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Full-Text Articles in Medicine and Health Sciences
Ethics Of Clear Health Communication: Applying The Clean Look Approach To Communicate Biobanking Information For Cancer Research, Alexis Koskan, Mariana Arevalo, Gwen Quinn, Shalwea Noel-Thomas, John S. Luque, Kristen Wells, Cathy Meade, Clement K. Gwede
Ethics Of Clear Health Communication: Applying The Clean Look Approach To Communicate Biobanking Information For Cancer Research, Alexis Koskan, Mariana Arevalo, Gwen Quinn, Shalwea Noel-Thomas, John S. Luque, Kristen Wells, Cathy Meade, Clement K. Gwede
Community Health Faculty Publications
Cancer innovations, such as biobanking technologies, are continuously evolving to improve our understanding and knowledge about cancer prevention and treatment modalities. However, the public receives little communication about biobanking and is often unaware about this innovation until asked to donate biospecimens. It is the researchers’ ethical duty to provide clear communications about biobanking and biospecimen research. Such information allows the public to understand biobanking processes and facilitates informed decision making about biospecimen donation. The aims of this paper are 1) to examine the importance of clear communication as an ethical imperative when conveying information about cancer innovations and 2) to …
Formative Research On Perceptions Of Biobanking: What Community Members Think, John S. Luque, Gwendolyn P. Quinn, Francisco A. Montel-Ishino, Mariana Arevalo, Shalanda A. Bynum, Shalewa Noel-Thomas, Kristen J. Wells, Clement K. Gwede, Cathy D. Meade, Tampa Bay Community Cancer Network Partners
Formative Research On Perceptions Of Biobanking: What Community Members Think, John S. Luque, Gwendolyn P. Quinn, Francisco A. Montel-Ishino, Mariana Arevalo, Shalanda A. Bynum, Shalewa Noel-Thomas, Kristen J. Wells, Clement K. Gwede, Cathy D. Meade, Tampa Bay Community Cancer Network Partners
Community Health Faculty Publications
Preparing healthy community members with timely communications prior to engaging them in a request to donate biospecimens promises to improve the experience of biobanking participation. To this end, a qualitative study was conducted to assess community member knowledge, attitudes, beliefs, and informational needs about cancer-related biospecimen collection in a large metropolitan area in southwest Florida. The study utilized purposive sampling techniques to recruit a total of 95 participants to participate in 12 focus groups, segmented by race/ethnicity and language preference (mixed race, African American only, and Spanish speaking) and age (18–29, 30–54, and 55 and older). Focus group interviews were …