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Medicine and Health Sciences Commons

Open Access. Powered by Scholars. Published by Universities.®

Nursing

University of Missouri, St. Louis

Dissertations

2009

Health Care

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Full-Text Articles in Medicine and Health Sciences

Effect Of The Interactive Computerized Information For Surrogates Icu Program In Increasing The Understanding Of Informed Consent And The Knowledge Of Genetic And Genomics Research, Ann Kathleen Shelton Dec 2009

Effect Of The Interactive Computerized Information For Surrogates Icu Program In Increasing The Understanding Of Informed Consent And The Knowledge Of Genetic And Genomics Research, Ann Kathleen Shelton

Dissertations

Background: A significant and growing number of clinical research studies conducted in Intensive Care Units (ICUs) today have some genetic and genomics component. Surrogates approached to authorize participation in clinical research for a loved-one in the ICU may not be prepared to make informed decisions. A model of stewardship of genetic and genomics research was used as a framework for this study. Purpose: The purpose of this investigation was to examine the effect of an educational program, the Interactive Computerized Information for Surrogates (ICIS) ICU Education Program in assisting surrogates to (1) increase their understanding of the process of informed …