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Articles 1 - 25 of 25
Full-Text Articles in Medicine and Health Sciences
Exploring The Experience Of Healthcare-Related Epistemic Injustice Among People With Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, Joanne Hunt, Jessica Runacres, Daniel Herron, David Sheffield
Exploring The Experience Of Healthcare-Related Epistemic Injustice Among People With Myalgic Encephalomyelitis / Chronic Fatigue Syndrome, Joanne Hunt, Jessica Runacres, Daniel Herron, David Sheffield
The Qualitative Report
Myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a chronic, disabling yet clinically “contested” condition, previously theorised through a lens of epistemic injustice. Phenomena conceptually close to epistemic injustice, including stigma, are known to have deleterious consequences on a person’s health and life-world. Yet, no known primary studies have explored how people with ME/CFS experience healthcare through a lens of epistemic injustice, whilst a dearth of research explicitly exploring healthcare-related injustice from a patient perspective has been noted. This qualitative study seeks to address this gap. Semi-structured interviews and interpretative phenomenological analysis (IPA) were used to explore the experiences of …
How Can Generative Ai (Genai) Enhance Or Hinder Qualitative Studies? A Critical Appraisal From South Asia, Nepal, Niroj Dahal
How Can Generative Ai (Genai) Enhance Or Hinder Qualitative Studies? A Critical Appraisal From South Asia, Nepal, Niroj Dahal
The Qualitative Report
Qualitative researchers can benefit from using generative artificial intelligence (GenAI), such as different versions of ChatGPT—GPT-3.5 or GPT-4, Google Bard—now renamed as a Gemini, and Bing Chat—now renamed as a Copilot, in their studies. The scientific community has used artificial intelligence (AI) tools in various ways. However, using GenAI has generated concerns regarding potential research unreliability, bias, and unethical outcomes in GenAI-generated research results. Considering these concerns, the purpose of this commentary is to review the current use of GenAI in qualitative research, including its strengths, limitations, and ethical dilemmas from the perspective of critical appraisal from South Asia, Nepal. …
“You Take My Place; Let’S Switch!” What It Means To Be A Woman Powerlifter In Parasport, Aaron Carl S. Seechung, Maria Luisa M. Guinto
“You Take My Place; Let’S Switch!” What It Means To Be A Woman Powerlifter In Parasport, Aaron Carl S. Seechung, Maria Luisa M. Guinto
The Qualitative Report
Gendered disability in elite sport has emerged as a pertinent area of inquiry in sport psychology. However, qualitative research aimed at amplifying the voices of marginalized subgroups is notably sparse. Employing a phenomenological approach, we examined the lived experience of a Filipina para powerlifter, probing the intersection of gender, disability, and socioeconomic status in shaping how the participant made sense of life and identity, both within and outside the realm of sport. Three personal experiential themes were generated from the interview data's interpretative phenomenological analysis: “survival of the fittest,” “the voices in my head did not allow me to give …
Craftivism As Inquiry: Holding Life’S Threads, Chloe Watfern, Gaynor Macdonald, Michele Elliot, Lynne Stone, Imelda Gilmore, Manuel Tecson, Najla Turk, Penny Bingham, Jane Mears, Ann Dadich, Barbara Doran, Katherine Boydell, Sarah Wallace
Craftivism As Inquiry: Holding Life’S Threads, Chloe Watfern, Gaynor Macdonald, Michele Elliot, Lynne Stone, Imelda Gilmore, Manuel Tecson, Najla Turk, Penny Bingham, Jane Mears, Ann Dadich, Barbara Doran, Katherine Boydell, Sarah Wallace
The Qualitative Report
In this article, we share insights regarding an arts-based research project where carers of people with dementia conveyed their experiences in cloth. Carers face high rates of mental ill health and burnout, while forming a largely undervalued and unrecognised workforce. Through this project, carers’ knowledge was valued and amplified using an innovative methodology – craftivism. During a series of five workshops in 2021, a small group of carers, researchers and artists gathered online to develop an exhibition of craftivist textile works. They evoked the complexity of their makers’ journeys supporting loved ones at the end of life, finding joy and …
Poetic Representations Of Covid-19 Narratives: An Exploration Of Emotional Experiences During The Pandemic, Isha Harshe, Lindy Davidson
Poetic Representations Of Covid-19 Narratives: An Exploration Of Emotional Experiences During The Pandemic, Isha Harshe, Lindy Davidson
The Qualitative Report
In pivotal moments of history like the COVID-19 pandemic, it is critical to attend to and preserve the stories of different people experiencing the same phenomenon in their own ways. This project analyzed the public’s emotional experiences during the pandemic using methods of narrative and poetic inquiry. After reading 105 entries from the Pandemic Journaling Project, an online platform where people anonymously published journal entries reflecting on their pandemic experiences, narratives were categorized based on ten prominent emotional themes: anger, anxiety, fatigue, fear, loneliness, longing, loss, loss of control, stress, and uncertainty. Found poems were constructed for each emotion …
