Medicine and Health Sciences Commons^™

Assent Described: Exploring Perspectives From The Inside, Rebecca D. Poston

Nursing Faculty Publications

Purpose- The purpose of this study was to describe the informed consent and assent experience for oncology research from the perspective of the participants: adolescents, their parents, and their physician providers.

Design & Methods- This descriptive mixed-methods study included the pilot use of the Quality of Informed Consent Questionnaire (QuIC) with an adolescent population and semi-structured interviews with adolescents, their parents, and their physician providers within 48-72 hours of the informed consent and assent discussion for a pediatric oncology clinical trial and again 6-9 weeks later. Results: Adolescents and their parents scored considerably lower on part A of the QuIC …

A Qualitative Review Of The Native American Caregivers Support Program: The Successes, Barriers, And Training Needs, Holly A. Beard, M. Yvonne Jackson, Meg Graves, Floyd Godfrey, Clare Houseman

Nursing Faculty Publications

Caregiving is accepted as a natural part of life and is recognized as an inherent responsibility within the American Indian/Alaskan Native Community. A qualitative analysis was conducted employing constant comparative method to explain the current status of the Native American Caregiver Support Program (NACSP) funded by Title VI-C grants. The NACSP (Title VI-C) of the Older Americans Act (OAA) is administered by the Department of Health and Human Services (DHHS), Administration on Aging (AoA). The NACSP allows each tribal organization to develop a program to deliver supportive services that are tailored to the needs of their caregiver's while providing five …