Medicine and Health Sciences Commons^™

State Roles In Promoting Community Life Engagement: Themes From The State Employment Leadership Network’S Working Group, Jennifer Sullivan Sulewski, Jaimie Ciulla Timmons, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

As states focus on expanding integrated employment opportunities for people with intellectual and developmental disabilities (IDD) and phasing out sheltered work, they are finding a need to concurrently examine Community Life Engagement (CLE) supports as a wrap-around to ensure individuals’ engagement in the community is maintained and they continue to receive sufficient levels of support, despite fluctuations in job status and hours. In January through June of 2017, the State Employment Leadership Network (SELN) hosted a working group of member states to discuss ideas and share strategies for encouraging quality CLE supports while maintaining a focus on Employment First (see …

A Roadmap To Competitive Integrated Employment: Strategies For Provider Transformation, Esther Kamau, Jaimie Ciulla Timmons, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

Competitive integrated employment is defined within the Workforce Innovation and Opportunity Act (WIOA, 2014) as full-time or part-time work at minimum wage or higher, with wages and benefits similar to those without disabilities performing the same work, and fully integrated with coworkers without disabilities. The Act requires that states ensure employment is offered as a priority outcome for people with intellectual and developmental disabilities (IDD). As a result, providers who offer employment support to people with IDD have been working to phase out sheltered workshops and transform to offer competitive integrated employment.

Data Note: Social Security Administration Data Show A Record Low Level Of Pass Usage Among Ssi Recipients, Daria Domin, Jaimie Ciulla Timmons, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

The Social Security Administration (SSA) offers a set of work incentives for Supplemental Security income (SSI) beneficiaries. Work incentive employment supports help SSI recipients go to work by minimizing the risk of losing their SSI or Medicaid benefits (Social Security Administration, 2018). One such incentive, the Plan to Achieve Self-Support (PASS), allows approved individuals to set aside earned or unearned income and resources to achieve an employment goal. The money or resources set aside are excluded from SSI income and resource tests and can be used to pay for goods or services needed to reach the goal, such as education, …

Service Provider Promising Practice - The Arc Of Westchester: Creative Partnership With Mercy College, Jaimie Ciulla Timmons, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

The Arc of Westchester benefits from an agency culture that values innovative partnerships. In fact, an agency leader explained that the organization “will work with anybody who is willing to sit and talk.” This collaborative spirit led to a creative endeavor with Mercy College, a four-year school offering degrees in Business, Education, Liberal Arts, Health and Natural Sciences, and Social and Behavioral Sciences. Within Health and Natural Sciences are departments such as nursing, speech therapy, occupational therapy, physical therapy, and nutrition. The Arc of Westchester partnered with these departments to form a mutually beneficial relationship, creating opportunities for both college …

Service Provider Promising Practice - Atwork!: Creating A Robust Investment In Staff Professional Development, Esther Kamau, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

At the beginning of their transformation process, AtWork! did not have a training structure in place. Recognizing that job development required a different skill set for their staff, AtWork! made a commitment to invest in training, which they saw as “a key ingredient” to successful transformation. Investing in the development of staff skills and competencies to support the transformation process is essential. Without that investment, as one agency leader put it, “every provider is going to continue to spin their wheels with people in, people out, retraining, all those type of things.” Consequently, AtWork! invested in training its staff through …

Service Provider Promising Practice - Penn-Mar Human Services: Creating Their “2020 Strategic Plan”, Esther Kamau, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

At the beginning of the transformation process, Penn-Mar recognized the importance of robust strategic planning to understand what the organization needed to do differently to transform. Therefore, Penn-Mar created the 2020 Strategic Plan, a 5-year plan to help focus the organization, and to strategize about how to achieve their objectives. The 2020 Strategic Plan outlines Penn-Mar’s goal to close its sheltered workshop, with a set of action steps for achievement. The plan set a specific date for closure, as Penn-Mar staff argued that without it, the transformation process would “linger forever.” Penn-Mar established a task force to support the development …

Service Provider Promising Practice - Work Inc.: Developing A Community Liaison Program To Address Holistic Needs, Esther Kamau, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

Leadership at Work Inc., a provider in the Boston area, thought about the holistic approach to providing individual supports even before their agency’s transformation began. Work Inc. designed its community liaisons program to have three components: volunteerism, with the intention of identifying employment opportunities and contributing to the community; recreation, “because everyone wants to have fun”; and instruction, with a focus on skill-building and identifying interests and talents. In designing and implementing the program, Work Inc. staff considered each person’s interests, and turned former workshop staff into “community liaisons.”