Torn Between The Real Me And The Social Me: Educated Women’S Perspectives Of Surviving Marital Abuse, Mayada A. Daibes, Reema R. Safadi
Torn Between The Real Me And The Social Me: Educated Women’S Perspectives Of Surviving Marital Abuse, Mayada A. Daibes, Reema R. Safadi
The Qualitative Report
The perspectives of educated women on surviving abusive marital relationships have not been adequately explored, thus implying a gap in the literature regarding the role of education in enhancing or mitigating the prevalence of intimate partner violence (IPV). In this context, the question is how do educated women perceive surviving abusive relationships? Interpretative Phenomenological Analysis (IPA), using flexible semi-structured face-to-face interviews, was conducted to understand the experiences of eight highly educated women (master’s, Ph.D.) in abusive marriage. Four superordinate interrelated themes were developed: (a) developing an awareness of self-respect generating role confusion, (b) being torn between traditions and ambitions, (c) …
“Chains Weigh Heavy”: Body Mapping Embodied Experiences Of Anxiety, Priya Vaughan Dr, Anna Tewson, Patricia Morgan Dr, Katherine M. Boydell Professor
“Chains Weigh Heavy”: Body Mapping Embodied Experiences Of Anxiety, Priya Vaughan Dr, Anna Tewson, Patricia Morgan Dr, Katherine M. Boydell Professor
The Qualitative Report
Anxiety has both cognitive and somatic dimensions as is ubiquitous at a population level. We report on an arts-based research workshop gathering data on embodied experiences of anxiety and non-anxiety. We developed an innovative short body mapping workshop to collect data and undertook thematic analysis to analyse textual and visual data. 35 body maps were produced. “Tightness,” “pain,” and “heaviness” were the most frequently expressed embodied sensations of anxiety. By contrast, when not feeling anxious, participants’ bodies primarily felt “energetic,” “ordered,” and “open.” Anxiety was most frequently felt in the stomach, head and heart. 35 Participants mostly used an abstracted, …
Hiv-Seropositive Patients’ Experiences With Social Workers: A South African Hiv+ Social Worker’S Reflective Log, Delarise Maud Mulqueeny
Hiv-Seropositive Patients’ Experiences With Social Workers: A South African Hiv+ Social Worker’S Reflective Log, Delarise Maud Mulqueeny
The Qualitative Report
Social workers play a pivotal role in HIV-seropositive patients’ treatment and care within South African public antiretroviral treatment (ART) programs. This article is a reflective log of an HIV-seropositive social worker’s observations and reflections on her positionality during a study on HIV-seropositive patients’ experiences of the public ART program in eThekwini, KwaZulu-Natal, South Africa. The primary investigator (PI) utilized various tools and techniques including reflexive bracketing, participatory action research and a reflexive diary to navigate a sensitive study. This was while being cognizant of the fluidity of her insider/outsider positionality. The disclosure of the PI’s HIV-seropositive status culminated in all …
Coping Strategies For Inner Conflicts Between Gay Bear Identity And Health Concerns, Chichun Lin, Darren D. Moore
Coping Strategies For Inner Conflicts Between Gay Bear Identity And Health Concerns, Chichun Lin, Darren D. Moore
The Qualitative Report
Gay bear refers to a burly gay man with a hirsute body and face. Chinese gay bear men are highly homogeneous and strictly emphasize a uniform bear appearance; however, obesity is an obvious health issue in this population. This study aims to explore the Chinese gay bear men's inner conflicts between bear identity and health concerns. Eleven Chinese gay bear men including four Taiwanese, two mainland Chinese, two Hong Kong, two Malaysian, and one Singaporean were interviewed. The study used a thematic analysis approach and found three coping strategies including (a) Eat healthy but maintain a minimal bear standard; (b) …
Arab Health Promoters’ Perspectives On Religious/Cultural Challenges To Adopt Healthy Lifestyle Behaviours Among Arab Immigrants In Canada, Hussein Baharoon, Judy King
Arab Health Promoters’ Perspectives On Religious/Cultural Challenges To Adopt Healthy Lifestyle Behaviours Among Arab Immigrants In Canada, Hussein Baharoon, Judy King
The Qualitative Report
Despite the importance of faith and cultural background in Arab immigrants’ lives, little is known about their role in preventing cardiovascular diseases. To understand the challenges among Arab immigrants related to acculturation and religiosity in adopting healthy lifestyle behaviours and managing stress, we conducted three face-to-face focus groups with 17 Arab health promoters who were members of the Canadian Arab Health Coalition. Averaging 80 minutes in length, the focus groups were conducted in Ottawa, Canada, in February and March 2018. Data were analyzed with an inductive thematic analysis approach; we identified four themes: “Culture first!”: dominant influence of home country …
