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Utah State University

Communicative Disorders and Deaf Education Faculty Publications

2020

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Full-Text Articles in Medicine and Health Sciences

Hearing Care And Management Priority Among Parents Of Children With Down Syndrome: A Grounded Theory, John J. Whicker, Karen F. Muñoz, Nicole J. Pearson, Trenton J. Landon, Lauri H. Nelson, Karl R. White, Michael P. Twohig Jan 2020

Hearing Care And Management Priority Among Parents Of Children With Down Syndrome: A Grounded Theory, John J. Whicker, Karen F. Muñoz, Nicole J. Pearson, Trenton J. Landon, Lauri H. Nelson, Karl R. White, Michael P. Twohig

Communicative Disorders and Deaf Education Faculty Publications

Objective: This study qualitatively explored the factors that influence how parents of children who are Deaf or hard-of-hearing with Down syndrome prioritize hearing care and management and developed an associated theory to explain that priority.

Design: Grounded theory was used for the purposes of this qualitative study. Data were collected using in-depth interviews which were analyzed using a three-tiered qualitative coding process.

Study Sample: Eighteen mothers of children who are Deaf or hard-of-hearing with Down syndrome participated in this study.

Results: The higher the extent of engaged professional support, perception of benefit for child, parent activation, and family engagement, the …