Medicine and Health Sciences Commons^™

Parent Carer Quality Of Life And Night-Time Attendance In Non-Ambulant Youth With Neuromuscular Disorders, Vivienne Travlos, Shane Patman, Jenny Downs, Dana Hince, Andrew C. Wilson

Physiotherapy Papers and Journal Articles

Purpose: To describe and explore carer quality of life (QoL) and night-time attendance to their child in parents of non-ambulant youth with Neuromuscular Disorders.

Methods: A cross-sectional population-based, comprehensive survey including the Adult Carer QoL (ACQoL) questionnaire, measures of social context and youths’ physical status. Associations between carerQoL or frequency of parents’ night-time attendance with independent variables were explored using linear and logistic regression models, respectively.

Results: Parents’ perceived lower carer-QoL (mean 76.5/120, SD 18.5) when they attended to their child twice a night or more (n = 17/35) and with shorter time since their child was prescribed noninvasive ventilation …

Influence Of Age And Maturation Status On Sprint Acceleration Characteristics In Junior Australian Football, Toby Edwards, Jonathon Weakley, Harry G. Banyard, Ashley Cripps, Benjamin Piggott, G. Gregory Haff, Christopher Joyce

Health Sciences Papers and Journal Articles

This study aimed to investigate the influence of chronological age and maturation status on sprint acceleration characteristics in junior Australian football (AF) players. Biological maturity of 109 subjects was assessed and subjects were grouped according to predicted years from peak height velocity (PHV) (pre-, mid-, and post-PHV) and chronological age (13 years, 14 years, and 15 years). A one-way multivariate analysis of variance and magnitude-based decisions were used to determine between-group differences. Instantaneous velocity was measured during two maximal 30m sprints via radar gun with the velocity-time data used to derive the force, velocity, and power characteristics. Chronologically, the greatest …

Sprint Acceleration Force-Velocity-Power Characteristics In Drafted Vs Non-Drafted Junior Australian Football Players: Preliminary Results, Toby Edwards, Benjamin Piggott, Harry G. Banyard, G. Gregory Haff, Christopher Joyce

Health Sciences Papers and Journal Articles

This investigation aimed to compare the maximal sprint acceleration profiles of drafted and non-drafted elite junior Australian football (AF) players. Nineteen players (10 drafted and 9 non-drafted) from an elite junior AF state team participated in this study. Instantaneous velocity was measured via radar gun during maximal 30 m sprints. The velocity-time data were analysed to derive individual force-velocity-power characteristics and sprint times. No significant differences existed between groups, however drafted players reached moderately faster maximum velocity (Hedges’ g = 0.70 [-0.08; 1.48] and theoretical maximum velocity (g = 0.65 [-0.13; 1.42]) than non-drafted players indicating a superior ability to …

Mental Wellbeing In Non-Ambulant Youth With Neuromuscular Disorders: What Makes The Difference?, Vivienne Travlos, Jenny Downs, Andrew Wilson, Dana Hince, Shane Patman

Physiotherapy Papers and Journal Articles

The physical and social challenges associated with neuromuscular disorders may impact mental wellbeing in non-ambulant youth during the more vulnerable period of adolescence. This cross-sectional survey investigated non-ambulant youths’ mental wellbeing and relationships with physical health, participation and social factors. The conceptual model was the International Classification of Functioning, Disability and Health (ICF). Thirty-seven youth aged 13 – 22 years old (mean age 17.4 years; n = 30 male; n = 24 Duchenne Muscular Dystrophy) and their parents provided biopsychosocial data through a comprehensive self-report questionnaire. The primary outcome measure was the Warwick Edinburgh Mental Wellbeing Scale (WEMWBS). Relationships between …

Quality Of Life And Psychosocial Wellbeing In Youth With Neuromuscular Disorders Who Are Wheelchair Users: A Systematic Review, Vivienne Travlos, Shane Patman, Andrew Wilson, Gail Simcock, Jenny Downs

Physiotherapy Papers and Journal Articles

Objective: To investigate quality of life (QoL) and psychosocial wellbeing in youth with Neuromuscular Disorders (NMD) who are wheelchair users.

Data Sources: Medline, Embase, CINAHL and PsycINFO (January 2004 to April 2016) and reference lists of retrieved full-text papers.

Study Selection: Peer-reviewed studies were included when data describing self-reported QoL and psychosocial wellbeing could be separately understood for those using wheelchairs and aged 12-22 years old. 2058 records were independently screened and potentially eligible papers were obtained and examined by all reviewers. Twelve observational and three qualitative studies met the inclusion criteria.

Data Extraction: Population representativeness, measurement tools and outcomes, …

A Fine Balance And A Shared Learning Journey: Exploring Healthcare Engagement Through The Experiences Of Youth With Neuromuscular Disorders, V Travlos, C Bulsara, S Patman, J Downs

Physiotherapy Papers and Journal Articles

BACKGROUND: Youth with Neuromuscular Disorders (NMD) who are wheelchair users can now survive well into adulthood if their multisystem comorbidities are prudently managed. Uptake of health behaviors may optimize their health outcomes.

OBJECTIVE: To explore youths’ perceptions of health, health behaviors and healthcare engagement.

METHODS: This qualitative study purposefully recruited 11 youth with NMD from a concurrent, population-based study for variability of age, gender, type of NMD and their ratings of motivation and engagement. Interview data were analyzed and synthesized by thematic content.

RESULTS: Participants perceived healthcare engagement as being given tools (knowledge and responsibility) and using them to maintain …