Medicine and Health Sciences Commons^™

Impact Of County-Level Urbanicity On Quality Of Life For People With Intellectual And Developmental Disabilities In A Rural State., Alyssa M. Smith, Allison Caudill

Developmental Disabilities Network Journal

People with intellectual and developmental disabilities (IDD) face challenges, such as decreased access to physical, environmental, and social health-related services that can negatively impact their overall quality of life (QoL). Additionally, people living in rural communities may experience geographic distancing and other factors, like decreased transportation and available housing, that contribute to increased isolation and decreased health outcomes, overall. It is important to consider the QoL of people with IDD living in these communities given the additional intersectional constraints of rurality and having an intellectual disability or other co-occurring conditions. A secondary data analysis reviewed closed and open-ended survey data …

Impact Of A Narrative Language Intervention On Language, Behavior, And Self-Concept Among Bilingual Children With Developmental Language Disorder, Nancy Tarshis Ma, Ms, Ccc-Slp, Kathleen Mcgrath Mss, Lsw, Ida Barresi Ma, Ccc-Slp, Risa Battino Ms, Ccc-Slp, Bcs-F, Sarah Henderson Msed, Ms, Ccc-Slp, Shankar Viswanathan Drph, Jee-Young Moon Phd, Karen Bonuck Phd

Developmental Disabilities Network Journal

The growing research on narrative interventions is promising but has gaps regarding cultural/linguistic diversity and outcomes beyond language. We evaluated whether a structured, oral narrative intervention affects narrative language, problem behaviors, and self-concept in a diverse group of children with developmental language disorder. A 10-session intervention was implemented within routine care. Baseline and follow-up data included: (a) Narrative recordings—coded by therapists using the CUBED Narrative Language Measure, (b) Child Behavior Checklist—a parent-reported behavioral assessment, and (c) the Piers-Harris Children’s Self-Concept Scale. Among the sample’s n = 33 children, aged 6-16, 55.6% were bilingual. Post intervention, participants’ narrative language scores improved …

Examining The Relationship Between Disability, Impairment, And Chronic Pain In Childhood Cerebral Palsy: A Scoping Review And Critical Analysis, Muning Zhang

Electronic Thesis and Dissertation Repository

Young people with cerebral palsy (CP) experience chronic pain at rates higher than their non-disabled peers. Despite this recognition, there have been no studies that have addressed how young people with CP’s experiences with chronic pain are represented and studied in the literature, and especially not through a critical disability studies lens. Foucault’s notion of discourse was used to guide critical analysis of studies. This scoping review was guided by the research question: “What is known about the relation between children’s experiences of chronic pain and cerebral palsy in the health and rehabilitation literature?”. Thirty-five studies were included in …

Graphic Medicine For Library Outreach, Chanda Briggs, Claire Sharifi

Gleeson Library Faculty and Staff Research and Scholarship

According to a National Academy of Sciences working group investigating the mental health crises in higher education, student wellbeing is an issue that needs to be addressed at the campus level, not siloed in specified departments and units. University libraries can be an integral part of student wellness initiatives, and this poster presentation will present one academic library’s engagement in student wellness initiatives. This poster will:

• Highlight the ways campus partnerships facilitated streamlined library engagement in student wellness

• Identify student centric initiatives and acquisitions

• Identify funding sources used for those initiatives and acquisitions

• Discuss outcomes of library wellness initiatives.

The Myth Of Brokenness: Ableism And Anti-Ableism In The Field Of Speech-Language Pathology, Kieran Sutton

WWU Honors College Senior Projects

This Zine investigates the treatment of clients with disabilities within the field of speech-language pathology (SLP). Speech-language pathologists support individuals with communication challenges such as individuals recovering from a stroke, Autistic people, or people who stutter. Many SLP clients are disabled, therefore understanding ableism (discrimination against disabled people or people perceived as disabled) is essential to a successful and ethical SLP clinic. This Zine compiles and summarizes relevant sources relating to ableism and speech-language pathology. In addition, outreach was conducted to hold interviews with SLPs and SLP clients. The primary finding of this project is that ableism can be perpetuated …

Empty Coolers At Busy Dining Halls: Solutions To Gvsu’S Failure To Accommodate Students With Food Allergies, Elena Chiu