Self-Portraits For Social Change: Audience Response To A Photovoice Exhibition By Women With Disability, Diane Macdonald, Angela Dew, Karen Fisher Assoc Prof, Katherine Boydell
Self-Portraits For Social Change: Audience Response To A Photovoice Exhibition By Women With Disability, Diane Macdonald, Angela Dew, Karen Fisher Assoc Prof, Katherine Boydell
The Qualitative Report
Negative attitudes about and behaviours towards women with disability are harmful and exclusionary, contributing to poorer health, income, educational, and employment outcomes. Our study focused on what audiences learnt, felt, and did (what changed) after viewing self-portraits and stories by women with disability. We questioned whether a public exhibition of their artworks, created through photovoice methodology, could be an effective platform to provoke social change and increase inclusion for people with disability. We collected audience response to our exhibition to address a research gap and to provide an example for other photovoice researchers. We employed interpretive thematic analysis through a …
Systematic Visuo-Textual Analysis: A Framework For Analysing Visual And Textual Data, Nicole Brown, Jo Collins
Systematic Visuo-Textual Analysis: A Framework For Analysing Visual And Textual Data, Nicole Brown, Jo Collins
The Qualitative Report
As qualitative research has evolved, researchers now often combine interviews with the production of photographs, artefacts, collages, maps or drawings and the like. However, in practice, the artefacts produced are used to eliciting experiences and stimulating conversations rather than as data, per se, which is often due to the lack of guidelines for how to deal with the artefacts as data in a systematic analytical process. In this article, we present the Systematic Visuo-Textual Analysis, a framework developed to provide much-needed support for qualitative researchers in analysing artefacts in combination with interviews. Drawing on existing frameworks for visual and textual …
Creatively Exploring Self: Applying Organic Inquiry, A Transpersonal And Intuitive Methodology, Larisa J. Bardsley Phd
Creatively Exploring Self: Applying Organic Inquiry, A Transpersonal And Intuitive Methodology, Larisa J. Bardsley Phd
The Qualitative Report
This article explores the merit of using Organic Inquiry, a qualitative research approach that is most effectively applied to areas of psychological and spiritual growth. Organic Inquiry is a research approach where the psyche of the researcher becomes the instrument of the research, working in partnership with the experiences of participants and guided by liminal and spiritual influences. Organic Inquiry is presented as a unique methodology that can incorporate other non-traditional research methods, including intuitive, autoethnographic and creative techniques. The validity and application of Organic Inquiry, as well as its strengths and limitations are discussed in the light of the …
Research, Reflections, And Resistance: A Review Of Body Battlegrounds: Transgressions, Tensions, And Transformations, Alexandra Ch Nowakowski
Research, Reflections, And Resistance: A Review Of Body Battlegrounds: Transgressions, Tensions, And Transformations, Alexandra Ch Nowakowski
The Qualitative Report
Body Battlegrounds: Transgressions, Tensions, and Transformations offers a superb learning resource for exploring the body in social, emotional, cultural, and political contexts across many different career stages and disciplines. Edited by seasoned embodiment scholars Dr. Chris Bobel and Dr. Samantha Kwan, this new collection brings together 13 research reflections and 16 personal essays on different aspects of embodied resistance. It offers an expansive view of intersecting forms of body marginalization and ways to center these experiences in seeking embodiment justice. It also makes a superb resource for orienting learners at all career stages to embodied resistance and its crucial role …
Conflict Between Religious Beliefs And Sexuality: An Autoethnography, Carlos E. Gerena
Conflict Between Religious Beliefs And Sexuality: An Autoethnography, Carlos E. Gerena
The Qualitative Report
Despite the shift in attitudes in religious institutions toward homosexuals in the United States, there are some religions that continue to view same-sex behavior as a deviant and damning sin. For many, religious beliefs and values provide meaning and impact personal identity. Using autoethnography, I will explicate my own experiences with religious institutions and the ongoing conflict between religious beliefs and sexuality. I will discuss messages received from the Pentecostal church, family, and Latino community, and how these messages influenced my human development and emotional well-being. I show that internalization of the principles taught by the Pentecostal Church triggered a …
