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Parents’ Perspectives On Caring For Children After Solid Organ Transplant, Stacee M. Lerret, Norah L. Johnson, Kristin Haglund
Parents’ Perspectives On Caring For Children After Solid Organ Transplant, Stacee M. Lerret, Norah L. Johnson, Kristin Haglund
College of Nursing Faculty Research and Publications
Purpose
To explore parents’ experiences of the transition from hospital to home and complex chronic illness management following their children's solid organ transplant (SOT).
Design and Methods
Qualitative component of a larger mixed methods longitudinal study. Parents of SOT recipients were interviewed three times following hospital discharge from five major pediatric transplant hospitals in the United States.
Results
Analysis of parent interviews (N = 48) resulted in three themes that characterized the phases of transition to home and complex chronic illness care. Three themes, corresponding to the three time periods of data collection, included “getting back to normal” at 3 …