Honors Projects

GVSU is failing its students with food allergies by not providing the proper accommodations in Campus Dining facilities. This paper provides the experience of two students with food allergies' struggle to eat at GVSU, then takes a brief look into the Americans with Disabilities Act to show the issues and why they need to be fixed. This is followed by a comparison of GVSU's dining program and the highest ranked food allergy safety university, MSU. Using MSU's program as a framework, multiple solutions, such as creating stable meal options and displaying ingredients online, are provided to create a Campus Dining …

Percepciones De Las Tecnologías En Los Centros De Rehabilitación Y El Efecto En El Bienestar De Los Usuarios, Según Los Profesionales De La Salud En Arica, Chile, Liam Fleck

Independent Study Project (ISP) Collection

Physical disability is a prominent problem throughout Chile, affecting 17% of the total population (Ministerio de Desarrollo Social y Familia, 2022). In Chile, the health system has two main sectors: public and private. Each sector has different physical rehabilitation centers, which often have large differences in the resources available, such as medical technologies, which could possibly affect the quality of care their respective users receive. The objective of this study is to learn the perceptions of different medical professionals, such as kinesiologists, occupational therapists, and nurses, about the impact of these medical technologies and how it may affect their patients. …

The Single Dimensional Deviant: The Socialization We Receive Concerning Disabled Bodies, Coral Sky

Sociology Student Work Collection

The socialization process cultivates an environment where individuals can assimilate to the upheld societal beliefs and norms. When we look at this socialization process through the lens of disability, we will find a multifaceted set of beliefs that predict the treatment those with disabilities receive and the perpetuated perceptions concerning the disabled community. The media plays a sizeable role in shaping the beliefs, norms, and attitudes that wider society adheres to. Through critically analyzing the media consumed, it becomes intelligible that there is an inextricable link between disability and disadvantageous stereotypes. For instance, the films "Me Before You," directed by …

“You Take My Place; Let’S Switch!” What It Means To Be A Woman Powerlifter In Parasport, Aaron Carl S. Seechung, Maria Luisa M. Guinto

The Qualitative Report

Gendered disability in elite sport has emerged as a pertinent area of inquiry in sport psychology. However, qualitative research aimed at amplifying the voices of marginalized subgroups is notably sparse. Employing a phenomenological approach, we examined the lived experience of a Filipina para powerlifter, probing the intersection of gender, disability, and socioeconomic status in shaping how the participant made sense of life and identity, both within and outside the realm of sport. Three personal experiential themes were generated from the interview data's interpretative phenomenological analysis: “survival of the fittest,” “the voices in my head did not allow me to give …

Does What Doesn’T Kill You Make You Stronger? Examining The Effects Of Resilience And Functional Outcomes On Post-Traumatic Growth In Adults With Acquired Disability, Dominique Renee Ghirardi M.S.

Theses and Dissertations

Disabilities acquired in adulthood are often unexpected and disruptive because a loss of functioning can affect one’s ability to maintain employment, pursue their interests, and participate in social activity without assistance or accommodation. This is especially true for those who experience a life-altering injury or develop a chronic health condition between the ages of 18 and 64, as they likely have not planned for the financial and social adjustments that life with a disability involves. However, factors such as post-traumatic growth can reveal the extent to which someone experiences personal growth and improvement in the wake of a traumatic and …

Falling Into Action, Kent Hoffman

The Goose

Kent Hoffman explores human movement, his own mobility, and how it influences the way he moves on land. This personal essay, told through the lens of disability and accessibility, outlines his experience of living with Becker muscular dystrophy. Hoffman's approach to walking and mobility is heavily influenced by a fear of falling. As his mobility is changing, he's adapting and seeking out new ways to move on land. Different modes of mobility determine the way we experience personal movement, but accessibility determines who is welcome in spaces in the first place. Accessibility in the form of providing equal access is …

Indices Of Narrative Language Associated With Disability, Norah M Almubark, Gabriela Silva-Maceda, Matthew E Foster, Trina D Spencer

Student and Faculty Publications

Narratives skills are associated with long-term academic and social benefits. While students with disabilities often struggle to produce complete and complex narratives, it remains unclear which aspects of narrative language are most indicative of disability. In this study, we examined the association between a variety of narrative contents and form indices and disability. Methodology involved drawing 50 K-3 students with Individual Education Programs (IEP) and reported language concerns from a large diverse sample (n = 1074). Fifty typically developing (TD) students were matched to the former group using propensity score matching based on their age, gender, grade, mother’s education, …

