Open Access. Powered by Scholars. Published by Universities.®
- Keyword
-
- ALS (1)
- Access to health care (1)
- Adolescents (1)
- Amyotrophic lateral sclerosis (1)
- Centrality (1)
-
- Chronic respiratory disease (1)
- Cystic fibrosis (1)
- Disease severity (1)
- Dying (1)
- Experience (1)
- Identity (1)
- Other (1)
- Patient and Family Partnership (and Engagement) (1)
- Perceptions (1)
- Person-Centeredness (1)
- Play (1)
- Pulmonary disease (1)
- Script (1)
- Self image (1)
- Socioeconomic status (1)
- Terminal illness (1)
- Video (1)
- Publication
- Publication Type
Articles 1 - 3 of 3
Full-Text Articles in Medical Humanities
I’M Going To Tell You A Little About Myself: Illness Centrality, Self-Image And Identity In Cystic Fibrosis, Susan Horky Lcsw, Laura Sherman Licsw, Julie K. Polvinen Ba, Medhavi Saxena Md, Michael Rich Md
I’M Going To Tell You A Little About Myself: Illness Centrality, Self-Image And Identity In Cystic Fibrosis, Susan Horky Lcsw, Laura Sherman Licsw, Julie K. Polvinen Ba, Medhavi Saxena Md, Michael Rich Md
Patient Experience Journal
This study assessed the illness centrality of adolescents with CF and the specific ways that CF may affect adolescents’ identities, through the qualitative analysis of video narratives. Adolescents with CF were loaned video cameras and asked to “show us your life outside the hospital” and to “teach your healthcare team about your CF.” Four major themes were identified related to illness centrality: CF is Central, CF is Compartmentalized, CF is Integrated into Self Image, CF is Denied. Integration and compartmentalization often co-existed. Four themes emerged related to the role of CF in self-image and identity: (1) Valence (positive or negative); …
Socioeconomic Status And Its Relationship To Chronic Respiratory Disease, Sonu Sahni, Ankoor Talwar, Sameer Khanijo, Arunabh Talwar
Socioeconomic Status And Its Relationship To Chronic Respiratory Disease, Sonu Sahni, Ankoor Talwar, Sameer Khanijo, Arunabh Talwar
Touro College of Osteopathic Medicine (New York) Publications and Research
Socioeconomic status (SES) is defined as an individual’s social or economic standing, and is a measure of an individual’s or family’s social or economic position or rank in a social group. It is a composite of several measures including income, education, occupation, location of residence or housing. Studies have found a lower SES has been linked to disproportionate access to health care in many diseases. There is emerging data in pulmonary diseases such as COPD, asthma, cystic fibrosis, pulmonary hypertension and other chronic respiratory conditions that allude to a similar observation noted in other chronic diseases. In the setting of …
Three Damn Letters, Katherine Ammon
Three Damn Letters, Katherine Ammon
Honors Program Theses
Amyotrophic lateral sclerosis (ALS) is a terminal disease that destroys a patient's motor neurons. In the play Three Damn Letters, a sarcastic woman must accept her own ALS diagnosis while also balancing her relationships with her father, husband, and son. This seriocomedic play explores themes of family roles, disability, love, and death.