Medicine and Health Sciences Commons^™

Autism And Research Using Magnetic Resonance Imaging, Norah L. Johnson, Nicole M.G. Salowitz, Michael Van Abel, Bridget Dolan, Amy V. Van Hecke, Sheikh Iqbal Ahamed

College of Nursing Faculty Research and Publications

This qualitative study explored the experience of participating in a research study using magnetic resonance imaging (MRI) for children with autism spectrum disorder (ASD), typically developing (TYP) children, and their parent. It also assessed the feasibility, efficacy, and acceptability of the Going to MRI for a Research Study© iPad application (app), developed by the primary author, available for use for MRI preparation. The app provides a description of the steps of the MRI procedure, from the child’s perspective, outlining expected behaviors and responses. Ten English-speaking parent/child dyads (n = 20) participated in an audiotaped question guide-facilitated telephone interview about …

Translating Research To Practice For Children With Autism Spectrum Disorder: Part I: Definition, Associated Behaviors, Prevalence, Diagnostic Process, And Interventions, Norah L. Johnson, Karen Burkett, Judy Reinhold, Margaret W. Bultas

College of Nursing Faculty Research and Publications

Introduction

The number of children with autism spectrum disorder (ASD) is rising, along with the potential for challenging behaviors during health care encounters.

Method

We present an overview of the emerging science related to ASD diagnosis and interventions for children with ASD.

Results

Emerging science on ASD reveals common associated challenging behaviors, increasing prevalence, emphasis on early diagnosis at 18 to 24 months of age, changes in the diagnostic process with criteria from the Diagnostic and Statistical Manual of Mental Disorders, 5th edition, and interventions with medication, education, and behavior management.

Discussion

Family and health care provider preparation strategies facilitate …

Translating Research To Practice For Children With Autism Spectrum Disorder: Part 2: Behavior Management In Home And Health Care Settings, Margaret W. Bultas, Norah L. Johnson, Karen Burkett, Judy Reinhold

College of Nursing Faculty Research and Publications

Introduction

Managing home and health care for children with autism spectrum disorder can be challenging because of the range of symptoms and behaviors exhibited.

Method

This article presents an overview of the emerging science related to the methods to foster family self-management of common concerns regarding activities of daily living and behaviors, as well as for the health care provider in primary and acute health care settings.

Results

Recommendations are provided to enhance the overall delivery of services, including understanding and managing a child's challenging behaviors, and supporting family management of common activities of daily living and behaviors.

Discussion

Health …

Increasing Autism Awareness In Inner-City Churches: A Brief Report, Norah L. Johnson, Amy V. Van Hecke

College of Nursing Faculty Research and Publications

Autism diagnosis rates trail significantly in the African American community. This pre-test post-test pilot study evaluated an African American inner-city church health ambassadors (HAs) autism spectrum disorder (ASD) awareness training session. The participants included 12 HAs who attended the 1 hour training session organized by the National Baptist Convention, USA, Inc. Results of surveys showed higher mean scores post training for (1) HA attitudes about the potential for children to improve with applied behavior analysis therapy; (2) HA self-efficacy for having information about ASD screening materials; (3) strategies HAs could use to help parents/caregivers of children with developmental delays and …

Neural Plasticity In Response To Intervention In Adolescents With Autism Spectrum Disorders, Sheryl Jayne Stevens

Dissertations (1934 -)

Current theories of Autism Spectrum Disorders (ASD) suggest that they may develop from the transactional interaction between biological risk factors and environmental processes (Dawson et al., 2009). Due to the brain’s experience-expectant nature, one’s degree of social exposure may have a significant impact on their brain development and behavioral presentation. In addition to the primary critical neurodevelopmental period identified in early childhood, recent research has demonstrated a second period of substantial neurodevelopment during the adolescent period (Sisk & Foster, 2004). This study investigated the neural and behavioral impact of participation in an empirically validated behavioral intervention (The Program for the …

Social Script Ipad Application Versus Usual Care Before Undergoing Medical Imaging: Two Case Studies Of Children With Autism, Norah L. Johnson Phd, Rn, Cpnp, Octavia Alexis Bree

College of Nursing Faculty Research and Publications

Autism spectrum disorders (ASDs) are neurodevelopmental disorders of socialization, communication, and repetitive behaviors. Children with ASD have underlying anxiety leading to challenging behaviors in unfamiliar situations. The anxiety impacts timely completion of an imaging procedure. The purpose of the case study was to describe the process of the social script intervention delivered using the iPad application on parent and child anxiety, child behaviors, and imaging procedure length between two parent and child dyads. The case study of two parent-child dyads demonstrated the process for comparing the social script intervention iPad app for preparing for imaging versus usual care. Parent anxiety …

Attributed Meanings And Strategies To Prevent Challenging Behaviors Of Hospitalized Children With Autism: Two Perspectives, Norah L. Johnson Phd, Rn, Cpnp, Abir K. Bekhet, Karen Marie Robinson, Dana Rodriguez

College of Nursing Faculty Research and Publications

Introduction

Understanding is limited of the meaning attributed to behaviors of children with autism spectrum disorder and strategies used to prevent challenging behaviors in the context of hospitalization.

