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Measuring Fatigue In Adolescents And Young Adults With Cerebral Palsy, Laura K. Brunton
Measuring Fatigue In Adolescents And Young Adults With Cerebral Palsy, Laura K. Brunton
Electronic Thesis and Dissertation Repository
Fatigue is a significant issue and has been estimated to affect between 30-50% of individuals with cerebral palsy (CP) in various studies; however, there is no validated measure of fatigue for this population. A systematic review revealed no one single measure with adequate psychometric properties for use with individuals with CP. As a result a new tool was created: the Fatigue Impact and Severity Self-Assessment (FISSA). Interviews were conducted with youth and young adults with CP to understand the bodily experience of living with CP and as a client-centered approach to item creation for the FISSA. Focus groups with healthcare …