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Full-Text Articles in Medicine and Health Sciences
Who Cares For The Bereaved? A National Survey Of Family Caregivers Of People With Motor Neurone Disease, Samar M. Aoun, Paul A. Cafarella, Bruce Rumbold, Geoff Thomas, Anne Hogden, Leanne Jiang, Sonia Gregory, David W. Kissane
Who Cares For The Bereaved? A National Survey Of Family Caregivers Of People With Motor Neurone Disease, Samar M. Aoun, Paul A. Cafarella, Bruce Rumbold, Geoff Thomas, Anne Hogden, Leanne Jiang, Sonia Gregory, David W. Kissane
Medical Papers and Journal Articles
Background: Although Motor Neurone Disease (MND) caregivers are most challenged physically and psychologically, there is a paucity of population-based research to investigate the impact of bereavement, unmet needs, range of supports, and their helpfulness as perceived by bereaved MND caregivers.
Methods: An anonymous national population-based cross-sectional postal and online survey of bereavement experiences of family caregivers who lost a relative/friend to MND in 2016, 2017, and 2018. Recruitment was through all MND Associations in Australia.
Results: 393 valid responses were received (31% response rate). Bereaved caregiver deterioration in physical (31%) and mental health (42%) were common. Approximately 40% did not …