Open Access. Powered by Scholars. Published by Universities.®
- Keyword
-
- Advance care planning (1)
- Care partner (1)
- Communication (1)
- End-of-life (1)
- Health equity (1)
-
- Health-related social needs (1)
- Healthcare (1)
- Measurement (1)
- Partnership (1)
- Patient and Family Partnership (and Engagement) (1)
- Patient and family engagement (1)
- Patient experience (1)
- Patient family advisor (1)
- Patient perspectives (1)
- Patient- and family-centered care (1)
- Perceptions (1)
- Person-Centeredness (1)
- Quality of care (1)
- Quality of life (1)
- Serious illness (1)
- Social care (1)
Articles 1 - 2 of 2
Full-Text Articles in Medicine and Health Sciences
Meaningful Engagement Of Patients And Families In A Complex Trial Of Advance Care Planning In Primary Care, Angela K. Combe, Deborah L. Dokken, Mary M. Minniti, Annette M. Totten
Meaningful Engagement Of Patients And Families In A Complex Trial Of Advance Care Planning In Primary Care, Angela K. Combe, Deborah L. Dokken, Mary M. Minniti, Annette M. Totten
Patient Experience Journal
Engagement of Patient and Family Advisors (PFAs) is increasingly recommended as best practice in research. During the design and conduct of a large trial of advance care planning (ACP) in primary care, we expanded on the funder’s (Patient-Centered Outcomes Research Institute®) requirement for an engagement plan and sought to develop an innovative approach to fostering and sustaining meaningful engagement of PFAs throughout all phases of the trial. Structures were developed that integrated PFAs into planning and provided the foundation for their ongoing participation. A continuous quality improvement approach became the framework for ongoing engagement. This involved setting goals; collecting data …
Patient Perspectives Of Health-Related Social Needs Screening In An Urban Academic Adult Primary Care Practice, Antony Nguyen, Joselvin Galeas, Jane Jih
Patient Perspectives Of Health-Related Social Needs Screening In An Urban Academic Adult Primary Care Practice, Antony Nguyen, Joselvin Galeas, Jane Jih
Patient Experience Journal
Health-related social needs (HRSNs) affect health outcomes and healthcare utilization. Patients’ perspectives on the incorporation of HRSN screening in primary care settings is limited. We sought to explore adult primary care patient perspectives of HRSN screening from optional patient-provided free-text comments as part of a pilot self-administered HRSN screening survey on seven domains of HRSNs from the Accountable Health Communities HRSNs Screening Tool. The survey was available in English, Chinese or Spanish with a section titled “Comments” that invited patient respondents to provide anonymous free-text responses. We performed a thematic analysis of the written patient comments. Of the 679 participants …