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Full-Text Articles in Medicine and Health Sciences
Create Workshop 2014: Leveraging Mobile Technology And Social Media In Behavioral Research, Andre M. Müller
Create Workshop 2014: Leveraging Mobile Technology And Social Media In Behavioral Research, Andre M. Müller
Andre M Müller
The 2014 CREATE workshop brought together some forty young health behavior researchers from thirteen different countries, all sharing an interest in mobile technology and social media research. The three- day workshop was held in Innsbruck, Austria,...
Practicing Patienthood Online: Social Media, Chronic Illness, And Lay Expertise, Collette Sosnowy
Practicing Patienthood Online: Social Media, Chronic Illness, And Lay Expertise, Collette Sosnowy
Publications and Research
The use of digital technologies and social media by people with serious illness to find, share, and create health information is much celebrated but rarely critiqued. Proponents laud “Health 2.0” as transforming health care practice and empowering patients. Critics, however, argue that a discourse of developing lay expertise online masks the disciplinary practices of the neoliberal state’s emphasis on individual responsibility. Notably, the perspectives of people who are engaging with social media related to their health and illness are under-represented in this debate. This research examines the experiences and perspectives of women who blog about their lives with Multiple Sclerosis …
The Lived Experience Of Young Adult Burn Survivors' Use Of Social Media, Marie S. Giordano
The Lived Experience Of Young Adult Burn Survivors' Use Of Social Media, Marie S. Giordano
Dissertations, Theses, and Capstone Projects
The purpose of this phenomenological study was to illuminate the meaning of social media use by young adult burn survivors. Five females and four males, aged 20-25, who sustained burns > 25%, were interviewed. Van Manen's (1999) phenomenological methodology provided the framework for this study. The meaning of the context of the lived experience is described in the five essential themes of identity, connectivity, social support, making meaning, and privacy. These young adult burn survivors, having experienced the traumatic effects of a burn during adolescence, use social media as a way of expressing their identity, while being cautious about privacy. Part …