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Full-Text Articles in Communication Sciences and Disorders
Assessment Of Single-Word Production For Children Under Three Years Of Age: Comparison Of Children With And Without Cleft Palate, Nancy J. Scherer, A. Lynn Williams, Carol Stoel-Gammon, Ann Kaiser
Assessment Of Single-Word Production For Children Under Three Years Of Age: Comparison Of Children With And Without Cleft Palate, Nancy J. Scherer, A. Lynn Williams, Carol Stoel-Gammon, Ann Kaiser
A. Lynn Williams
Background. This study reports comparative phonological assessment results for children with cleft lip and/or palate (CLP) to typically developing peers using an evaluation tool for early phonological skills. Methods. Children without clefts (NC = noncleft) and 24 children with CLP, ages of 18–36 months, were evaluated using the Profile of Early Expressive Phonological Skills (PEEPSs) [1]. Children interacted with toy manipulatives to elicit a representative sample of target English consonants and syllable structures that are typically acquired by children between 18 and 27 months of age. Results. Results revealed significant differences between the two groups with regard to measures of …
Transition Of Care For The Young Adult With Cleft Palate: Stuck Between Goodbye To The Pediatric Team And Hello To Adult-Centered Care, Linda Vallino, Brenda Louw
Transition Of Care For The Young Adult With Cleft Palate: Stuck Between Goodbye To The Pediatric Team And Hello To Adult-Centered Care, Linda Vallino, Brenda Louw
Brenda Louw
Participants will be able to:
- Describe the characteristics and needs of young adults with CLP.
- Discuss the model of transition of care for the young adult with CLP.
- Extrapolate strategies that teams could use to improve the care of young adults with CLP.
Young Adults With Cleft Lip And Palate: Are They Receiving Team Services?, Sarah Widy, Andrea Bisceglia, Emily Bradley, Sanjana Kumari Vyda Srinivasa Kumar, Andrea Mcdowell, Amanda Murr, Blake Nowicki, Elisha Reed, Alexandria Staples, Brenda Louw
Young Adults With Cleft Lip And Palate: Are They Receiving Team Services?, Sarah Widy, Andrea Bisceglia, Emily Bradley, Sanjana Kumari Vyda Srinivasa Kumar, Andrea Mcdowell, Amanda Murr, Blake Nowicki, Elisha Reed, Alexandria Staples, Brenda Louw
Brenda Louw
It is widely acknowledged that a team approach is preferred practice and contributes to optimizing the surgical, dental, speech and psychosocial outcomes for individuals with CLP. Young adulthood often marks the transition from child-centered interdisciplinary care to adult-centered care. There is a paucity in literature relating to the transition of care for young adults with CLP. The purpose of this survey research is therefore to explore the CLP team practices regarding young adults with CLP.
Transition Of Care For Young Adults With Cleft Lip And Palate: We’Ve Got Some Growing Up To Do, Brenda Louw, Linda Vallino
Transition Of Care For Young Adults With Cleft Lip And Palate: We’Ve Got Some Growing Up To Do, Brenda Louw, Linda Vallino
Brenda Louw
Participants will be able to:
- Describe the characteristics and needs of young adults with CLP.
- Discuss the model of transition of care for the young adult with CLP.
- Extrapolate strategies that teams could use to improve the care of young adults with CLP.
Full abstract available through The Cleft Palate-Craniofacial Journal.
See, I’Ve Grown: A Service Delivery Model For Young Adults With Cleft/Lip Palate, Brenda Louw, Linda Vallino
See, I’Ve Grown: A Service Delivery Model For Young Adults With Cleft/Lip Palate, Brenda Louw, Linda Vallino
Brenda Louw
We compare the health needs between children and young adults with CL/P. Patient-reported experiences about the impact of a cleft are described. A service delivery model integrating quality of life into the ICF framework is presented. Lastly, transition of care for the young adult with CL/P is highlighted.
