Medicine and Health Sciences Commons^™

Formative Research To Design A Culturally-Appropriate Cancer Clinical Trial Education Program To Increase Participation Of African American And Latino Communities, Jennifer Cunningham-Erves, Claudia Barajas, Tilicia Mayo-Gamble, Caree R. Mcafee, Pamela Hull, Maureen Sanderson, Juan Canedo, Katina Beard, Consuelo H. Wilkins

Department of Health Policy and Community Health Faculty Publications

Background: Addressing knowledge deficiencies about cancer clinical trials and biospecimen donation can potentially improve participation among racial and ethnic minorities. This paper describes the formative research process used to design a culturally-appropriate cancer clinical trials education program for African American and Latino communities. We characterized community member feedback and its integration into the program.

Methods: We incorporated three engagement approaches into the formative research process to iteratively develop the program: including community-based organization (CBO) leaders as research team members, conducting focus groups and cognitive interviews with community members as reviewers/consultants, and interacting with two community advisory groups. An …

Exploring The Experience Of Psychological Distress For Young Adults With Cancer: Implications For A New Diagnosis Of Medical Traumatic Stress, Audrey Ryan

Counseling and Psychology Dissertations

The purpose of this qualitative study was to investigate how a serious medical diagnosis, such as cancer, can act as an acute or prolonged trauma. This was explored through the lived experiences of psychological distress of young cancer survivors. Participants were 12 men and women who had been diagnosed with cancer within the past seven years when they were between the ages of 18 and 39. From these interviews several themes emerged that describe the phenomenon of what I have termed medical traumatic stress.

Trauma from a medical event does not currently meet criteria for PTSD in the DSM-5 …

Abstracts From The 26th Annual Health Care Systems Research Network Conference, April 8–10, 2020

Journal of Patient-Centered Research and Reviews

The Health Care Systems Research Network (HCSRN) is made up of community-based care delivery systems with a shared mission to improve health and health care through research. The network’s annual conference serves as a forum for attendees to disseminate study findings, stimulate collaborations, and share insights about conducting research in real-world care settings. Although this year’s live conference was cancelled to help slow the spread of COVID-19, the oral and poster abstracts accepted for presentation at HCSRN 2020 are published in this open access supplement to Volume 7, Issue 1 of the Journal of Patient-Centered Research and Reviews, the …

Hands To Heart: Art Therapy And Voices Of Cancer, Andrea Verano, Reina A. Bicciche

LMU/LLS Theses and Dissertations

As second-year graduate students from LMU’s Art Therapy program, we are excited to introduce the focus of our Master’s research project, a concept we coined as exhibition as intervention. Our goal is to create a space that brings awareness to the possibilities of exhibition to amplify the voice and increase empathy between artist and viewer. Originally, our vision was to hold the exhibition at Cedars-Sinai to supplement the 2020 Art Therapy Research Symposium. With COVID-19 placing restrictions on public gatherings, the exhibition had to transform from a physical experience to a virtual one. The catalog which began as our secondary …

“This Is My Little World…”: Navigating The Group Exercise Experience Of Stay-Fit Members, Olivia Jones

Theses and Dissertations (Comprehensive)

Objective

Cancer is the leading cause of death in Canada, with one in two Canadians expected to develop cancer over their lifetime (Canadian Cancer Society, 2019). Exercise is reportedly a safe therapy to help ease the common side effects of cancer and its treatments (Schmitz et al., 2010). Past research has shown the benefits of group exercise while in treatment for cancer, but there is a dearth of research regarding the impact of long-term group exercise programming for cancer survivors. This phenomenological study explored the lived experiences of group exercise participation for individuals who previously had cancer and were enrolled …