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The Availability And Affordability Of Orphan Drugs For Rare Diseases In China, Shiwei Gong, Yingxiao Wang, Xiaoyun Pan, Liang Zhang, Rui Huang, Xin Chen, Juanjuan Hu, Yi Xu, Si Jin
The Availability And Affordability Of Orphan Drugs For Rare Diseases In China, Shiwei Gong, Yingxiao Wang, Xiaoyun Pan, Liang Zhang, Rui Huang, Xin Chen, Juanjuan Hu, Yi Xu, Si Jin
Faculty & Staff Scholarship
Background: Orphan drugs are intended to treat, prevent or diagnose rare diseases. In recent years, China healthcare policy makers and patients have become increasingly concerned about orphan drug issues. However, very few studies have assessed the availability and affordability of orphan drugs for rare diseases in China. The aim of this study was to provide an overview of the availability and affordability of orphan drugs in China and to make suggestions to improve patient access to orphan drugs.
Methods: Two components of the availability of orphan drugs were examined. Market availability was assessed by the extent to which orphan drugs …