Medicine and Health Sciences Commons^™

Care After Lymphoma (Caly) Trial: A Phase Ii Pilot Pragmatic Randomised Controlled Trial Of A Nurse-Led Model Of Survivorship Care, Karen Taylor, Paola Chivers, Caroline Bulsara, David Joske, Max Bulsara, Leanne Monterosso

Nursing Papers and Journal Articles

Purpose: Post-treatment follow-up for lymphoma potentially fails to address the supportive care needs of survivors. A nurse-led lymphoma survivorship model of care was developed and tested in a phase II pilot pragmatic randomised controlled trial (RCT). The intervention comprised three face-to-face appointments, delivery of tailored resources and an individualised survivorship care plan and treatment summary (SCPTS), shared with the general practitioner (GP).

Method: Three months’ post-treatment completion, eligible lymphoma patients were randomised 1:1 to usual care (control) or usual care plus intervention. Survivorship unmet needs (Short-Form Survivor Unmet Needs Survey), distress (Depression Anxiety Stress Scale 21), adjustment to cancer (Mini-Mental …

Test-Retest Reliability Of The Short Form Survivor Unmet Needs Survey, Karen Taylor, Max Bulsara, Leanne Monterosso

Nursing Papers and Journal Articles

Objective: Reliable and valid needs assessment measures are important assessment tools in cancer survivorship care. A new 30‑item short‑form version of the Survivor Unmet Needs Survey (SF‑SUNS) was developed and validated with cancer survivors, including hematology cancer survivors; however, test–retest reliability has not been established. The objective of this study was to assess the test–retest reliability of the SF‑SUNS with a cohort of lymphoma survivors (n = 40).

Methods: Test–retest reliability of the SF‑SUNS was conducted at two time points: baseline (time 1) and 5 days later (time 2). Test–retest data were collected from lymphoma cancer survivors (n …

A Qualitative Study Of The Post-Treatment Experiences And Support Needs Of Survivors Of Lymphoma, Leanne Monterosso, Karen Taylor, Violet Platt, Elizabeth Lobb, Meinir Krishnasamy, Toni Musiello, Caroline Bulsara, David Joske

Nursing Papers and Journal Articles

Purpose: To explore the post-treatment experiences and preferences for follow-up support of lymphoma survivors.

Methods: Two focus groups were conducted with 17 participants to explore informational, psychological, emotional, social, practical and physical needs, 6-30 months post-treatment for lymphoma. Perceptions regarding a potential model of survivorship care were also elicited.

Results: Thematic content analysis revealed five key themes: Information; Loss and uncertainty; Family, support and post-treatment experience; Transition, connectivity and normalcy, and Person-centred posttreatment care. Participants described a sense of loss as they transitioned away from regular interaction with the hospital at the end of treatment, but also talked about the …

Protocol For Care After Lymphoma (Caly) Trial: A Phase Ii Pilot Randomised Controlled Trial Of A Lymphoma Nurse-Led Model Of Survivorship Care, K Taylor, D Joske, M Bulsara, C Bulsara, L Monterosso

Nursing Papers and Journal Articles

Introduction: Lymphoma is the sixth most common cancer diagnosed in Australia and internationally. Owing to the aggressive nature of the disease and intensity of treatment, survivors face long-term effects that impact on quality of life. Current models of follow-up post-treatment fail to address these complex issues. Given that 74% of patients with lymphoma cancer now survive 5 years beyond diagnosis and treatment, it is important to address this gap in care.

Aim: To determine self-reported informational and practical needs, anxiety, depression, stress, coping and empowerment at baseline, 3 and 6 months.

Methods and analysis: A pilot randomised controlled trial will …