Toward An Equity-Driven Conceptual Model Of Covid-19 Vaccine Decision-Making For People With Idd, Lydia Ocasio-Stoutenburg, Reese Triana, Shelly Baer, Jairo Arana, Ana C. Sale, Douglene Jackson, Michelle Schladant, Nastasia Boulos, Grace Dima, Jeffrey Brosco

Developmental Disabilities Network Journal

COVID-19 presented a public health emergency in the U.S., resulting in severe illness, hospitalizations, high mortality rates, and long-term adverse health care conditions. Several studies examined the disparities in transmission rates, barriers to care, and negative health outcomes for persons with disabilities, particularly people with intellectual and developmental disabilities (I/DD). While data revealed similar trends among Black, Hispanic or Latino/a/x/e, Native, Indigenous, and Asian people, outcomes are compounded for people of color with I/DD. Several historical, pervasive, systemic, structural, and attitudinal barriers have constrained healthcare access and adequate treatment, instigating feelings of distrust among those in systems of care. Although …

Health And Quality Of Life Among People With Intellectual And Developmental Disabilities And Direct Support Professionals During The Early United States Covid-19 Pandemic, Erin Vinoski Thomas, Bridgette M. Schram, Sombal Bari, Rachel Odunlami, Kristina M. Ormond, Sydnie E. Smith

Developmental Disabilities Network Journal

People with intellectual and developmental disabilities (IDD) and the direct support professionals (DSPs) who support them have faced unique risks to their health and quality of life (QoL) throughout the COVID-19 pandemic. We sought to understand how COVID-19 has influenced QoL and overall well-being among these populations. We conducted a Rapid Qualitative Inquiry study with a sample of people with IDD and DSPs (n = 18) to gain deeper perspectives about QoL and well-being during the pandemic. Participants described that changes in QoL were typically negative and influenced primarily by reduced socialization and impacts on health and independence; however, …

A Descriptive, Multi-Site Case Study To Discover The Inclusion Of Disability Competencies In Undergraduate Public Health Program Curricula In California-Based Public Universities, Jacqueline Suzanne Siukola Tompkins

Doctoral Dissertations and Projects

Nearly one in four adults and one in six children in the United States (U.S.) have a disability. Despite the evidence documenting health differences, public health professionals receive inconsistent or little-to-no disability education in graduate public health curricula. Undergraduate public health (UGPH) programs have an expanding role in building the future public health workforce, including the U.S. governmental public health workforce. However, the inclusion of disability-related content within UGPH program curricula is currently unknown. The purpose of this multi-site case study was to conduct preliminary research to describe how disability-related curricula are or can be included in UGPH program curricula …

On-Campus Mental Health Service Use Among College Students With Autism: A Case Study Applying The Andersen Behavioral Model Of Health Services Use, Estella C. Lilyquist

Electronic Theses and Dissertations

The unique set of impairments and limitations presented by students with autism spectrum disorder (ASD) make the accessing of campus-based nonacademic resources more difficult and complicated than their typically developed peers. Each year, the rate of students entering college with disabilities continues to grow, but their mental well-being is relatively poor. The purpose of this qualitative case study was to apply the conceptual framework of the Andersen behavioral model of health services use (ABMHSU) to the experiences of college students with ASD to understand and predict their utilization of campus-provided mental health resources. The participants were seven college students with …

Improving Communication Access With Deaf People Through Nursing Simulation: A Cross-Disciplinary Collaboration, Jamie L. Mccartney Ph.D., Tracy Gidden, Jennifer Biggs, Kathy Geething, Karl Kosko Ph.D.

