2 Deletion Syndrome And Intellectual Disability, Sandra Garza Ochoa

Theses and Dissertations

Caregiving for a person with 22q11.2 chromosome deletion syndrome (22q) often entails dealing with medically life-threatening complications and is significantly compounded when the care recipient has comorbid 22q and intellectual disability (ID). The purpose of this study was to examine the effect of support, spirituality, and resiliency on the quality of life (QOL) of caregivers of individuals with comorbid 22q/ID to ascertain if these protective factors would reduce their caregiving burden. Study participants consisted of 469 caregivers of persons with 22q/ID who were recruited through 22q social advocacy groups. Correlational analyses, analyses of variance, and multiple regression analysis were used …

Women Caregivers Of Palliative Care Patients: The Arogyakeralam Project In Kerala, India, Florence Jose

Journal of International Women's Studies

Palliative care is primarily holistic care given to the patient and their family where the caregiver plays a significant role in the patient’s health and wellbeing. This research studies the perception of the caregivers on the functioning of the Arogyakeralam palliative care project in Kerala, India, in order to understand the challenges faced by women caregivers of this type of patient. In this descriptive and analytical study, the researcher used the multi-stage random sampling methodology. A structured interview schedule was used to obtain data from 54 primary caregivers of palliative care patients who were randomly and proportionately selected from two …

A Program To Improve The Quality Of Life Of Caregivers Of Older Adults With Chronic Conditions: A Pilot Study, Lori Reynolds, Brandi Buchanan, Shannon Crabtree, Elton Bordanave

The Open Journal of Occupational Therapy

Background: Among the nearly 41.8 million family caregivers of older adults 50 years of age and older in the United States, only 30% of caregivers report receiving the education, resources, and support they need to feel competent in their role. Many existing programs focus on dementia-related caregiving, and programs are needed to address the caregiving needs of individuals with chronic conditions.

Method: A pilot study using a mixed methods design was conducted with eight participants. The pre and post. measure, Adult Carer Quality of Life (AC-QoL), and post program individual interviews were conducted.

Results: Six of the …

Mixed-Method Study Of The Experiences And Routines Of Caregivers Of Children With Type 1 Diabetes, Evelina Wozniak, Lisa Cover, Yongyue Qi, Vanessa D. Jewell

The Open Journal of Occupational Therapy

Background: Type 1 diabetes is one of the most prevalent chronic childhood conditions that affects family roles, routines, and the ability to participate in meaningful occupations after a child’s diagnosis. Because of the complex health management routines required to ensure the safety and well-being of a child with type 1 diabetes, caregivers may experience decreased overall health and well-being.

Method: This sequential mixed-method study used a cross-sectional survey (n = 37) and phenomenological interviews (n = 6) to explore burden (the Burden Scale for Family Caregivers), quality of life (the WHO Quality of Life-BREF), and role engagement (a …

Methods And Mediation: Observations Of A Mid-Career Teacher/Scholar Who Decided To Shake Things Up, Heather Norton

S. Annette Moran Faculty Research Forum, 2016-present

No abstract provided.

Locus Of Control, Mindfulness, And Perceived Caregiver Burden In Informal Caregivers Of People With Dementia, Tiffany Marinos-Sterge

Walden Dissertations and Doctoral Studies

AbstractAdult informal caregivers play an essential role in the care of people with dementia living in the community. Adult informal caregivers may experience a host of negative psychological, emotional, and physical effects because of their roles as caregivers. The purpose of this quantitative correlational study was to investigate the influence of locus of control and mindfulness on the perceived caregiver burden experienced by adult informal caregivers of people with dementia, controlling for relevant sociodemographic characteristics. Social determination theory and social learning theory provided the theoretical foundation for this study. Variables were measured using the Caregiver Burden Inventory, Mindfulness Attention Awareness …

Locus Of Control, Mindfulness, And Perceived Caregiver Burden In Informal Caregivers Of People With Dementia, Tiffany Marinos-Sterge

