Medicine and Health Sciences Commons^™

The Caregiver Of The Child With Cerebral Palsy: The Unnoticed Victim, Taylor Tusinski

Dissertations

The purpose of this study was to better understand the overall quality of life (QoL) in the primary caregiver who provides care to the child or adolescent, aged 0-17 with mild, moderate, or severe Cerebral Palsy (CP). This study aligned with a nonexperimental or observational design and examined the severity level of CP and the QoL in the mother and/or father.

For research question 1, regression results indicated that the overall model did not significantly predict the mother’s and father’s QoL [R² = .000, R² _adj = -.012, F(1,80) = .003, p = .957]. Regression results indicated that …

Supporting Caregivers Of The Aging Adult: A Program Evaluation, Tanya O'Brien

Student Scholarly Projects

There is an ever-increasing burden on caregivers of individuals with cognitive illness as a result of the increasing number of older adults with dementia and Alzheimer's disease. Currently, St. John's County Florida offers three programs designed to provide support for caregivers of individuals with cognitive illness. This project evaluated the three programs as part of a program evaluation to determine the efficacy of program selection for sustainability. Utilizing the Center for Disease Control's (CDC) Program Evaluation Framework (PEF), a detailed and thorough evaluation review of the Power Tools for Caregivers, Savvy Caregiver, and an original three-model program developed by the …

Exploring The Burden Experiences Of Care Partners For People With Parkinson's Disease Living In Southwestern Ontario, Lisa A. Moszczynski

Electronic Thesis and Dissertation Repository

This thesis quantitatively explored the burden experiences of care partners of people with Parkinson’s Disease in Southwestern Ontario. Thirty-five complete responses (27 females, 8 males) and three partial responses to an online survey were obtained. The survey included a demographic section (41 items), two measures of burden and a quality of life measure. Care partner data were stratified based on Zarit Burden Inventory scores for analysis. Of the Little to No Burden (n=4), Mild Burden (n=15), Moderate Burden (n=8), and Severe Burden (n=4) groups, weekly hours spent on care duties and years in the care partner role were similar. The …

Parent/ Caregiver Burnout With Autism Due To Covid, Leah Recker, Erin Babcock

Williams Honors College, Honors Research Projects

The purpose of this project is to gain an understanding how parents of children with autism are affected by caregiver burnout. We want to understand the different factors that contribute to this burnout and analyze how individuals are affected differently. To do this, we are sending

out a survey using Likert scale items to assess parents’ stress and burnout. We will be carefully selecting statements based off information we gather through peer reviewed journal articles. We would then like the parents to decide how strongly they agree or disagree with each question. This will create a more in-depth picture of …

Are Effort And Helpfulness Ratings Of Session Activities Associated With Improved Outcomes In Web-Based Acceptance And Commitment Therapy (Act) For Caregivers?, Hannah R. Cragun

All Graduate Theses and Dissertations, Spring 1920 to Summer 2023

Family caregivers for people with dementia are providing care for up to ten years because people with dementia are living longer. This role can be demanding because the person with dementia can have behavioral and psychological symptoms that can be stressful for the caregiver to witness and manage. Acceptance and Commitment Therapy (ACT) in its traditional face-to-face format has strong scientific support in helping caregivers to be less depressed and better cope with the stress associated with taking care of their loved one. However, because caregiving is a time-demanding role, caregivers can struggle with accessing face-to-face therapy, making online ACT …

Informal Caregivers’ Of Adults With Autism Spectrum Disorder: Experiences Of Social Inclusion Policy In The Province Of Ontario, Heather L.M. Church

Electronic Thesis and Dissertation Repository

Social inclusion for people with Autism Spectrum Disorder (ASD) is a widely

accepted social value. Policy implementation impacts on health, experience of inclusion and on individuals and caregivers.

Method. This study used a qualitative directed content analysis to analyse the needs, care, services and policy which influence the care and support of adults with ASD in the Province of Ontario. Caregivers of adults with ASD were interviewed to determine: a) how the Services and Supports to Promote the Social Inclusion of Persons with Developmental Disabilities Act, 2008, is experienced and b) has influenced how they and their loved ones with …

Caregivers' Challenges In Accessing Services For Children With Autism, Anita Payne Jones

Walden Dissertations and Doctoral Studies

The perspective of the caregiver is vital to understanding the experiences of raising a child with autism, including the challenges faced in accessing services. The purpose of this qualitative, transcendental phenomenological study was to examine the lived experiences of primary caregivers raising a school-age child with autism and to bring about an understanding of the challenges faced in accessing services. Resiliency theory provided the conceptual framework for the study. Semi-structured, in-depth interviews were conducted with 11 participants raising a child with autism in the Washington, DC metropolitan area. Data were analyzed using Moustakas's descriptive approach. Results yielded 5 themes: overall …

Linking Key Factors Of Quality Dementia Care: Knowledge And Self-Efficacy, Sophie E. Miller