Journal of Gender, Ethnic, and Cross-Cultural Studies

Baccalaureate nursing and sign language interpreting students participated in a pediatric discharge simulation with a deaf person playing the role of the baby’s parent. At the conclusion of the simulation, participants were emailed a consent letter and a link to a 17-item questionnaire developed by the authors. Responses were analyzed both quantitatively and qualitatively, whereby nonparametric statistics were calculated to examine Likert-scale items. A Mann-Whitney test statistic was calculated, instead of an independent samples t-test, given the smaller sample in the current study (n = 26). A question was posed to participants that evaluated their self-perception of the effectiveness of …

The Meaning Of A Choice, Julie-Louise Zeitoun

Masters Theses

If you are disabled or disadvantaged, you will be dismissed and stifled. Few people will actively care for your struggles. As a person with autism, I was deeply fearful of the persecution I had faced throughout my life; it was a fear that followed me with terrifying determination. I desperately wanted to blend into society. So I designed myself to be devoid of any weakness, and productivity was the way I chose to conceal any difficulties I faced. It was a way to measure my success — a way to measure my normalcy.

Standard medical textiles are generic, cumbersome devices. …

Emerging As A Scholar-Advocate Amid The Covid-19 Pandemic, Isabelle Hoagland

International Journal on Responsibility

No abstract provided.

Special Education: Inclusion And Exclusion In The K-12 U.S. Educational System, Erik Brault

Dissertations

The U.S. Department of Education defines students with disabilities as those having a physical or mental impairment that substantially limits one or more life activities. Previous research has found that students with disabilities placed in inclusive environments perform better academically and socially compared to students with disabilities who are placed in segregated environments. Yet, we know that inclusion in K-12 general education classrooms across the country is not consistently implemented.

The purpose of this study was to better understand the effects, if any, of general education high school teachers’ personal and professional experiences and knowledge on their attitudes toward educating …

Sexual Activity And Intimacy Within Occupational Therapy Practice, Anya Levanduski, Susan Macdermott

Spring 2023 Virtual OTD Capstone Symposium

Sexual activity is often the forgotten ADL, that is underdressed in practice, and not spoken about in academia. This presentation aims to explore the role of occupational therapy addressing sexuality and intimacy following the onset of long term physical or neurological disabilities. This project outlines the role of OT in emerging practice in advocating for the development of a referral pathway specific for sexual activity and intimacy, and OT within an emerging setting.

Unheard Victims Of Covid-19: The Impact Of Mask Use On Communication For D/Deaf And Hard Of Hearing People, Kym Couch

Boise State University Theses and Dissertations

Masks are effective at preventing the spread of COVID-19, but they also impact communication for d/Deaf and hard of hearing (DHH) people. This research is a mixed methods approach to analyzing the impact that the widespread use of masks in response to COVID-19 has had on DHH people. Building on the allowance for nuance and paradox presented by Deborah Stone in her book Policy Paradox: The Art of Political Decision Making (2012) and holding to the Social Model of Disability, this research involves the qualitative and quantitative analysis of a survey of one-hundred and ninety-eight (198) DHH people, interviews with …

Circumventing Ableism: A Grounded Theory Study Exploring Caregiver Strategies To Promote A Positive Identity, June Furr

All Dissertations

This qualitative research study explores how caregivers and persons with disabilities navigate the rhetoric of disability and caregiving through the interviews of fifteen caregivers and fifteen persons with disabilities using the lens of grounded theory and Burke’s (1952) dramatistic pentad. Significant findings describe how focused disability description can circumvent ableism when rhetorical resources that assist caregivers and persons with disabilities to navigate the rhetoric in disability descriptions are provided. Disability description theory includes the three stages that define, collaborate and revise, and practice and apply a disability description. This qualitative research offers an introduction into the phenomenon of …

Hiv Stalks Bodies Like Mine: An Autoethnography Of Self-Disclosure, Stigmatized Identity, And (In)Visibility In Queer Lived Experience, Steven Ryder

USF Tampa Graduate Theses and Dissertations

This dissertation examines self-disclosure of Human Immunodeficiency Virus (HIV) status within the context of communication between long-standing friends. For the purposes of my study, I define this type of friendship as those who have known me for at least two years and with whom I communicate regularly. These are friends who tend to know a variety of personal details about me, ranging from superficial to private and trivial to essential. I use autoethnography to ground the study in my lived experience. By doing so, I present intimate accounts of my communication with others across my lifespan to function as background …

Beyond Representation: Partnerships, Intersectionality, And The Centering Of The Disability, Family, And Community Lived Experience, Lydia Ocasio-Stoutenburg, Julieta Hernandez, Douglene Jackson

