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Full-Text Articles in Medicine and Health Sciences
Issues With Variability In Electronic Health Record Data About Race And Ethnicity: Descriptive Analysis Of The National Covid Cohort Collaborative Data Enclave, Lily A. Cook Ma, David A. Dorr, Nicole G. Weiskopf, Nisha Mathews, Kelly L. Gonzales, Adam Wilcox, Charisse Madlock-Brown, N3c Consortium
Issues With Variability In Electronic Health Record Data About Race And Ethnicity: Descriptive Analysis Of The National Covid Cohort Collaborative Data Enclave, Lily A. Cook Ma, David A. Dorr, Nicole G. Weiskopf, Nisha Mathews, Kelly L. Gonzales, Adam Wilcox, Charisse Madlock-Brown, N3c Consortium
OHSU-PSU School of Public Health Faculty Publications and Presentations
Background:The adverse impact of COVID-19 on marginalized and under-resourced communities of color has highlighted the need for accurate, comprehensive race and ethnicity data. However, a significant technical challenge related to integrating race and ethnicity data in large, consolidated databases is the lack of consistency in how data about race and ethnicity are collected and structured by health care organizations.
Objective:This study aims to evaluate and describe variations in how health care systems collect and report information about the race and ethnicity of their patients and to assess how well these data are integrated when aggregated into a large clinical database. …