Open Access. Powered by Scholars. Published by Universities.®
Articles 1 - 2 of 2
Full-Text Articles in Medicine and Health Sciences
Caregiving By Teens For Family Members With Huntington Disease, Janet Williams, Lioness Ayres, Janet Specht, K. Sparbel, M. Klimek
Caregiving By Teens For Family Members With Huntington Disease, Janet Williams, Lioness Ayres, Janet Specht, K. Sparbel, M. Klimek
Lioness Ayres
The purpose of this report is to describe caregiving by teens for family members with Huntington disease (HD). Thirty-two teens in HD families in the United States and Canada participated in focus groups from 2002 to 2005 in a study to identify concerns and strategies to manage concerns. An unexpected finding was 24 (77%) described caregiving activities. Descriptive analysis of caregiving statements identified themes of Tasks and Responsibilities, Subjective Burden, Caregiving in Context of Personal Risk for HD, and Decisional Responsibility. Teens took an active part in nearly all aspects of care with the exception of contacting health care providers …
Within-Case And Across-Case Approaches To Qualitative Data Analysis, Lioness Ayres, K. Kavanaugh, K. Knafl
Within-Case And Across-Case Approaches To Qualitative Data Analysis, Lioness Ayres, K. Kavanaugh, K. Knafl
Lioness Ayres
The generalizations developed by qualitative researchers are embedded in the contextual richness of individual experience. Qualitative data management strategies that depend solely on coding and sorting of texts into units of like meaning can strip much of this contextual richness away. To prevent this, some authors have recommended treating individual accounts as whole cases or stories, but whole cases are difficult to compare with one another when the goal of the research is to develop generalizations that represent multiple accounts. In this article, the authors describe the ways in which three different qualitative researchers combined across-case coding and sorting with …