Walden Dissertations and Doctoral Studies

AbstractAdult informal caregivers play an essential role in the care of people with dementia living in the community. Adult informal caregivers may experience a host of negative psychological, emotional, and physical effects because of their roles as caregivers. The purpose of this quantitative correlational study was to investigate the influence of locus of control and mindfulness on the perceived caregiver burden experienced by adult informal caregivers of people with dementia, controlling for relevant sociodemographic characteristics. Social determination theory and social learning theory provided the theoretical foundation for this study. Variables were measured using the Caregiver Burden Inventory, Mindfulness Attention Awareness …

Developing A Lay Ministry Of Caregiving Skills To Parents And Families Who Grieve The Death Of A Child At Zion Hill Baptist Church, Cherryville, N.C., Roger Fuller

Doctor of Ministry Projects

This project aims to educate those who minister to people who may experience the difficult misfortune of the grief and loss of a child. The concentration and intent of this work are to cultivate a ministry of caregiving skills for the members at Zion Hill Baptist Church of Cherryville, North Carolina. This caring ministry of the church will serve all who grieve, but the general focus of this project is to offer specialized care in aiding those who grieve the death of a child. This training is of great necessity because most church members, having not experienced losing a child, …

Health Behaviors As Mediators Of Caregiver Physical Health, Michaela Clark

Graduate Theses, Dissertations, and Problem Reports

Informal caregivers provide the bulk of care to older adults in the United States (Ali et al., 2021). Informal caregivers include family, friends, and neighbors, many of whom do not have any formal training for this role. There are costs associated with taking on a caregiving responsibility, such as scheduling appointments, helping with medications, household tasks, and even financial support (Rha et al., 2015). Many of these informal caregivers lack the coping skills necessary to manage the challenges associated with caregiving (Xu et al., 2021). Many also take on this role despite the personal costs on one’s own health, time, …

Addressing Death Distress In Caregivers Of Patients With Malignant Glioma, Kelcie D. Willis

Theses and Dissertations

The field of psychosocial oncology seeks to improve the quality of life of patients and families affected by cancer. This task becomes increasingly important when there are limited, non-curative treatment options, a high probability of recurrence, and rapid functional decline, such as in the case of a malignant glioma (MG). Indeed, the diagnosis of a MG is associated with negative sequalae that often translates to higher caregiver burden. Caregivers—who must manage the functional decline of the patient, changes within the family, and a complicated medical system—often feel overwhelmed, isolated, and ill-equipped to handle these myriad responsibilities. While they also report …

Message Convergence In Information Seeking And Decision Making Among Adult Children Regarding Their Parent's Diagnosis, Collyn Leggett

Master's Theses

Adult children have a unique role in caregiving and decision-making for a parent diagnosed with a life-threatening illness or condition. In this qualitative study, 15 individuals participated in one-on-one interviews to share their experience seeking information for their parent’s life-threatening diagnosis. This study utilized deductive and inductive coding approaches through axial coding, and two coders analyzed the data through a lens of message convergence framework and uncertainty management. The results show participants engage in information seeking from personal connections to the medical field to retrieve additional information from a more familiar, trusted source. The participants managed uncertainty retrospectively by reassessing …

How Has Grandparenthood Changed In Rural China?, Merril D. Silverstein

Population Health Research Brief Series

China’s rapid modernization and development have led to changes across Chinese society, including within the family. China is experiencing declining birth rates, meaning that fewer older adults are becoming grandparents. At the same time, there has been growing demand for grandparents to serve as caregivers for their grandchildren. This data slice examines the changes in grandparenting in rural China and calls for policies that decrease caregiver burnout, stress, and associated poor health outcomes.

Gendered Impact Of Caregiving Responsibilities On Tenure Track Faculty Parents’ Professional Lives, Amy C. Moors, Abigail J. Stewart, Janet E. Malley

Psychology Faculty Articles and Research

Navigating a career while raising a family can be challenging, especially for women in academia. In this study, we examine the ways in which professional life interruptions due to child caregiving (e.g., opportunities not offered, professional travel curtailed) affect pre- and post-tenure faculty members’ career satisfaction and retention. We also examine whether sharing caregiving responsibilities with a partner affected faculty members’ (particularly women’s) career outcomes. In a sample of 753 tenure track faculty parents employed at a large research-intensive university, results showed that as the number of professional life interruptions due to caregiving increased, faculty members experienced less career satisfaction …