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Knowledge And Self-Esteem In Individuals With Neurofibromatosis Type 1 (Nf1), Kayla Vaughn
Knowledge And Self-Esteem In Individuals With Neurofibromatosis Type 1 (Nf1), Kayla Vaughn
Dissertations & Theses (Open Access)
Neurofibromatosis Type 1 (NF1) is a progressive genetic disorder characterized mainly by café-au-lait macules, Lisch nodules, as well as cutaneous and subcutaneous neurofibromas among other traits. Due to the physical manifestations of the condition, it has been observed that individuals with NF1 have lower self-esteem (SE) when compared to the general population. Additionally, a study published over 20 years ago found that overall knowledge of NF1 was poor in individuals affected with the condition. The goal of our study was to reassess knowledge in this population and investigate whether it is related to SE. A survey comprised of knowledge-based questions …