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Full-Text Articles in Family Practice Nursing

Policy Brief: Lifespan Respite Care Reauthorization Act, The 2015-2016 Cohort Of New Hampshire Leadership Education In Neurodevelopmental And Related Disabilities (Nh Lend) Program Trainees. May 2016

Policy Brief: Lifespan Respite Care Reauthorization Act, The 2015-2016 Cohort Of New Hampshire Leadership Education In Neurodevelopmental And Related Disabilities (Nh Lend) Program Trainees.

Policy Analysis

The Lifespan Respite Care Act (PL 109-442) provides critical support for families caring for loved ones at home. Family caregivers in the United States provide an estimated $470 billion worth of uncompensated care—a figure that exceeds the total Medicaid budget for 2013 (NAC Task Force, 2016). According to the National Respite Coalition, access to respite care helps protect caregiver health, strengthens families, keeps marriages intact, and prevents the need for expensive institutional long-term care. Reauthorization of the Lifespan Respite Care Act is essential to the well-being of individuals in need of long-term care and their families affected by long-term health …


Accessing Healthcare: The Experience Of Individuals With Asd In Maine Report Summary, Alan Kurtz, Nancy Cronin Mar 2015

Accessing Healthcare: The Experience Of Individuals With Asd In Maine Report Summary, Alan Kurtz, Nancy Cronin

Health and Well-Being

A summary of report findings from the published research report, Accessing Healthcare: The Experience of Individuals with Autism Spectrum Disorders in Maine (2014).


Accessing Healthcare: The Experience Of Individuals With Autism Spectrum Disorders In Maine, Alan Kurtz, Angie Schickle, Margaret Carr, Marnie Bragdon-Morneault, Susan Russell, Debra Rainey, Jill Downs, Nancy Cronin Jun 2014

Accessing Healthcare: The Experience Of Individuals With Autism Spectrum Disorders In Maine, Alan Kurtz, Angie Schickle, Margaret Carr, Marnie Bragdon-Morneault, Susan Russell, Debra Rainey, Jill Downs, Nancy Cronin

Health and Well-Being

Previous research has revealed that children and adults with autism spectrum disorders (ASD) are significantly more likely to have both unmet healthcare needs than those with other disabilities. In addition, they are more likely to have difficulty accessing primary or specialized medical care. Minority status, living in a rural location, and low income can exacerbate these disparities. Other obstacles to effective healthcare for individuals with ASD include the following: (1) severity of symptoms associated with ASD; (2) lack of knowledge or skill by medical practitioners; (3) lack of access to comprehensive healthcare supports or a medical home; and (4) lack …