Open Access. Powered by Scholars. Published by Universities.®

Medicine and Health Sciences Commons

Open Access. Powered by Scholars. Published by Universities.®

Articles 1 - 3 of 3

Full-Text Articles in Medicine and Health Sciences

Child Life Specialists’ Facilitation Of Family-Centered Care: The Importance Of Sibling Support, Carissa L. Lane Jun 2014

Child Life Specialists’ Facilitation Of Family-Centered Care: The Importance Of Sibling Support, Carissa L. Lane

Psychology and Child Development

Certified Child Life Specialists’ understanding of family-centered care, and their beliefs and practices involving siblings of chronically/critically ill children were examined using an online survey. Participants were Certified Child Life Specialists recruited form the Child Life Council Forum. Relationships between utilization of certain words and support programs offered to siblings, were examined. Findings revealed a relationship in one area of coded language and support program for siblings, but not the other. Findings also revealed that all CCLS believe in the inclusion of siblings during the treatment process, however they are offered less support services than parents. Diverse results regarding multiple …


Possible Psychosocial Benefits Of Having A Sibling With A Disability, Jenna M. Talbott Apr 2014

Possible Psychosocial Benefits Of Having A Sibling With A Disability, Jenna M. Talbott

Senior Honors Theses

Possible psychosocial benefits resulting from exposure to siblings with disabilities are investigated in the current study. Previous literature has generally overlooked the possibility of psychosocial benefits by exclusively focusing on the negative effects of having a sibling with disabilities. Contact theory suggests that the increased exposure to individuals with disabilities should increase positive attitude toward those who are struggling with disadvantages. This investigation hypothesized that this tendency would be manifested as elevated empathy and compassion in individuals who have siblings with disabilities, and that these traits would be influenced by certain demographic variables. A survey was distributed, and the responses …


The Experience Of Having Primary Caregiving Responsibilities For An Adult Sibling With Down Syndrome, Patricia Sciscione Feb 2014

The Experience Of Having Primary Caregiving Responsibilities For An Adult Sibling With Down Syndrome, Patricia Sciscione

Seton Hall University Dissertations and Theses (ETDs)

Abstract

Background: The current generation of adults with Down syndrome is living longer and is likely to outlive their parents. Siblings have been identified as the likely future caregivers for adults with Down syndrome, yet little is known about what the experience is like for those who are currently caring for their siblings. It is necessary to gain an understanding of what the service needs are for this population in order to assist sibling caregivers.

Objectives: To explore and describe the experience of being an adult who is partially or fully involved with primary caregiving responsibilities for a sibling with …