Honors Theses

Dementia-related changes in cognition, memory, and personality can have wide-ranging impacts on individuals, families, and healthcare systems (Plassman et al., 2007); including caregiver burnout, disruption of family life, and costly care requirements (Graneheim, Johansson, & Lindgren, 2014). Dementia has become a global issue; 46 million people worldwide have dementia and $600 billion are spent on dementia-related care every year (Farina al., 2016). Certified nursing assistants (CNAs) generally assume the majority of day-to-day care and are a vital component of providing quality, person-centered services to patients with dementia in residential care (Burke & Orlowski, 2015). The purpose of this study was …

Exploring Autism And The Caregiver Burden Relationship, Mary C. Drockton

Williams Honors College, Honors Research Projects

The purpose of this study was to collect qualitative data on the different stresses and burdens associated with being a caregiver for an autistic individual, and discover strategies of stress relief for caregivers. A total of four autism support group meetings hosted by the Autism Society of Greater Akron were attended and observed, with documentation of the discussion between the moderator of the meeting and the caregivers in attendance. Through observation of these meetings, common themes of stress in caregivers were revealed. These include: difficulty with the diagnosis process and finding medical treatment; seeking additional information on available medical treatments; …

The Impact Of Perceived Mental Illness Stigma On Caregivers’ Desire To Relinquish Care, Tyler R. Corson

Theses and Dissertations

Caregiving can be stressful, and older adults’ health and well-being may be impacted by the roles and responsibilities they assume as caregivers for persons with serious mental illness (SMI). This study is the first to apply the Stress Process Model of Caregiving (SPM) in an attempt to understand how mental illness stigma influences caregiver outcomes, specifically their desire to relinquish care. The intent of this study was to call attention to care relinquishment as an under-studied stress process outcome and to explore stress factors, with a focus on mental illness stigma, that contribute to SMI caregivers’ desire to relinquish care. …

Spirituality And Psychological Well-Being Among Als Caregivers: Hope And Perceived Stress As Mediators, Bridget R. Jeter

Electronic Theses and Dissertations

The empirical study of the salutary relationship between spirituality/religiousness and psychological well-being is burgeoning. However, mechanisms of this association have received less empirical attention. Theory suggests that spirituality/religiousness may lead to positive psychological characteristics such as hope, which may function as a means of coping in the context of a significant stressor or stressful situation. The perceived burden and stress associated with caring for individuals with chronic illnesses such as ALS is significant, and caregivers may be at risk for increased symptoms of depression, symptoms of anxiety, somatic symptoms, and other deleterious psychological well-being related outcomes. Within the context of …

The Exposure Of Workplace Conflict On Residential Mental Health Clients, Shawna Deann Stoneking

Walden Dissertations and Doctoral Studies

Individuals who receive residential mental health services rely on caregivers for support, supervision, and a safe living environment. Residential clients exposed to workplace conflict among staff may feel insecure and mistrust their caregivers, which in turn could negatively impact quality of life and treatment outcomes. The theory of therapeutic alliance proposed by Zetzel, emphasizing the client's perception of the therapist as a nurturing beneveolent figure, was used as the conceptual framework for this phenomenological study. Semi-structured interviews were conducted with 6 adults, recruited with homogenious sampling, who had experienced conflict among staff members and who had been discharged from residential …

Measuring The Sixth Vital Sign: A Descriptive Analysis Of Distress In Individuals With Head And Neck Cancer And Their Caregivers, Catherine C. Bornbaum

Electronic Thesis and Dissertation Repository

Introduction: Distress has become so problematic in oncology that it has been recognized as the “sixth vital sign” implying that distress monitoring should occur as routinely as the monitoring of one’s temperature or blood pressure. The research reported herein investigated the impact of head and neck cancer on levels of distress, commonly reported problems, and perceptions of quality of life in individuals with head and neck cancer and their caregivers.

Method: Two distinct studies were conducted; the first explored the patient experience of distress and quality of life while the second assessed the caregiver experience of these same constructs. A …

The Mediating Role Of Social Support And Fulfillment Of Spiritual Needs In End Of Life Care, Kimberley A. Gryglewicz

USF Tampa Graduate Theses and Dissertations

End of life (EOL) caregiving can be a daunting and challenging endeavor as caregivers adjust to the ever-changing care demands associated with dying. Increased personal care, assisting with symptom and medication management, and attending to the emotional and spiritual needs of the dying person require caregivers to learn new tasks and to assume new roles such as social worker, nurse, and chaplain. As families continue to play an essential role in meeting the health care needs of their dying loved ones, it is imperative for social workers to understand the complexities of the end of life caregiving experience in order …

Depression, Anxiety, Hazardous Drinking, Subjective Burden, And Rewards In Family Caregivers Of Patients With Chronic Liver Disease, Lois Vennesta Bolden

Theses and Dissertations (ETD)

This descriptive correlation study had three purposes. The study first described depressive and anxiety symptom levels, prevalence of hazardous drinking, rewards, and subjective burden reported by family caregivers of patients with chronic liver disease (CLD). Second, the investigator compared depressive and anxiety symptom levels, prevalence of hazardous drinking, rewards, and subjective burden reported by African Americans family caregivers with those reported by Caucasian family caregivers of patients with CLD. The third purpose was to determine the predictors of subjective burden and mental health status of family caregivers of persons with CLD.

A convenience sample of 73 caregivers of patients receiving …