Methods

This qualitative study consisted of two focus groups (n = 10; five mothers and five health care providers [HCPs]). Transcripts were analyzed using the qualitative method of narrative inquiry.

Results

The meaning attributed to behaviors by the mothers and the HCPs differed. The mothers attributed behaviors to the child's communication of frustration, hyperactivity, and self-calming. The HCPs attributed challenging behaviors to self-stimulation and child aggression. Strategies to prevent behaviors also …

Genomics And Autism Spectrum Disorder, Norah L. Johnson

College of Nursing Faculty Research and Publications

Purpose: To present the current state of the evidence regarding translation of genetics (the study of single genes) and genomics (the study of all genes and gene-gene or gene-environment interactions) into health care of children with autism spectrum disorder (ASD).

Methods: This article presents an overview of ASD as an international health challenge, the emerging science related to broad diagnostic criteria, and the role of the nurse in research, education, and practice.

Findings: Much progress is being made in the understanding of genetics and genomics of ASD. Environmental factors are thought to contribute to the risk of developing ASD by …

Children With Developmental Disabilities At A Pediatric Hospital: Staff Education To Prevent And Manage Challenging Behaviors, Norah L. Johnson, Joel Lashley, Alice V. Stoneck, Annette Bonjour

College of Nursing Faculty Research and Publications

Children with developmental disabilities may get frustrated in unpredictable hospital environments. Frustration may escalate to challenging behaviors, which are a safety concern and may contribute to staff and patient injuries, use of restraints, and procedure delay or cancelations. The purpose of this article was to describe a pilot staff education program on preventing and managing challenging behaviors of children with developmental disabilities at a pediatric hospital. The 2-hour-long education (1 hour on-line and 1 hour instructor led) content focused on family-centered care and communication skills, including verbal judo™ modified for use in the health care setting. Participants in the instructor-led …

The Peers Intervention: Social Anxiety, Physiological Regulation, And Core Autistic Symptoms In Adolescents With Autism, Kirsten A. Schohl

Master's Theses (2009 -)

There have been very few effective interventions developed that have focused on improving social skills in adolescents with autism spectrum disorders (ASD), however, the need is persistent. This study aimed to evaluate the effectiveness of the Program for the Enrichment and Education of Relational Skills (PEERS: Laugeson, Frankel, Mogil, & Dillon, 2009). PEERS focuses on improving friendship quality and social skills among adolescents, ages 11-15 years, with higher-functioning ASD. This study included 47 participants, who were randomly assigned to two groups. Assessment measures utilized parent report and adolescent self-report at pre- and post-treatment. In addition, respiratory sinus arrhythmia (RSA) was …

Phonological Accuracy And Intelligibility In Connected Speech Of Boys With Fragile X Syndrome Or Down Syndrome, Elizabeth Barnes, Joanne Roberts, Steven Long, Gary E. Martin, Mary C. Berni, Kerry C. Mandulak, John Sideris

Speech Pathology and Audiology Faculty Research and Publications

Purpose: To compare the phonological accuracy and speech intelligibility of boys with fragile X syndrome with autism spectrum disorder (FXS-ASD), fragile X syndrome only (FXS-O), Down syndrome (DS), and typically developing (TD) boys.

Method: Participants were 32 boys with FXS-O (3–14 years), 31 with FXS-ASD (5–15 years), 34 with DS (4–16 years), and 45 TD boys of similar nonverbal mental age. We used connected speech samples to compute measures of phonological accuracy, phonological process occurrence, and intelligibility.

Results: The boys with FXS, regardless of autism status, did not differ from TD boys on phonological accuracy and phonological …

Understanding Relationships In Health Related Quality Of Life For Parents Of Children With Autism Spectrum Disorder, Norah Louise Johnson

Dissertations (1934 -)

Nurses encounter many parents of children with autism spectrum disorder (ASD). Both parents are under stress that ultimately impacts their health related quality of life (HRQL). Few studies assess the mediators of parenting stress on HRQL for both parents. This study explored the relationship of parenting stress, family functioning and HRQL for parenting dyads of children with ASD. Lazarus and Folkman's (1984) Transactional Model of Stress and Coping and Lakey and Cohen's (2000) Social Support Theory framed the study.

Implementing a cross sectional, descriptive design, 387 parents (n=64 dyads) of ASD-affected children, from 46 states, completed web-based surveys. Demographics, the …