Medicine and Health Sciences Commons^™

Parents' Experiences Of Children With A Rare Disease Attending A Mainstream School: Australia, Mandie Foster, Esther Adama, Diana Arabiat, Kevin Runions, Rena Vithiatharan, Maggie Zgambo, Ashleigh Lin

Research outputs 2022 to 2026

Purpose:

To explore the perceptions of parents who had a child or adolescent (6-18 years) diagnosed with a rare disease who attended a mainstream school in Western Australia.

Design and methods:

A cross-sectional online survey was conducted with 41 parents of children with a rare disease. Here we report the findings of 14 open-ended questions on their experience of illness-related factors and impact on school-related social activities, such as sports, school camps and leadership roles whilst their child with a rare disease attended a mainstream school in Australia. Responses were analysed using an inductive thematic content approach.

Results:

We identified …

Evaluation Of Assessment In The Context Of Work-Based Learning: Qualitative Perspectives Of New Graduates, Claire Palermo, Alexandra Chung, Eleanor Beck, Susan Ash, Sandra Capra, Helen Truby, Brian Jolly

Faculty of Science, Medicine and Health - Papers: part A

Aim Evaluation or assessment of competence is an important step to ensure the safety and efficacy of health professionals, including dietitians. Most competency-based assessment studies are focused on valid and reliable methods of assessment for the preparation of entry-level dietitians, few papers have explored student dietitians' perceptions of these evaluations. The present study aimed to explore the perceptions of recent graduates from accredited nutrition and dietetics training programs in Australia. It also aimed to establish the relevance of competency-based assessment to adequately prepare them for entry-level work roles. Methods A purposive sample of newly graduated dietitians with a range of …

Education Improves Bra Knowledge And Fit, And Level Of Breast Support In Adolesent Female Athletes: A Cluster-Randomised Trial, Deirdre Mcghee, Julie R. Steele, Bridget J. Munro

Faculty of Health and Behavioural Sciences - Papers (Archive)

Questions: Can an education booklet handed out by a physiotherapist improve bra knowledge and fit, and level of breast support, of bras worn by adolescent female athletes? Design: Cluster-randomised trial with intention-to-treat analysis. Participants: 115 adolescent females from four regional sporting academies aged 16 yr (SD 1) and with an average Australian bra size of 12B. Intervention: The experimental group received an education booklet on bra fit and breast support from a sports physiotherapist. The control group received no intervention. Outcome measures: The primary outcome was bra knowledge measured by a questionnaire. Secondary outcomes were a pass on the Bra …

Transforming Higher Education Through Learning-Oriented Assessment, Mike Keppell, Dominique Parrish

Faculty of Science, Medicine and Health - Papers: part A

Outcomes By the completion of the workshop participants will be able to: • Recognise the distinct characteristics of a learning-oriented assessment task • Determine the appropriateness of learning-oriented assessment for their own context • Design a learning-oriented assessment task for a subject they are currently teaching • Examine a model for transforming and leading change in higher education through learning-oriented assessment • Explore potential avenues for transforming and leading change in assessment in the university setting.