Service Provider Promising Practice - Arc Of Westchester: Annual Employer Appreciation Breakfast, Jaimie Ciulla Timmons, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

The Arc of Westchester was established in in New York State in 1949 as a day school for children with developmental disabilities. It has since grown to over 800 hundred employees serving over 2000 individuals throughout Westchester county supporting children, teens, and adults with intellectual and developmental disabilities. The organization’s vision is a world where the population that they serve enjoy fulfilled lives and an inspired future while the mission focuses on strengthening families and encouraging personal choices, abilities and interests. The programs focus on the individual, helping them discover their interests, develop their talents and prepare for meaningful careers. …

Supporting Employment Consultants In Their Work With Job Seekers. A Longitudinal Study, Alberto Migliore, John Butterworth, Oliver Lyons, Kelly Nye-Lengerman, Paul Foos, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

BACKGROUND: A key step for increasing the employment outcomes of job seekers with disabilities includes ensuring that employment consultants who assist them have the tools to succeed, including feedback about how they are performing. OBJECTIVE: Supporting employment consultants in their work with job seekers by providing feedback about the implementation of the support strategies recommended in the literature. METHODS: Sixty-one employment consultants completed a daily survey for one year, on their smartphones. RESULTS: Providing supports that lead to hire represented 30% of the employment consultants’ work time. When providing supports that lead to hire, most of the primary interactions were …

State Employment First Policies #3: Investing In Training And Technical Assistance To Build Capacity In Integrated Employment, Jennifer Bose, Jean Winsor, Jaimie Ciulla Timmons, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

For more than a decade, many states have been developing policies that prioritize integrated employment as the first choice and preferred outcome for individuals with intellectual/developmental disabilities (IDD). Collectively, these actions have been united under the framework of Employment First, a commitment by states and state IDD agencies to the propositions that all individuals with IDD (a) are capable of performing work in typical integrated employment settings, (b) should receive as a matter of state policy employment-related services and supports as a priority over other facility-based and non-work day services, and (c) should be paid at minimum or prevailing wage …

The Essential Characteristics Of Successful Organizational Transformation: Findings From A Delphi Panel Of Experts, Oliver Lyons, Jaimie Ciulla Timmons, Allison Cohen Hall, Stephanie Leblois, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

BACKGROUND: Federal legislation has called for the phasing out of sheltered workshops and the transition to integrated employment, causing providers to struggle with how to adapt their model towards providing community integration services.

Bringing Employment First To Scale: Support Coordination Strategies That Impact Employment Outcomes And Services For Individuals Served By State Intellectual/Developmental Disabilities Agencies, Barbara Brent, Rie Kennedy-Lizotte, Mary Lee Fay, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

Leadership from NASDDDS and ICI worked together to determine topics for a series of white papers on policies that influence employment outcomes for individuals with IDD. This white paper is the third in a series of five. It provides an overview of strategies that support coordinators, or case managers, use to influence employment outcomes for individuals with IDD who are receiving state funded services.

Bringing Employment First To Scale: Pushing The Integrated Employment Agenda: A Case Study Of Maryland’S High-Performing Employment System, Jean Winsor, Cady Landa, Allison C. Hall, Caro Narby, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

This brief summarizes data collected from key informants in Maryland about the state’s efforts to support integrated employment for people with intellectual and developmental disabilities (IDD). It highlights features that contribute to the effectiveness of Maryland’s collaborative structures that have resulted in the state’s success in achieving integrated employment outcomes for individuals with IDD across three state systems: IDD, vocational rehabilitation (VR), and education. Presentation of these features is organized by the seven elements of the Higher-Performing States Employment Framework. These elements have been found to be important in achieving higher rates of competitive integrated employment outcomes for people with …

State Employment First Policies #2: Engaging Stakeholders In Development And Implementation, Jennifer Bose, Jean Winsor, Jaimie Ciulla Timmons, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

This brief is the second in a series focusing on Employment First implementation as it relates to one of the seven elements within the High-Performing States in Integrated Employment model. It looks at the interagency collaboration and partnership element in depth. Interagency partnership and collaboration includes interagency agreements and relationships, provider collaboration, and outreach to stakeholders to ensure that integrated employment is a shared goal.
Case study data was collected for a sub-sample of seven states: Connecticut (CT), Delaware (DE), Kansas (KS), Minnesota (MN), Missouri (MO), Tennessee (TN), and Washington (WA). These states were selected because they represent a wide …

Bringing Employment First To Scale: Writing For Families: Tips To Increase The Impact Of Training Materials, Jennifer Bose, John Kramer, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

This brief covers some of the lessons learned in reviewing literature designed to engage with families about employment. It suggests some tips and strategies to use with families to increase effective involvement and collaboration.

