Medicine and Health Sciences Commons^™

Genomics And Autism Spectrum Disorder, Norah Johnson

Norah L Johnson

Purpose: To present the current state of the evidence regarding translation of genetics (the study of single genes) and genomics (the study of all genes and gene-gene or gene-environment interactions) into health care of children with autism spectrum disorder (ASD).

Methods: This article presents an overview of ASD as an international health challenge, the emerging science related to broad diagnostic criteria, and the role of the nurse in research, education, and practice.

Findings: Much progress is being made in the understanding of genetics and genomics of ASD. Environmental factors are thought to contribute to the risk of developing ASD by …

Children With Developmental Disabilities At A Pediatric Hospital: Staff Education To Prevent And Manage Challenging Behaviors, Norah Johnson, Joel Lashley, Alice Stoneck, Annette Bonjour

Norah L Johnson

Children with developmental disabilities may get frustrated in unpredictable hospital environments. Frustration may escalate to challenging behaviors, which are a safety concern and may contribute to staff and patient injuries, use of restraints, and procedure delay or cancelations. The purpose of this article was to describe a pilot staff education program on preventing and managing challenging behaviors of children with developmental disabilities at a pediatric hospital. The 2-hour-long education (1 hour on-line and 1 hour instructor led) content focused on family-centered care and communication skills, including verbal judo™ modified for use in the health care setting. Participants in the instructor-led …

Social Script Ipad Application Versus Usual Care Before Undergoing Medical Imaging: Two Case Studies Of Children With Autism, Norah Johnson, Octavia Bree

Norah L Johnson

Autism spectrum disorders (ASDs) are neurodevelopmental disorders of socialization, communication, and repetitive behaviors. Children with ASD have underlying anxiety leading to challenging behaviors in unfamiliar situations. The anxiety impacts timely completion of an imaging procedure. The purpose of the case study was to describe the process of the social script intervention delivered using the iPad application on parent and child anxiety, child behaviors, and imaging procedure length between two parent and child dyads. The case study of two parent-child dyads demonstrated the process for comparing the social script intervention iPad app for preparing for imaging versus usual care. Parent anxiety …

Understanding Relationships In Health Related Quality Of Life For Parents Of Children With Autism Spectrum Disorder, Norah Louise Johnson

Norah L Johnson

Nurses encounter many parents of children with autism spectrum disorder (ASD). Both parents are under stress that ultimately impacts their health related quality of life (HRQL). Few studies assess the mediators of parenting stress on HRQL for both parents. This study explored the relationship of parenting stress, family functioning and HRQL for parenting dyads of children with ASD. Lazarus and Folkman's (1984) Transactional Model of Stress and Coping and Lakey and Cohen's (2000) Social Support Theory framed the study. Implementing a cross sectional, descriptive design, 387 parents (n=64 dyads) of ASD-affected children, from 46 states, completed web-based surveys. Demographics, the …

Attributed Meanings And Strategies To Prevent Challenging Behaviors Of Hospitalized Children With Autism: Two Perspectives, Norah Johnson, Abir Bekhet, Karen Robinson, Dana Rodriguez

Norah L Johnson

Introduction

Understanding is limited of the meaning attributed to behaviors of children with autism spectrum disorder and strategies used to prevent challenging behaviors in the context of hospitalization.

Methods

This qualitative study consisted of two focus groups (n = 10; five mothers and five health care providers [HCPs]). Transcripts were analyzed using the qualitative method of narrative inquiry.

Results

The meaning attributed to behaviors by the mothers and the HCPs differed. The mothers attributed behaviors to the child's communication of frustration, hyperactivity, and self-calming. The HCPs attributed challenging behaviors to self-stimulation and child aggression. Strategies to prevent behaviors also …