Parental Perspective: Toddlers With Clefts Using Touch Screen Technology, Cortney Vineyard, Alexandra Coup, Chelsey Hazelett, Rachel Janes, Brenda Louw
Parental Perspective: Toddlers With Clefts Using Touch Screen Technology, Cortney Vineyard, Alexandra Coup, Chelsey Hazelett, Rachel Janes, Brenda Louw
Brenda Louw
This investigation assessed the parental perspectives of parents of toddlers with cleft lip and palate and their use of touchscreen technology. Findings will highlight parental perspectives on touchscreen technology in early intervention with their toddler.
Island Voices: Experiences Of Living With Cleft Lip And Or Palate., Rachna Gopal, Brenda Louw
Island Voices: Experiences Of Living With Cleft Lip And Or Palate., Rachna Gopal, Brenda Louw
Brenda Louw
To date there is a lack of information on how young adults in Mauritius, a representation of the majority contexts, experience living with CLP. The aim of this study is to give a voice to young Mauritian adults with CLP; in describing their treatment journey and satisfaction with cleft care.
A New Perspective On The Outcomes Of Children With Cleft Lip And Palate: Application Of The Icf-Cy, Brenda Louw
A New Perspective On The Outcomes Of Children With Cleft Lip And Palate: Application Of The Icf-Cy, Brenda Louw
Brenda Louw
Learner Outcomes:
- Acknowledge the application value of the ICF to individuals with CLP.
- Integrate the ICF framework into the assessment of individuals with CLP.
- Formulate intervention goals that go beyond speech production skills to include functional communication outcomes in a variety of life situations.
- Include improvement and changes in communication participation in everyday functioning in assessment and progress reports.
Adults With Cleft Lip And Palate And Hearing Loss, Rachna Gopal, Brenda Louw
Adults With Cleft Lip And Palate And Hearing Loss, Rachna Gopal, Brenda Louw
Brenda Louw
Framework and Research Question:
- The International Classification of Functioning, Disability and Health (ICF) developed by the World Health Organization (WHO 2001) is a framework to address functioning and disability related to a health condition within the context of the individual’s activities and participation in everyday life.
- Therefore, in addition to the audiologic test battery the individual’s perception of hearing status and its impact on communication should be considered.
- The aim of this study is to describe the hearing status of Mauritian adultslivingwith CL/P and their perceptions of the role of hearing in their lives
Academic Preparation In Cleft Palate For Speech-Language Pathologists: Is The Icf-Cy (Who, 2007) Alive And Well?, Mary B. Graham, Jackie Palmer, Brenda Louw
Academic Preparation In Cleft Palate For Speech-Language Pathologists: Is The Icf-Cy (Who, 2007) Alive And Well?, Mary B. Graham, Jackie Palmer, Brenda Louw
Brenda Louw
The purpose of this project is to determine inclusion of the ICF-CY in CLP training curricula for SLPs. Survey research was conducted with course instructors across the nation. Results describe the application of the ICF-CY in CLP courses at the graduate level. Recommendations for including the ICF-CY framework are made.
A Proposed Holistic Model Of Assessment For Children With Cleft Palate Within The Icf-Cy Framework, Rabia Foreman, Jamesa Ewing, Olivia Hawley, Mariana De Cassia Macedo, Naiara Rodrigues Carlota Do Nascimento, Brenda Louw, Luciana Maximino
A Proposed Holistic Model Of Assessment For Children With Cleft Palate Within The Icf-Cy Framework, Rabia Foreman, Jamesa Ewing, Olivia Hawley, Mariana De Cassia Macedo, Naiara Rodrigues Carlota Do Nascimento, Brenda Louw, Luciana Maximino
Brenda Louw
The purpose of this project is to describe a proposed model for the assessment of children with cleft palate within the framework of the ICF-CY (WHO, 2007). Suggestions for clinical application and cleft palate curricula are made, and future research needs are identified.
