Medicine and Health Sciences Commons^™

Parents' Experiences Of Children With A Rare Disease Attending A Mainstream School: Australia, Mandie Foster, Esther Adama, Diana Arabiat, Kevin Runions, Rena Vithiatharan, Maggie Zgambo, Ashleigh Lin

Research outputs 2022 to 2026

Purpose:

To explore the perceptions of parents who had a child or adolescent (6-18 years) diagnosed with a rare disease who attended a mainstream school in Western Australia.

Design and methods:

A cross-sectional online survey was conducted with 41 parents of children with a rare disease. Here we report the findings of 14 open-ended questions on their experience of illness-related factors and impact on school-related social activities, such as sports, school camps and leadership roles whilst their child with a rare disease attended a mainstream school in Australia. Responses were analysed using an inductive thematic content approach.

Results:

We identified …

Patients’ Experiences Of A Communication Enhanced Environment Model On An Acute/Slow Stream Rehabilitation And A Rehabilitation Ward Following Stroke: A Qualitative Description Approach, Sarah D'Souza, Deborah J. Hersh, Erin Godecke, Natalie Ciccone, Heidi Janssen, Elizabeth Armstrong

Research outputs 2014 to 2021

Background

Patients in hospital following stroke express a desire to continue therapy tasks outside of treatment activities. However, they commonly describe experiences of boredom and inactivity. An enriched environment aims to provide opportunities for physical, cognitive and social activity and informed the development of a Communication Enhanced Environment (CEE) model to promote patient engagement in language activities.

Purpose

Explore patient perceptions of a CEE model, and barriers and facilitators to engagement in the model.

Methods

A qualitative description study from a larger project that implemented a CEE model into acute and rehabilitation private hospital wards in Western Australia. Semi-structured interviews …

“Coronavirus Changed The Rules On Everything”: Parent Perspectives On How The Covid‐19 Pandemic Influenced Family Routines, Relationships And Technology Use In Families With Infants, Rebecca Hood, Juliana Zabatiero, Desiree Silva, Stephen R. Zubrick, Leon Straker

Research outputs 2014 to 2021

This study explores how the first wave of the COVID‐19 pandemic influenced family routines, relationships and technology use (smartphones and tablet computers) among families with infants. Infancy is known to be an important period for attachment security and future child development, and a time of being susceptible to changes within and outside of the family unit. A qualitative design using convenience sampling was employed. A total of 30 mothers in Perth, Western Australia participated in semi‐structured interviews by audio or video call. All mothers were parents of infants aged 9 to 15 months old. Interviews were audio‐recorded and transcribed, and …

Drumbeat© For Arthritis “ A Shared Purpose” Rather Than A “Lonely Struggle”, Jannette Warhurst

Theses: Doctorates and Masters

Australia is regarded as a healthy nation, with life expectancy one of the highest in the world. Yet the latest National Health Survey tells a very different story. Almost 50% of Australians are now living with one or more chronic conditions, with arthritis and other musculoskeletal (MSK) conditions representing the most expensive chronic disease group in Australia. As the leading cause of chronic pain and second most common cause of disability and early retirement due to ill health in Australia, Arthritis is costing the economy over $7 billion a year, in addition to over $1.1 billion in extra welfare costs …

Can Instagram Be Used To Deliver An Evidence-Based Exercise Program For Young Women A Process Evaluation, Rachel G. Curtis, Jillian C. Ryan, Sarah M. Edney, Carol A. Maher

Research outputs 2014 to 2021

Background Instagram provides an opportunity to deliver low cost, accessible and appealing physical activity content. This study evaluated the feasibility of delivering an exercise program for young women using Instagram. Methods A single-group pre- and post-intervention trial examined the feasibility and preliminary efficacy of a 12-week Instagram-delivered program with young inactive women (n = 16; M = 23 years), which prescribed running and body weight exercises to complete three times per week. Daily Instagram posts delivered the exercises, video demonstrations and motivational content. Feasibility was evaluated by examining exposure (Instagram posts viewed per week), engagement (likes, comments and tags on …

Anxious Or Empowered? A Cross-Sectional Study Exploring How Wearable Activity Trackers Make Their Owners Feel, Jillian Ryan, Sarah Edney, Carol Maher

Research outputs 2014 to 2021

Background The market for wearable activity trackers has grown prolifically in recent years, with increasing numbers of consumers using them to track, measure, and ideally improve their health and wellbeing. Empirical evidence tends to support wearables as valid, reliable, and effective health behaviour change tools, however little research has been conducted to understand experiential aspects of the devices, particularly thier effects on users’ psychological wellbeing and affect. This study addresses this literature gap by exploring wearable users’ affective responses to their devices and how these relate to personality traits and individual differences. Methods Data were collected from adult wearable users …

Users' Experiences Of Wearable Activity Trackers: A Cross-Sectional Study, Carol Maher, Jillian Ryan, Christina Ambrosi, Sarah Edney

Research outputs 2014 to 2021

Background

Wearable activity trackers offer considerable promise for helping users to adopt healthier lifestyles. This study aimed to explore users’ experience of activity trackers, including usage patterns, sharing of data to social media, perceived behaviour change (physical activity, diet and sleep), and technical issues/barriers to use.

Methods

A cross-sectional online survey was developed and administered to Australian adults who were current or former activity tracker users. Results were analysed descriptively, with differences between current and former users and wearable brands explored using independent samples t-tests, Mann-Whitney, and chi square tests.

Results

Participants included 200 current and 37 former activity tracker …

Communication: How Do Females With Rett Syndrome Perform This Activity And What Factors Influence Performance?, Anna Urbanowicz

Theses: Doctorates and Masters

Background Rett syndrome is a neurodevelopmental disorder primarily caused by mutations in the X-linked methyl-Cp2G-binding protein 2 (MECP2) gene. The disorder affects approximately 1 in 9000 females and is usually associated with language, physical and intellectual impairments, each of which contributes to difficulties with communication. In Rett syndrome, eye gaze is considered a common form of communication and conventional methods, such as talking and gestures, less common. Females appear to use these forms of communication to serve a number of functions including choice making, requesting, social convention, bringing attention to themselves, and to reject, comment and answer. However, the literature …

The Creation And Validation Of A Youth Fundamental Hitting Scale: The Assessment Of Youth Baseball And Softball Hitting Fundamentals And The Perceived Psychological Barriers To Hitting A Pitched Ball, Andrew Walsh

Theses: Doctorates and Masters

The primary purpose of the thesis was to create a hitting scale for youth players that assess the fundamentals of a baseball swing. Secondly, the purpose of this thesis was to determine the interactions between the changes in anxiety, perceived competence and fear variables have with actual hitting competence over a four week sport specific training program.