Medicine and Health Sciences Commons^™

Social And Psychological Factors Associated With Health Care Transition For Young Adults Living With Sickle Cell Disease, Dora L. Clayton-Jones, Nadine Matthie, Marsha Treadwell, Joshua Field, Amy Mager, Rachel Sawdy, Safiya George Dalmida, Cynthia Leonard, Kathryn L. Koch, Kristin Haglund

College of Nursing Faculty Research and Publications

Introduction: Due to advances in disease management, mortality rates in children with sickle cell disease (SCD) have decreased. However, mortality rates for young adults (YA) increased, and understanding of social and psychological factors is critical. The aim of this study was to explore factors associated with health care transition experiences for YA with SCD.

Method: This was a qualitative descriptive study. A 45-minute semistructured interview was conducted with 13 YA (M = 21.5 years, SD = 1.73).

Results: Results suggest that social and psychological factors and self-management experiences influence health care transition. Eight themes emerged: “need for accessible support”; “early …

Use Of The Spiritual Development Framework In Conducting Spirituality And Health Research With Adolescents, Dora L. Clayton-Jones, Kristin Haglund, Jame Schaefer, Harold C. Koenig, Safiya George Dalmida

College of Nursing Faculty Research and Publications

Spirituality is considered a universal phenomenon, but research addressing the spiritual needs of adolescents in the context of health and illness is limited. The aim of this article is to provide a description of how the spiritual development framework (SDF) was used in conducting research with adolescents. An exemplar of a qualitative descriptive study is provided to demonstrate applicability of the SDF. The SDF was used as a guiding theoretical framework in conducting research with adolescents living with sickle cell disease. The SDF is culturally applicable and methodologically appropriate. Additional research applying the SDF is warranted.