Cleft Palate, Retrognathia And Congenital Heart Disease In Velo-Cardio-Facial Syndrome: A Phenotype Correlation Study, Marcia Friedman, Nathanial Miletta, Cheryl Roe, Dongliang Wang, Bernice Morrow, Wendy Kates, Anne Higgins, Robert Shprintzen
Cleft Palate, Retrognathia And Congenital Heart Disease In Velo-Cardio-Facial Syndrome: A Phenotype Correlation Study, Marcia Friedman, Nathanial Miletta, Cheryl Roe, Dongliang Wang, Bernice Morrow, Wendy Kates, Anne Higgins, Robert Shprintzen
Robert J. Shprintzen
Objective: Velo-cardio-facial syndrome (VCFS) is caused by a microdeletion of approximately 40 genes from one copy of chromosome 22. Expression of the syndrome is a variable combination of over 190 phenotypic characteristics. As of yet, little is known about how these phenotypes correlate with one another or whether there are predictable patterns of expression. Two of the most common phenotypic categories, congenital heart disease and cleft palate, have been proposed to have a common genetic relationship to the deleted T-box 1 gene (TBX1). The purpose of this study is to determine if congenital heart disease and cleft palate are correlated …
Overt Cleft Palate Phenotype And Tbx1 Genotype Correlations In Velo-Cardio-Facial/Digeorge/22q11.2 Deletion Syndrome Patients, Sean Herman, Tingwei Guo, Donna Mcdonald Mcginn, Anna Blonska, Alan Shanske, Anne Bassett, Eva Chow, Mark Bowser, Molly Sheridan, Frits Beemer, Koen Devriendt, Ann Swillen, Jeroen Breckpot, Maria Digilio, Bruno Marino, Bruno Dallapiccola, Courtney Carpenter, Xin Zheng, Jacob Johnson, Jonathan Chung, Anne Marie Higgins, Nicole Philip, Tony Simon, Karlene Coleman, Damian Heine Suñer, Jordi Rosell, Wendy Kates, Marcella Devoto, Elaine Zackai, Tao Wang, Robert Shprintzen, Beverly Emanuel, Bernice Morrow, International Chromosome 22q11.2 Consortium
Overt Cleft Palate Phenotype And Tbx1 Genotype Correlations In Velo-Cardio-Facial/Digeorge/22q11.2 Deletion Syndrome Patients, Sean Herman, Tingwei Guo, Donna Mcdonald Mcginn, Anna Blonska, Alan Shanske, Anne Bassett, Eva Chow, Mark Bowser, Molly Sheridan, Frits Beemer, Koen Devriendt, Ann Swillen, Jeroen Breckpot, Maria Digilio, Bruno Marino, Bruno Dallapiccola, Courtney Carpenter, Xin Zheng, Jacob Johnson, Jonathan Chung, Anne Marie Higgins, Nicole Philip, Tony Simon, Karlene Coleman, Damian Heine Suñer, Jordi Rosell, Wendy Kates, Marcella Devoto, Elaine Zackai, Tao Wang, Robert Shprintzen, Beverly Emanuel, Bernice Morrow, International Chromosome 22q11.2 Consortium
Robert J. Shprintzen
Velo-cardio-facial syndrome/DiGeorge syndrome, also known as 22q11.2 deletion syndrome (22q11DS) is the most common microdeletion syndrome, with an estimated incidence of 1/2,000 – 1/4,000 live births. Approximately 9–11% of patients with this disorder have an overt cleft palate (CP), but the genetic factors responsible for CP in the 22q11DS subset are unknown. The TBX1 gene, a member of the T-box transcription factor gene family, lies within the 22q11.2 region that is hemizygous in patients with 22q11DS. Inactivation of one allele of Tbx1 in the mouse does not result in CP, but inactivation of both alleles does. Based on these data, …
Mother’S Experiences When Their Infants Were Diagnosed With Cleft Lip And/Or Palates, Brenda Louw, L. Ter Poorten
Mother’S Experiences When Their Infants Were Diagnosed With Cleft Lip And/Or Palates, Brenda Louw, L. Ter Poorten
Brenda Louw