Medicine and Health Sciences Commons^™

Parents' Experiences Of Children With A Rare Disease Attending A Mainstream School: Australia, Mandie Foster, Esther Adama, Diana Arabiat, Kevin Runions, Rena Vithiatharan, Maggie Zgambo, Ashleigh Lin

Research outputs 2022 to 2026

Purpose:

To explore the perceptions of parents who had a child or adolescent (6-18 years) diagnosed with a rare disease who attended a mainstream school in Western Australia.

Design and methods:

A cross-sectional online survey was conducted with 41 parents of children with a rare disease. Here we report the findings of 14 open-ended questions on their experience of illness-related factors and impact on school-related social activities, such as sports, school camps and leadership roles whilst their child with a rare disease attended a mainstream school in Australia. Responses were analysed using an inductive thematic content approach.

Results:

We identified …

Physiotherapists’ Perspectives On The Use Of Telehealth For Service Delivery To Children With Developmental Delays: A Qualitative Focus Group Study, Claire M. Grant, Anne Jones, Helen Land

Internet Journal of Allied Health Sciences and Practice

Purpose: The purposes of the study are to (1) determine what barriers and facilitators physiotherapists perceive to using telehealth, (2) to determine willingness to use and (3) to determine perspectives on training in the use of telehealth. Method: This is a qualitative semi structured interview and focus group design. Participants were recruited from the first stage of the larger research process using purposive sampling. A semi structured guide was used to facilitate discussion of shared experiences and to allow themes to emerge from the discussion. Results: Thematic analysis was used to synthesise frequent and important themes. Ten participants took part …

Functional Conditions Of Three-Dimensional Correction Of Side Curvatures Of The Spine, Andrzej Suchanowski, Andrzej Stolarz

Baltic Journal of Health and Physical Activity

Background: This paper sets out to present theoretical and methodological premises for the therapeutic mode of conduct which utilizes FED and PNF improvement methods complemented by introduction of correctional re-education basing on the biofeedback mechanism. Material/Methods: Authors develop and present an original mode of treatment of children with the SCS, which can be divided into the following stages and targets: 1. Elimination of biomechanical pathologies of the passive stabilizing. 2. Restoration of the structure and function of local muscles and balance among muscles from the first and second reference arrangement and structures around the spine, both on the concave and …

Physical Activity, Academic Performance And Cognition In Children And Adolescents. A Systematic Review, Eero Hapala

Baltic Journal of Health and Physical Activity

A literature review was conducted to investigate the effect of physical exercise and physical training on cognition and academic performance in children and adolescents. Nine randomized or quasi-randomized controlled trials with 2,013 participants were identified by employing the following data sources: the Cochrane Register of Controlled Trials, Medline, Eric, CINAHL, PsychINFO, and ISI Web of Knowledge. Five studies indicated positive effects of physical exercise on attention, concentration, and working memory, and three studies reported positive effects of 14 to 64 week physical training on language and arithmetic skills. Thus, there is some evidence that physical exercise may facilitate cognitive functions …

The Positive Role Of Kinesio Taping In Adjunctive Therapy Of Static Plano-Valgusfeet In Children Between The Ages Of 5 And 7, Agnieszka Straczynska, Jacek Kruczynski, Agnieszka Radziminska, Magdalena Weber-Rajek, Ewelina Lulinska-Kuklik, Aleksander Goch

Baltic Journal of Health and Physical Activity

Kinesio taping (KT) might be of substantial value as far as adjunctive therapy of flat foot correction in children is concerned. The study’s prime aim is to evaluate the role of KT in terms of static plano-valgus foot therapy in children. The study involved 120 children aged 5 to 7. Parameter calculations determining the shape of foot were performed on the electronic podoscope before and after the therapy, and after the subsequent 4 months in order to evaluate the permanence of the therapy result. Statistical analysis revealed that the study period considerably influenced the change of parameters which determine the …

Changes In The Prevalence Of Excessive And Deficient Body Weight Among Pomeranian Youth In The Years 1979, 1989, And 1999, Anna Lysak, Janusz Dobosz, Jozef Drabik

Baltic Journal of Health and Physical Activity

Background: The analysis presented in this paper aimed to identify trends in the prevalence of the two extremes of body fat disorders over a period of 20 years (1979–1999) and to form a comparative basis for further studies of physical development of the youth of the Pomerania region. Material/Methods: The study population consisted of 23,854 boys and girls aged 7 to 18 years attending schools in rural and urban areas in the Pomerania administrative region. An overweight and underweight population was identified based on the body mass index (BMI) according to WHO, CDC and the Mother and Child Institute recommendations. …

Staff Education In Caring For Children With Type 1 Diabetes, Freda Ansah-Larbi

Walden Dissertations and Doctoral Studies

AbstractType1 diabetes affects over 1.6 million people living in the United States of which about 200,000 are children under the age of 20, with an increase of 1.9% per year between 2002–2015. The large number of children with type 1 diabetes was observed in the project’s practice setting. In addition to the physical health impact on children, this disease also has major personal, economic, and social impacts on children and their families. Therefore, effective management is essential in reducing the risk of complications and achieving an overall improvement in the quality of life of patients. The purpose of the project …