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Full-Text Articles in Medicine and Health Sciences
Living With Multiple Myeloma: A Focus Group Study Of Unmet Needs And Preferences For Survivorship Care, L Monterosso, K Taylor, V Platt, Elizabeth A. Lobb, T Musiello, C Bulsara, K Stratton, M Krishnasamy
Living With Multiple Myeloma: A Focus Group Study Of Unmet Needs And Preferences For Survivorship Care, L Monterosso, K Taylor, V Platt, Elizabeth A. Lobb, T Musiello, C Bulsara, K Stratton, M Krishnasamy
Nursing Papers and Journal Articles
Purpose: To describe the unmet informational, psychological, emotional, social, practical, and physical needs and preferences for posttreatment survivorship care of individuals living with multiple myeloma to inform the development of relevant, personcentered, survivorship services.
Methods: An exploratory, descriptive study using 2 focus groups with 14 participants, 6 to 49 months postdiagnosis. Results: Thematic analysis revealed 7 key themes: information needs, experience with health-care professionals, coping with side effects, communicating with family and friends, dealing with emotions, support needs, and living with the chronicity of myeloma. Participants described key characteristics of survivorship care relevant to their needs and indicated they would …
A Qualitative Study Of The Post-Treatment Experiences And Support Needs Of Survivors Of Lymphoma, Leanne Monterosso, Karen Taylor, Violet Platt, Elizabeth Lobb, Meinir Krishnasamy, Toni Musiello, Caroline Bulsara, David Joske
A Qualitative Study Of The Post-Treatment Experiences And Support Needs Of Survivors Of Lymphoma, Leanne Monterosso, Karen Taylor, Violet Platt, Elizabeth Lobb, Meinir Krishnasamy, Toni Musiello, Caroline Bulsara, David Joske
Nursing Papers and Journal Articles
Purpose: To explore the post-treatment experiences and preferences for follow-up support of lymphoma survivors.
Methods: Two focus groups were conducted with 17 participants to explore informational, psychological, emotional, social, practical and physical needs, 6-30 months post-treatment for lymphoma. Perceptions regarding a potential model of survivorship care were also elicited.
Results: Thematic content analysis revealed five key themes: Information; Loss and uncertainty; Family, support and post-treatment experience; Transition, connectivity and normalcy, and Person-centred posttreatment care. Participants described a sense of loss as they transitioned away from regular interaction with the hospital at the end of treatment, but also talked about the …