The Color Of Water: An Autoethnographically-Inspired Journey Of My Becoming A Researcher, Trude Klevan, Bengt Karlsson, Alec Grant
The Color Of Water: An Autoethnographically-Inspired Journey Of My Becoming A Researcher, Trude Klevan, Bengt Karlsson, Alec Grant
The Qualitative Report
In this paper, the first author autoethnographically describes, discusses and reflects on her process of becoming a researcher based on her PhD journey. She explores how the development of knowledge and her understandings of what counts as knowledge is entangled with her personal and professional development. The second and third authors join with her to explore and comment on the ways in which her doctoral topic knowledge and her process of becoming a researcher co-evolved. On this basis, all authors challenge and trouble what counts as qualitative knowledge and inquiry in contemporary academia and discuss the need for the provision …
An Introduction To Transformative Inquiry: Understanding Compelling And Significant Relationships For Personal And Societal Transformation, Mark L. Mccaslin, Kelly A. Kilrea
An Introduction To Transformative Inquiry: Understanding Compelling And Significant Relationships For Personal And Societal Transformation, Mark L. Mccaslin, Kelly A. Kilrea
The Qualitative Report
Transformative inquiry is a theoretical model designed to facilitate the inquiry of important and meaningful relationships that transform and potentiate us. Creswell (2007) described the essential elements of a research agenda: the axiological, ontological, epistemological, methodological, and rhetorical. Each carries with it assumptions that hold implications for practice and research. Transformative inquiry addresses all of these elements through considerations given to deep ecology, transdisciplinarity, integral meta-theory, heuristic research, and eudaimonistic philosophy, respectively. Transformative inquiry is an approach to understanding and fostering the full range of deep and meaningful relationships from the personal to the political, and beyond. It is a …
Online Blaming And Intimate Partner Violence: A Content Analysis Of Social Media Comments, Jason Whiting, Rachael Dansby Olufowote, Jaclyn D. Cravens-Pickens, Alyssa Banford Witting
Online Blaming And Intimate Partner Violence: A Content Analysis Of Social Media Comments, Jason Whiting, Rachael Dansby Olufowote, Jaclyn D. Cravens-Pickens, Alyssa Banford Witting
The Qualitative Report
Social media has become a ubiquitous form of interacting and sharing information. However, comments on social media sites are often aggressive and contemptuous, especially when topics are controversial or politically charged. For example, discussion of intimate partner violence (IPV) tends to provoke strong reactions from outsiders, who make angry or blaming remarks about those involved. Although IPV is common, it has not been widely discussed in popular media until recent years when high-profile cases of abuse have come to light. In 2016, a celebrity accusation of domestic violence led to thousands of comments on social media, with outsiders weighing in …
Using Nvivo™ For Literature Reviews: The Eight Step Pedagogy (N7+1), Maureen M. O'Neill Dr, Sarah R. Booth Mrs, Janeen Therese Lamb Phd
Using Nvivo™ For Literature Reviews: The Eight Step Pedagogy (N7+1), Maureen M. O'Neill Dr, Sarah R. Booth Mrs, Janeen Therese Lamb Phd
The Qualitative Report
While a literature review is a necessary milestone to be completed by all researchers in a timely and efficient manner, it is often one of the most difficult aspects of the research journey. Moreover, traditional approaches often leave novice researchers, to struggle with the conceptualisation of their literature review, now complicated by the overwhelming quantity of research available online. This paper presents a rationale the use of Qualitative Data Analysis Software (QDAS) programs for literature reviews. QDAS tools allow the researcher to explore large amounts of textual documents to see patterns. These programs are often overlooked by novice researchers due …
Examining Participation Among Persons With Spinal Cord Injuries And Disorders Using Photovoice, Salva Balbale, Keshonna Lones, Jennifer N. Hill, Sherri L. Lavela Phd, Mph, Mba
Examining Participation Among Persons With Spinal Cord Injuries And Disorders Using Photovoice, Salva Balbale, Keshonna Lones, Jennifer N. Hill, Sherri L. Lavela Phd, Mph, Mba
The Qualitative Report
Participation is a significant rehabilitation outcome for individuals with spinal cord injury and/or disorder (SCI/D), yet few qualitative studies have described the social aspect of disability and community participation. We used the photovoice methodology to explore perceptions and experiences related to participation among Veterans with SCI/D. We recruited a convenience sample of individuals with SCI/D at the Hines Veterans Affairs (VA) SCI/D Unit. Participants were asked to take photographs exemplifying their experiences and activities regarding participation. Within four weeks, participants returned their photographs and completed semi-structured interviews to discuss their photographs. Interview transcripts were analyzed using an inductive coding approach …
