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Adapting A Conceptual Framework To Engage Diverse Stakeholders In Genomic/Precision Medicine Research, Karriem S. Watson, Elizabeth G. Cohn, Alecia Fair, Usha Menon, Laura A. Szalacha, Selena M. Carpenter, Consuelo H. Wilkins

Publications and Research

Introduction: Genomic/precision medicine offers a remarkable opportunity to improve health and address health disparities. Genomic medicine is the study of genes and their interaction with health. Precision medicine is an approach to disease prevention and treatment that considers individual variability in genes, environ- ment and lifestyle. Conclusions from studies lacking diversity may hinder general- izability as genomic variation occurs within and between populations. Historical factors, such as medical mistrust, ethical issues related to decision making, and data sharing pose complex challenges that may further widen inequities in genomic/ precision medicine if not appropriately addressed. Although few biomedical studies integrate priorities …