Bringing Employment First To Scale: State Of The Science As A Knowledge Translation Strategy, John Kramer, Caro Narby, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

To synthesize our findings to date, the ThinkWork team at ICI developed 3 draft papers that captured the core themes from our RRTC on Advancing Employment for Individuals with Intellectual and/or Developmental Disabilities (IDD). We asked experts in the field to weigh in on these papers, and then broadly disseminated the papers to multiple audiences. Our primary goal was to engage with a diverse group with a range of perspectives and experiences, including fellow researchers, state agency employees, rehabilitation providers, and individuals with IDD and their families. To reach this goal we used a Knowledge Translation (KT) process. KT has …

Strengthening Employment Services For Job Seekers With Intellectual And Developmental Disabilities (Bringing Employment First To Scale, No 15), Alberto Migliore, Kelly Nye-Lengerman, Oliver Lyons, John Butterworth, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

Strengthening the effectiveness of employment services for job seekers with disabilities is key for improving their employment outcomes and their financial self-sufficiency. The purpose of this brief is to examine the quality of employment services available to job seekers with disabilities, and to offer recommendations for improvement. Findings are from a longitudinal study that involved 61 employment 37 employment programs in 17 states. Data were collected through a survey employment specialists, delivered to the job developers, or participants’ business developers. smartphones every work day for one year. Based on these findings and the literature about effective employment support practices, we …

Family Experiences In Engaging In Employment: How Do We Improve Outcomes?, John Kramer, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

Session 018: Abolishing Exploitive Labour Practices Room: Freedom H

Sponsors: Disability Youth, Aging, and the Life Course

Organizer, Presider &

Discussant: Katherine Caldwell, University of Illinois at Chicago

Papers:

“Differences in Earnings among Persons with and without Disabilities,” Alexandra Krause, Florida State University

“Family Experiences in Engaging in Employment: How Do We Improve Outcomes?” John Kramer, University of Massachusetts Boston

“Shifting the Paradigm through Entrepreneurship,” Katherine Caldwell, University of Illinois at Chicago

Families And Employment Of People With Intellectual And Developmental Disabilities: Results From A Scoping Study, John Kramer, Jennifer Bose, Jean Winsor, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

Purpose: Recent policy changes expanding community employment for people with intellectual/developmental disabilities (IDD) and awareness of the important role of family members as facilitators of these opportunities motivated this scoping review of the literature on family engagement with the IDD service system.

Methods: Researchers used Arksey and O’Malley’s six-stage scoping review methodology (2005) to map a wide range of literature to discover the resources and strategies available to families supporting people with IDD to find employment; the resources and strategies to support people with IDD and families to develop a vision of employment; and the resources and strategies to support …

Data Note: State Intellectual And Developmental Disability Agencies’ Service Trends, Agnes Zalewska, Jean Winsor, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

In FY2016, an estimated 638,568 individuals received day or employment supports from state IDD program agencies. This number grew from 455,824 in FY1999. The estimated number of individuals in integrated employment services increased from 108,227 in FY1999 to 120,244 in FY2016. Despite the trend to terminate facility-based services in some states, the overall state investment continues to emphasize non-work services, rather than integrated employment services. Figure 1 shows the trends in the percentage of people served in integrated employment and facility-based and non-work settings between FY2008 and FY2016.

Service Provider Promising Practice - Transcen’S Worklink Program: Helping Individuals Gain Work Skills Through Targeted Volunteering And Other Community Life Engagement Activities, Heike Boeltzig, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

WorkLink is a program that enables individuals with intellectual and developmental disabilities (IDD) to work while receiving wrap-around day services. Having access to both types of supports -- community employment and Community Life Engagement (CLE) -- is particularly important for individuals with significant IDD, who often work fewer hours and need additional support to lead active and meaningful lives. The program was started in 1996 by TransCen, Inc., and is based in San Francisco, California. Day services not only help individuals establish and maintain meaningful community relationships, but also let them build important skills as they explore vocational goals and …

Service Provider Promising Practice: Flexible Scheduling And Creative Staffing - Kfi’S Support Solutions, Heike Boeltzig, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

Headquartered in a small rural town in northern Maine, Katahdin Friends, Inc. (KFI) provides community employment and life engagement supports, as well as home supports, to individuals with intellectual and developmental disabilities (IDD). KFI’s services extend throughout northern and southern Maine, including the cities of Portland and Bangor. A flexible approach to staffing and support scheduling helps KFI ensure customized daily support schedules that meet individual goals. This approach also allows individuals to interact with a variety of direct support professionals, which is important for having a more engaged and meaningful life in the community. As of July 2016, KFI …

Service Provider Promising Practice: Braiding Community Employment And Life Engagement Services - Transcen’S Worklink Program, Heike Boeltzig, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

WorkLink is a program that braids community employment and life engagement services. The goal is to enable individuals with intellectual and developmental disabilities (IDD) to work while receiving wrap-around day supports, as needed. Started in 1996, WorkLink is a program of TransCen, Inc. and is based in San Francisco. WorkLink clients do not have to give up day supports when deciding to pursue work. In addition to helping individuals establish and maintain meaningful community relationships, day supports are used to discover and explore vocational goals and job options. This information then helps guide individuals’ employment planning process. At WorkLink clients …