Developmental Disabilities Network Journal

The COVID-19 pandemic introduced a public health crisis, overlaying the disparities in healthcare access, treatment, and outcomes that were already prevalent in Black and Latino communities across the U.S., particularly persons with disabilities (PWD) at the intersection of racial and ethnic identities. In addition, the concurrent social and political climate mirrored the pandemic in its action of magnifying existing systemic inequities for historically marginalized populations, calling for institutions to galvanize efforts toward diversity, equity, and inclusion (EDI). Our University Center on Excellence in Disabilities (UCEDD) serves a range of families whose children have disabilities or complex health care needs and …

Paths To Equity: Parents In Partnership With Ucedds Fostering Black Family Advocacy For Children On The Autism Spectrum, Elizabeth H. Morgan, Benita D. Shaw, Ida Winters, Chiffon King, Jazmin Burns, Aubyn Stahmer, Gail Chodron

Developmental Disabilities Network Journal

Racism and ableism have doubly affected Black families of children with developmental disabilities in their interactions with disability systems of supports and services (e.g., early intervention, mental health, education, medical systems). On average, Black autistic children are diagnosed three years later and are up to three times more likely to be misdiagnosed than their non-Hispanic White peers. Qualitative research provides evidence that systemic oppression, often attributed to intersectionality, can cause circumstances where Black disabled youth are doubly marginalized by policy and practice that perpetuates inequality. School discipline policies that criminalize Black students and inadequate medical assessments that improperly support Black …

A Grounded Theory Of Counselors’ Post-Graduation Development Of Disability Counseling Effectiveness, Michele Rivas, Nicole R. Hill

Journal of Counselor Preparation and Supervision

Many persons with disabilities engage in counseling services in a variety of settings. However, the development trajectories of counselors who seek to compensate for the lack of training and advance their post-graduation skillset to work effectively with clients with disabilities has not been explored. This grounded theory study illuminated several dimensions involved in twenty-one Licensed Professional Counselors’ post-graduation development of disability counseling effectiveness. In this study, counseling effectiveness refers to self-perceived improved skillset rather than a benchmark (i.e., competence). The core category, Evolving Commitments, was common to all participants’ trajectories when developing disability counseling effectiveness. The other categories (causal conditions, …

Accessibility, Acceptance, And Equity: Examining Disability-Linked Health Disparities As Nursing And Communication Scholars, Sarah Parsloe, Stacey M. Carroll

Nursing Communication

People with disabilities (PWD) experience health disparities, often related to contextual factors beyond the physical differences in body structure and function. The purpose of this article was to develop a research agenda for nursing and communication scholars that explores how developing accessible and empowering communication environments in healthcare contexts might mitigate disability-linked health disparities. We focused on two broad research objectives: developing both accessible communication environments and empowering communication environments in healthcare settings. Elements proposed as comprising accessible communication environments were: making health literacy accessible, addressing complex communication needs, and communicating the embodied experience of disability. Empowering communication environments were …

Examining The Lived Experiences Of Families With Children With Developmental Disabilities Participating In Recreational Dance Programs, Isabella Seguin

Theses and Dissertations (Comprehensive)

Objective

Families with children with developmental disabilities (DDs) experience effects on family functioning and will often turn to physical activity (e.g., dance) to mitigate these effects. This research examines the lived experiences of families with children with DDs participating in recreational dance programs to understand the myriad of effects on all participants: children with DDs, families, and dance instructors.

Methods

In order to fully understand the lived experiences of participants, phenomenology was used as the theoretical orientation to guide this research. Each case (5 cases, N=19) consisted of a primary parent, a child with a developmental disability, sibling(s) (if applicable), …

Tabletop Role-Playing Games As Autism Psychotherapy: A Video-Cued Multivocal Clinical Ethnography, Adina Rubin-Budick

Electronic Theses and Dissertations

This qualitative study is a video-cued multivocal ethnography that analyzed the clinical reasoning and perspectives of psychotherapists using Tabletop Role-Playing Games (TRPG) as a therapeutic treatment for children and adolescents diagnosed with Autism Spectrum conditions. With a growing number of TRPG therapists nationwide using this modality in their clinical practices, this study aimed to develop a clearer understanding of the ways in which their therapeutic orientation, gaming practices, and knowledge of Autism Spectrum Conditions informs their use of TRPG psychotherapy with Autistic clients.

Research that focuses on clinical decision-making and the knowledge that informs clinical interventions and technique generally refers …