“It’S Not A Life Or Death Thing”: A Grounded Theory Study Of Smoking Decisions Among Chinese Americans, Yu Lu
The Qualitative Report
Smoking results in a high mortality rate for Chinese Americans. Little is known, however, about the decisions members of this group make that lead to these unhealthy behaviors. Examining smoking decisions could help us understand these choices as well as develop effective prevention strategies. This grounded theory study was conducted to understand Chinese Americans’ smoking decisions. Fifty-four individual interviews and three focus groups were conducted with Chinese Americans of different smoking statuses. The findings describe five smoking decisions including the trajectory of these behaviors. Optimistic bias is identified as one of the main reasons that regular smokers decide not to …
Life After Nbc’S “The Biggest Loser”: The Experiences And Perspectives Of Former Reality Tv Contestants, Darren D. Moore, Clinton Cooper, Toiya Williams, Kai Zwierstra
Life After Nbc’S “The Biggest Loser”: The Experiences And Perspectives Of Former Reality Tv Contestants, Darren D. Moore, Clinton Cooper, Toiya Williams, Kai Zwierstra
The Qualitative Report
Utilizing Qualitative Description influenced by aspects of phenomenology, we conducted fifteen open-ended, semi-structured interviews with former contestants of NBC’s “The Biggest Loser.” The purpose of the study was to explore experiences of significant weight loss. We focused on challenges, emotional well-being, and relational dynamics of contestants transitioning through their weight loss journeys, which included what happened after the show was completed. Further, we analyzed perspectives regarding the utility of Marriage and Family Therapists (MFTs) in working with this population. In the study, three themes emerged which included: (1) Living at the ranch: It’s reality TV, not reality; (2) After the …
From Interview To Transcript To Story: Elucidating The Construction Of Journalistic Narrative As Qualitative Research, Jørgen Jeppesen
From Interview To Transcript To Story: Elucidating The Construction Of Journalistic Narrative As Qualitative Research, Jørgen Jeppesen
The Qualitative Report
There is a call to narrative investigators to be more explicit about their ways of working methodologically, in particular concerning dialogic/performative analysis. The purpose of this study was to examine how journalistic storytelling used as qualitative health research transformed, assembled and sequenced interview into transcripts, scenes, digressions, and other language products. A published story from a socio-narratological study of living with the terminal disease Amyotrophic Lateral Sclerosis was selected. Distribution and sequence of modes of transcription, versions of dialogue, transformation of observation and memory to scenes, and conversion of the researcher’s reflection to digression, were identified and calculated. Spots in …
Understanding The Employment Barriers And Support Needs Of People Living With Psychosis, Margaret Hampson, Richard Hicks, Bruce Watt
Understanding The Employment Barriers And Support Needs Of People Living With Psychosis, Margaret Hampson, Richard Hicks, Bruce Watt
The Qualitative Report
This study investigated the employment barriers and support needs of people living with psychosis. A purposive community sample of 137 volunteers drawn from six key stakeholder groups were invited to participate in focus groups and semi-structured individual interviews to elicit their perceptions on the employment barriers and support needs of people living with psychosis. The stakeholder groups included in this study were people with lived experience of schizophrenia or bipolar disorder, carers, health professionals, employers, employment service providers, and community members. Data obtained from 14 focus groups and 31 semi-structured individual interviews were transcribed, imported into NVivo 10, and coded …
Pregnancy And Childbirth Practices Among Immigrant Women From India: “Have A Healthy Baby”, Rama Cousik, M. Gail Hickey
Pregnancy And Childbirth Practices Among Immigrant Women From India: “Have A Healthy Baby”, Rama Cousik, M. Gail Hickey
The Qualitative Report
In India, practices relating to pregnancy, childbirth and child development have been rooted in cultural beliefs and traditions that are based on knowledge contained in ancient Indian texts. Many Indians residing across the globe continue to observe these practices. Some may find it challenging to do so when they are residing abroad, away from familiar surroundings and separated from their extended families. A small body of research exists that shows that migrant Indian women do observe traditional maternal practices based on cultural beliefs, but there is a need to learn more about how this knowledge is acquired, disseminated and preserved. …