Service Provider Promising Practice: Avenues Supported Living Services: A Staffing Approach Based On Client Relationships, Heike Boeltzig, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

Avenues Supported Living Services of Valencia, California was founded in 1997 by a husband- andwife team, Scott and Lori Shepard. The agency provides supported living and community life engagement (CLE) services to individuals with intellectual and developmental disabilities (IDD). Key to Avenues’ success is a staffing approach that is grounded in client relationships. The agency limits staff hours to two shifts per week with the same individual. This is done to facilitate clientstaff matching and relationship building, but also to prevent potential burnout and frustration by ensuring both the clients they support and their staff have variety in their schedules. …

Service Provider Promising Practice: Using Staff Networks To Build Community Membership At Loqw, Oliver Lyons, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

LOQW (Learning Opportunities/Quality Works) is a community skills training, service coordination, and employment services provider in northeast Missouri. LOQW employs over 100 people and serves 14 counties in northeast Missouri and 600 customers annually. Their mission is to “positively impact the lives of individuals through support, advocacy and connection to resources.” LOQW operates several satellite offices in addition to its main office in Monroe City, MO. One of these satellite offices is located in Hannibal, MO, a city with a population of less than 18,000. For comparison, Busch Stadium in nearby St. Louis can hold over twice that amount of …

Service Provider Promising Practice: Fading Supports At Seec, Jennifer Sullivan Sulewski, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

SEEC (Seeking Equality, Empowerment, and Community) is a Maryland-based provider of employment, community living, and community development supports to people with intellectual and developmental disabilities (IDD). Originally established in 1987, SEEC started converting from facility-based to exclusively community-based supports in 2005, and closed down its center-based program completely in 2009. Currently all of SEEC’s supports are individualized and community-based, in keeping with the organization’s mission “to support people with intellectual and developmental disabilities to direct their lives with dignity, choice, authority, and responsibility.” SEEC provides supports to over 200 people with IDD throughout Montgomery County and the District of Columbia. …

Service Provider Promising Practice: Using Mobile Communication Technology At Seec, Oliver Lyons, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

SEEC (Seeking Equality, Empowerment, and Community) is a Maryland-based provider of employment, community living, and community development supports to people with intellectual and developmental disabilities (IDD). Originally established in 1987, SEEC started converting from facility-based to exclusively community-based supports in 2005, and closed down its center-based program completely in 2009. Currently, all of SEEC’s supports are individualized and community-based, in keeping with the organization’s mission “to support people with intellectual and developmental disabilities to direct their lives with dignity, choice, authority, and responsibility.” SEEC provides supports to over 200 people with IDD throughout Montgomery County and the District of Columbia. …

Exploring The Impact Of Community Service On Career Exploration, Self-Determination, And Social Skills For Transition-Age Youth With Autism Spectrum Disorders, Jaimie Ciulla Timmons, Agnes Zalewska, Allison C. Hall, Sheila Fesko, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

Bleak transition outcomes for youth with autism spectrum disorder (ASD), coupled with the surge in incidence, has led to the need for focused and innovative transition strategies. While structured community service reveals promise, documentation of how community service experiences contribute to building employment skills for youth with intellectual/developmental disability (IDD), including those with ASD, is under-researched. The purpose of this paper is to explore the impact of a community service on employment skill-building for youth with ASD. Findings from 23 qualitative interviews with a range of stakeholders showed positive perceptions in the areas of career exploration, self-determination, and social skill …

Guidepost 3: Use Social And Human Capital To Decrease Dependence On Paid Supports, Hannah Curren, Allison C. Hall, Jaimie Ciulla Timmons, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

Community Life Engagement refers to how people with intellectual and developmental disabilities (IDD) access and participate in their communities outside of employment as part of a meaningful day. (See “What Is Community Life Engagement?” in the box on page 3.) The Community Life Engagement team has been conducting research to identify the elements of highquality Community Life Engagement (CLE) supports. We have created a series of four Engage Briefs to examine the guideposts in detail.

Data Note: Reasons For Exiting Vr Services Without Employment, Alberto Migliore, Cady Landa, Thinkwork! At The Institute For Community Inclusion At Umass Boston

ThinkWork! Publications

Only 23% of adults with intellectual disabilities work, compared to 73% of people without disabilities (statedata.info). To bridge this gap, the vocational rehabilitation (VR) program offers valuable services including assessment, job search assistance, and counseling. In FY 2014, over 46,000 adults with intellectual disabilities exited the national VR program. About 38% of them reported an employment outcome. However, a large proportion of them exited without employment, and were reported as either having lost interest in receiving services (29%), or unable to be located by VR staff (17%). These two reasons combined represented 46% of the total number of case closures …