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Full-Text Articles in Medicine and Health Sciences
Giving Voice To Adults Living With Cystic Fibrosis: A Phenomenological Study, Brandon M. Varilek
Giving Voice To Adults Living With Cystic Fibrosis: A Phenomenological Study, Brandon M. Varilek
Electronic Theses and Dissertations
Cystic fibrosis is one of the most difficult chronic diseases to manage long-term because of the numerous challenges faced on a day-to-day basis. Historically, these challenges have primarily been studied using quantitative methods given the desire to prolong life. However, simply increasing the quantity of life does not mean that quality of life will improve. It is entirely possible that new treatments may worsen perceived quality of life. What is missing from the current research is the person’s voice regarding the experience of living with cystic fibrosis, especially as they continue to age. The primary purpose of this study was …
Adults With Cystic Fibrosis: Self-Management And Health Outcomes, Amanda Rose Lambie
Adults With Cystic Fibrosis: Self-Management And Health Outcomes, Amanda Rose Lambie
Theses and Dissertations
This dissertation is comprised of three manuscripts for publication reporting on adults living with cystic fibrosis, self-management behaviors and health outcomes. Chapter I explores what is known about adults living with cystic fibrosis (CF) and the factors impacting their self-management, including the complexities of a health maintenance regime required for survival while integrating and balancing the realities of adulthood. The review of literature provides direction for future research and implications for adult-focused CF studies. Chapter II is a manuscript describing the characteristics of prognostic survival models utilized in adult CF research and provides an overview of their development, validation, predictive …
Gender-Specific Facilitators And Barriers To Health-Related Quality Of Life In Adults With Cystic Fibrosis: A Mixed Methods Study, Leigh Ann Bray
Gender-Specific Facilitators And Barriers To Health-Related Quality Of Life In Adults With Cystic Fibrosis: A Mixed Methods Study, Leigh Ann Bray
All ETDs from UAB
BACKGROUND: With the life expectancy of individuals with cystic fibrosis (CF) doubling over the last two decades, it is critical that healthcare providers address both quantity and quality of life. Health-related quality of life (HRQoL) encompasses physical, social, psychological, and functional aspects of daily living and how CF impacts each one. Women with CF consistently report having an overall poorer quality of life across international studies, but the cause of the gender difference is unknown. The purpose of this study was to explore gender differences in HRQoL and then build upon those results to better understand gender-specific facilitators and barriers …