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Full-Text Articles in Medicine and Health Sciences
Explanations Of Risk In Families Without Identified Mutations For Hereditary Nonpolyposis Colorectal Cancer, Anne Ersig, Lioness Ayres, D. Hadley, L. Koehly
Explanations Of Risk In Families Without Identified Mutations For Hereditary Nonpolyposis Colorectal Cancer, Anne Ersig, Lioness Ayres, D. Hadley, L. Koehly
Lioness Ayres
Purpose: Genetic testing for hereditary forms of cancer does not always identify a causative mutation. Little is known about personal or family response to these indeterminate results when a hereditary form of cancer is suspected. This study explored thoughts about and responses to risk for hereditary nonpolyposis colorectal cancer (HNPCC) when a family member has received indeterminate genetic test results. Design: In this qualitative study, data were gathered from index cases who received indeterminate genetic test results through a longitudinal study offering genetic counseling and testing for HNPCC. First-degree relatives of these indeterminate index cases were also invited to participate …
Narratives Of Family Caregiving: Four Story Types, Lioness Ayres
Narratives Of Family Caregiving: Four Story Types, Lioness Ayres
Lioness Ayres
RESULTS/CONCLUSIONS: This study used a combination of across-case, thematic analysis and within-case, narrative analysis to develop a typology of stories for family caregivers. Both researchers and clinicians can benefit from interpretive methods that offer access s into the processes and products of making meaning though stories. It is often easier to see the possibilities for reinterpretation from outside a story than from within it. It may be that nurses will also be uniquely able to help clients who are in the process of "getting the story straight" to find new, more sustaining meanings and even to live more happily ever …
Defining And Managing Family Caregiving In Chronic Illness: Expectations, Explanations, And Strategies, Lioness Ayres
Defining And Managing Family Caregiving In Chronic Illness: Expectations, Explanations, And Strategies, Lioness Ayres
Lioness Ayres
Study findings identified the process by which caregivers made meaning out of their situations. This process was called the caregiving hermeneutic and consisted of the expectations, explanations, and strategies caregivers used in interpreting caregiving. The study also identified the kinds of meaning caregivers made out of their situations. The resulting four kinds of meaning were called metanarrative types. Metanarrative types consisted of stories of ideal lives, stories of ordinary lives, stories of compromised lives, and stories that were ambiguous. Caregivers who told compromised stories scored higher on measures of tension and depression and lower on measures of esteem for caregiving …
Narratives Of Family Caregiving: The Process Of Making Meaning, Lioness Ayres
Narratives Of Family Caregiving: The Process Of Making Meaning, Lioness Ayres
Lioness Ayres
RESULTS/CONCLUSIONS: Further research is clearly indicated to measure, rather than just describe, the components of caregivers' expectations, explanations, and strategies. Such research could identify explanations associated with flexible expectations and successful, good quality strategies, as well as provide clinicians with tools to predict those caregivers at risk for difficulty. Knowledge about caregivers could then be incorporated into interventions for caregivers at risk. Nursing interventions could help caregivers discover new expectations, explain their situations more positively, or find new strategies that both provide more satisfaction and are more consistent with good quality care. Nursing research has particular promise in illuminating this …