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Full-Text Articles in Family Practice Nursing
Experience Of Parents Caring For A Child With An Acquired Disability, Brad E. Phillips
Experience Of Parents Caring For A Child With An Acquired Disability, Brad E. Phillips
Graduate Theses, Dissertations, and Problem Reports
Background: Parents caring for a child with an acquired disability often report a negative impact on physical, psychological, emotional, and spiritual health associated with caregiver burden related to their child’s complex health needs. This is further complicated by additional challenges related to the loss of a previously healthy child. Traditional patterns of loss follow linear, time-bound stages that have been observed to be unrelated to the experiences of these specific parents and their families. Therefore, the concept transforming loss has been developed to better understand how these parents navigate loss and find meaning in spite of their suffering.
Purpose: The …