Open Access. Powered by Scholars. Published by Universities.®
Articles 1 - 2 of 2
Full-Text Articles in Medicine and Health Sciences
Language Contributions To Health Related Quality Of Life In Amyotrophic Lateral Sclerosis, Katie M. Findlater
Language Contributions To Health Related Quality Of Life In Amyotrophic Lateral Sclerosis, Katie M. Findlater
Electronic Thesis and Dissertation Repository
Concurrent with the well-documented motor speech production impairments in amyotrophic lateral sclerosis (ALS), individuals with ALS exhibit language problems including confrontation and generative naming difficulties, single word auditory and reading comprehension problems, and decreased self-regulation based on fewer self-corrected utterances, among other language disruptions. Health related quality of life (HRQoL) measures specific to ALS often contain items related to its characteristic speech production problems that are thought to influence overall quality of life. However, the language problems in ALS are rarely if ever considered within the context of HRQoL. The current study aimed to identify the relationship between language problems …
Language In Genetics Research Informed Consent: The Language Gap And Unrecognized Miscommunication, Justin Morgenstern
Language In Genetics Research Informed Consent: The Language Gap And Unrecognized Miscommunication, Justin Morgenstern
Electronic Thesis and Dissertation Repository
Informed choice is fundamentally a process of communication, reliant entirely on the tools of language. However, the meanings and understandings of words change with time, setting, and context, threatening the basis of consent. We conducted a qualitative content analysis of Canadian genetics research documents, exploring the impacts of language on informed consent. Numerous language usages were noted as potential barriers to informed consent, including language that was vague, variable, and unusually defined. Unique combinations of words were observed to generate novel concepts without clear meanings and definitions were absent or unclear. However, the ambiguity of the language was concealed by …