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Full-Text Articles in Medicine and Health Sciences
Sources Of Uncertainty And Their Association With Medical Decision Making: Exploring Mechanisms In Fanconi Anemia, Jada G. Hamilton, Sadie P. Hutson, Richard P. Moser, Sarah C. Kobrin, Amy E. Frohnmaer, Blanche P. Alter, Paul K.J. Han
Sources Of Uncertainty And Their Association With Medical Decision Making: Exploring Mechanisms In Fanconi Anemia, Jada G. Hamilton, Sadie P. Hutson, Richard P. Moser, Sarah C. Kobrin, Amy E. Frohnmaer, Blanche P. Alter, Paul K.J. Han
Dr. Sadie P. Hutson, PhD, RN
Background
Effects of different sources of medical uncertainty on people’s health-related cognitions, emotions, and decision making have yet to be systematically examined.
Purpose
The aim of this study is to examine how uncertainties arising from different sources are associated with decision making regarding stem cell transplantation in Fanconi anemia, a rare, inherited bone marrow failure syndrome that typically presents during childhood.
Methods
Data were collected through a cross-sectional survey of 178 parents of 126 Fanconi anemia patients.
Results
Two distinct sources of uncertainty were associated with decision outcomes: probability was associated with a lower likelihood of choosing stem cell transplantation, …
The Use Of Haematopoietic Stem Cell Transplantation In Fanconi Anaemia Patients: A Survey Of Decision Making Among Families In The Us And Canada, Sadie P. Hutson, Paul K. J. Han, Jada G. Hamilton, Sean C. Rife, Mohamad M. Al-Rahawan, Richard P. Moser, Seth P. Duty, Sheeba Anand, Blanche P. Alter
The Use Of Haematopoietic Stem Cell Transplantation In Fanconi Anaemia Patients: A Survey Of Decision Making Among Families In The Us And Canada, Sadie P. Hutson, Paul K. J. Han, Jada G. Hamilton, Sean C. Rife, Mohamad M. Al-Rahawan, Richard P. Moser, Seth P. Duty, Sheeba Anand, Blanche P. Alter
Dr. Sadie P. Hutson, PhD, RN
Background: Fanconi anaemia (FA) is a rare genetic disorder associated with bone marrow failure (BMF, congenital anomalies and cancer susceptibility. Stem cell transplantation (SCT) offers a potential cure for BMF or leukaemia, but incurs substantial risks. Little is known about factors influencing SCT decision making.
Objective: The study objective was to explore factors influencing patients' with FA and family members' decision making about SCT.
doi: 10.1111/hex.12066
Promoting Local Implementation Through Community Cancer Research Review Work Groups In Rural Appalachia, Bruce Behringer, Karen Harrell Mabe, Sadie P. Hutson
Promoting Local Implementation Through Community Cancer Research Review Work Groups In Rural Appalachia, Bruce Behringer, Karen Harrell Mabe, Sadie P. Hutson
Dr. Sadie P. Hutson, PhD, RN
Underserved communities with high cancer rates often are not involved in implementing state cancer control activities locally. An East Tennessee State University research team formed 2 Appalachian Community Cancer Research Review Work Groups, 1 in northeast Tennessee and 1 in southwest Virginia. During 4 sessions, the research team presented regional cancer data to the work groups. Work group participants explored research from a lay perspective and identified possible reasons for cancer disparities in central Appalachia. The fifth session was a community dissemination activity in which work group participants engaged in cancer education and action by presenting the research to their …