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Development And Feasibility Testing Of An Evidence-Based Occupational Therapy Program For Adults With Both Down Syndrome And Dementia, Sujatha E. Raj, Shylie Mackintosh, Jocelyn Kernot, Caroline Fryer, Mandy Stanley

Research outputs 2022 to 2026

This paper describes the development of a home-based occupational therapy intervention program for people with Down syndrome who experience early on-set dementia causing a decline in their performance skills and increasing care dependency on their informal caregivers. A six-step methodological process adapted from the Medical Research Council framework for developing and evaluating complex interventions was formulated to develop an evidence-based occupational therapy program for people with both Down syndrome and dementia and their informal caregivers. The first two steps gathered evidence through systematic reviews of the literature and determined the scope of current occupational therapy practice. The gathered evidence was …