Other Psychiatry and Psychology Commons^™

Feasibility And Validity Of Asking Patients To Define Individual Levels Of Meaningful Change On Patient-Reported Outcomes, Salene M.W. Jones, Yuxian Du, Ari Bell-Brown, Kaylin Bolt, Joseph M. Unger

Journal of Patient-Centered Research and Reviews

Purpose: Patient-reported outcomes (PROs) are frequently used in clinical care to monitor treatment response. However, most guidelines on PRO use treat all patients the same. This study tested the feasibility and validity of a method for determining individually meaningful change in PRO measures.

Methods: Participants (n = 398) completed 12 pain and distress questions to define individually meaningful change. This mixed-methods study used both quantitative and qualitative analyses, including descriptive statistics, inferential statistics, and content analysis.

Results: Two-thirds (67%) of the sample reported at least one medical condition, including depression and back pain. Most participants (70%–90%) were able to answer …

Mixed Methods Pilot Study Of Peri-Diagnostic Exercise Behaviour Change Among Women With Suspected Breast Cancer, Amy L. Deckert

Electronic Thesis and Dissertation Repository

Approximately 1 in 9 Canadian women will develop breast cancer in their lifetime (CCS, 2013). Over the past 30 years, population-based screening programs have contributed to decreased mortality rates (CCS, 2013), however the psychosocial sequelae associated with screening for breast cancer cannot be ignored (Holland et al., 2010). Although the majority of women screened will receive a benign diagnosis, the threat of malignancy can induce elevated levels of distress (Andrykowski et al., 2002).

We conducted a mixed methods pilot study to assess the feasibility and acceptability of a 6-week self-managed exercise behaviour change intervention to attenuate distress in women with …

Measuring The Sixth Vital Sign: A Descriptive Analysis Of Distress In Individuals With Head And Neck Cancer And Their Caregivers, Catherine C. Bornbaum

Electronic Thesis and Dissertation Repository

Introduction: Distress has become so problematic in oncology that it has been recognized as the “sixth vital sign” implying that distress monitoring should occur as routinely as the monitoring of one’s temperature or blood pressure. The research reported herein investigated the impact of head and neck cancer on levels of distress, commonly reported problems, and perceptions of quality of life in individuals with head and neck cancer and their caregivers.

Method: Two distinct studies were conducted; the first explored the patient experience of distress and quality of life while the second assessed the caregiver experience of these same constructs. A …